Fraoch (Heather) 🏞️🌌🌅

Mainly thoughts on: politics, place & design ; respecting nature & people ; living with IBCancer & #MyalgicE. Once fae Edinburgh, now in Argyll🏴󠁧󠁢󠁳󠁣󠁴󠁿

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@blacklab_14 Dalmally is the next village east. It’s in the village of Lochawe which is beside (the 26 mile long) Loch Awe.

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@DecodeMEstudy Recent immunology research (summarised👇) which looks to align with your findings may be be getting sidelined for publication due to the location of the researcher. Might any of the Decode team act as a reviewer or somehow help this inform others work? https://t.co/ds6f8YZ1Ig

[Jack | amatica health @JackHadfield14]

🔬New @BhupeshPrusty paper breakdown - very cool paper:

The study finds that people with ME/CFS & Long COVID have antibodies in their blood that may directly interfere with mitochondria (how human cells create energy and regulate inflammation)

In simple language all findings 🧵

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@BhupeshPrusty Have you tried contacting Chris Ponting @DecodeMEstudy ? They’ve got a call out to intensify research after finding DNA results which chime with your immunology findings. I’d hope they’d help you get published

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@useless_priest @MECFSNanoneedle @KSchnickelfritz On childhood trauma, more evidence undermining a psych genesis causing disproportionate responses. https://t.co/nONyI6q88d.

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@useless_priest @MECFSNanoneedle @KSchnickelfritz Aye, specifically the finding that the parts of DNA linked to increased susceptibility to anxiety and depression did not feature. This undermines the assumption/assertion it’s down to us all being disproportionately bothered by our symptoms.

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@LongCovidFight @KSchnickelfritz @useless_priest Stress uses a lot of energy- it’s the thinking equivalent of running fast for ages. It could simply be the energy use that knocks us out (I find social energy use almost as draining tho it’s fun), not us being particularly mentally vulnerable as they suggest.

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@useless_priest @KSchnickelfritz I think it’s got a BioPsychSocial lean, talking about abuse, trauma etc increasing susceptibility - I thought that was disproved a while back. There’s a (rather synical in my view) drive to ‘medicalize’ psych approaches to make them more palatable https://t.co/GNK9pZ1TIR

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@KH118118 @SMC_London I didn’t say he did research on ME, I said he authored a now discredited statement on it, which 👇 confirms https://t.co/71XTbB7x8X

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@KH118118 @SMC_London Sure - his recent public response to research on the mechanisms at work in ME & LC https://t.co/XoFwuugVPC

[Alan Carson @AlanCarson15]

Gosh almost as if it was a functional disorder…

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@WoollerEmma @DecodeMEstudy Definitely doesn't - he wrote NHSScotland’s good practice guide for ME based on the BSP model (that guide’s only just been thrown out😤) and just last week was posting comment that ME is a functional neurological disorder (a problem in how the brain and body communicates).

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@CaroleBruce17 @DecodeMEstudy Handily one of the other experts praises the rigour of DecodeMEs process, undermining AC’s fatuous shuns.

[DecodeME the ME/CFS Study @DecodeMEstudy]

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: https://t.co/KFouvOq3sb Check out our full preprint paper: https://t.co/Df9m4jm0fE

[Channel 4 News @Channel4News]

ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested.

They’ve found eight areas of genetic code in people with ME are ‘significantly different’ to the DNA of people without the disease.

The results still need to be reviewed, but the University of Edinburgh research team hope these results will pave the way for future research and the development of drugs.

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@DecodeMEstudy Can someone please find and gag Prof. Alan Carson so the news articles on Thursday arnt full of him casting shadows over the findings because they arnt based on his pet hypothesis 🙏

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@Annakwood Well done

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@LifeAfloat So happy for you

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@Annakwood How lovely 🥰

[Fraoch (Heather) 🏞️🌌🌅 @FraochL]

@BylinesScotland The ones which grind my gears are those who think Access Rights extend to vehicles so off-road their campervan or 4x4&rooftop over other’s land to ‘wild camp’. These vehicles are sold with the promise of freedom but they need to obey the same road/land laws as any other motor.