GP Data Trust

University of Manchester project looking at whether a Data Trust could give patients control of sharing their GP data to improve health research.

[GP Data Trust @GPDT_Project]

We look forward to sharing the results of our study in the new year but for now here are some amazing graphics produced by the very talented @AmberAmberson from our focus groups conducted with @PatientsAssoc
@OfficialUoM @uomsoss @BioethicsUoM

[GP Data Trust @GPDT_Project]

Our blog post for Understanding Patient Data as part of their countdown to Christmas is available here 🤩
In it we highlight the need for a wide ranging health data education programme to enable individuals to have the control they want over their health data.
@BioethicsUoM

[Understanding Patient Data @Patient_Data]

Countdown to Christmas 3/15: New guest blog! 📰

Catherine Bowden and Sarah Devaney from the University of Manchester write about their work with members of the public exploring a new General Practice Data Trust model for data for research.

@GPDT_Project https://t.co/XSso46kyw1

[Dr Catherine Bowden @CathBowden]

What a day! Fantastic discussions of empowerment in data decisions, legal structures giving legal effect to the control people want, fiduciary duties addressing vulnerabilities and the need for this conversation to continue and grow! Now for a well earned drink!

[Dr Catherine Bowden @CathBowden]

And now for lunch 🤩

[Dr Catherine Bowden @CathBowden]

A fantastic lively discussion this morning beautifully captured by @AmberAmberson @GPDT_Project and Brixham Data Trust

[Dr Catherine Bowden @CathBowden]

Really excited for this round table event today discussing all things #DataTrusts

[CSEP Manchester @BioethicsUoM]

We are pleased to share our Spring Newsletter!

[Understanding Patient Data @Patient_Data]

As part of an exciting research project, we are looking to speak to leaders working on health data in Integrated Care Systems for a one hour interview.

More information in the link below - please do share with your network and get in touch if interested! https://t.co/F3XvfB2TBP

[Christabel Pankhurst Institute UoM @UoMPankhurst]

🚑Interested in #healthdata? 🎟️Join our seminar with Dr @FabioGomes_Go, Consultant Medical Oncologist at @TheChristieNHS on 24 Jan to explore the use of health data from The Christie🏥: https://t.co/v8ZH4ZldUg @FBMH_UoM @UoMSciEng @uomhums

[GMdigital @GMCAdigital]

📰Read the latest #Digitober case study from @GPDT_Project @UoMPolicy @OfficialUoM "General Practice Data Trust pilot study - listening to our people" ⬇

https://t.co/NUaqgpwDsa

[GP Data Trust @GPDT_Project]

Original article here: https://t.co/NKeaGKdEei

[GP Data Trust @GPDT_Project]

Our letter published in the Guardian last week in response to their article on the relationship between patients and their data. It's a great read and reflects the findings coming out of our study.

Trust is the key to healthcare data sharing | Letters https://t.co/YDLautxVU6

[GP Data Trust @GPDT_Project]

@AmberAmberson @BISDataTrust @prospectbrixham @BioethicsUoM @uomsoss @PatientsAssoc @useMYdata

[GP Data Trust @GPDT_Project]

Interested in the technical side of how a GP Data Trust could ensure health data is shared in line with patients' wishes? This animation is for you!
Thanks to the very talented @AmberAmberson 🤩
https://t.co/ux1CVqoZXT

[UoM Centre for Digital Trust and Society @UoM_CDTS]

Check out "Digital Trust and Society Forum 2023" https://t.co/LblDR0Eb9g @Eventbrite

[Understanding Patient Data @Patient_Data]

It's important to recognise when projects or research have used patient data.

Patient advocates @useMYdata developed a citation & tested it with patients.

We encourage everyone to use it 👀

https://t.co/EBxyeY3wkg

[@useMYdata @useMYdata]

Report’s conclusions emphasise the importance of transparency. We support this – it’s fundamental to embed transparency within all uses of patient data. Our Transparency Principles, written by #usemydata Members – 'Say what you do, do what you say' - https://t.co/6zANDsQseG

[GP Data Trust @GPDT_Project]

The first report from our project is now available here:
https://t.co/fyR5uuGHq6
A big thank you to everyone who contributed 😊
The analysis of our interview data continues and we look forward to sharing more results in the near future 😃

[GP Data Trust @GPDT_Project]

A great blog explaining our project and some of our initial findings 🤩
@BioethicsUoM @uomsoss @PatientsAssoc

[Accelerate_Science @AccelerateSci]

Read our blog from guest author Sarah Devaney @uomsoss about work with @PatientsAssoc on the General Practice Data Trust pilot @GPDT_Project exploring trustworthy data stewardship practices that empower people to set the terms of their health data use: https://t.co/zkdamcPuyn

[@useMYdata @useMYdata]

Interesting pilot study, exploring potential ways that patients might have more control over how their GP data is used, for research & planning. Project work to date is captured in these sparky infographics – from which the standout theme is the essential need for transparency.

[GP Data Trust @GPDT_Project]

A big thank you to everyone who took the time to complete our surveys, speak with us in interviews, and attend our focus groups. The response was amazing! You gave us lots to think about and we really appreciate your contributions. 😊

[GP Data Trust @GPDT_Project]

We look forward to sharing the results of our study in the new year but for now here are some amazing graphics produced by the very talented @AmberAmberson from our focus groups conducted with @PatientsAssoc
@OfficialUoM @uomsoss @BioethicsUoM