✅ Dear #lupus patients, I am very happy to report that the LBFSS manuscript (Lupus #Brainfog Severity Scale) just got accepted for publication @Lupus_SM 🦋 I am very happy as this is the first SLE-specific #cognition symptom score in SLE and will help so many people 🙏
✅ Thank you to the amazing Portuguese colleagues from #NEDAI for the invitation to talk about international collaborations in systemic #lupus 🌍🌎🌏 In our constantly changing world, it is very important to understand the dynamics of #knowledge sharing in #autoimmune diseases
🎥 Our Chair, @Jeanette_Lupus, explains at #EULAR2026 what #LupusGPT is and why reliable, understandable #lupus information matters.
Watch the full interview:
https://t.co/j8otcGwTyE
Thank you @eular_org for giving space to patient-led innovation on EULAR TV!
🆕 Uso temprano de pulsos de metilprednisolona en pacientes con lupus en la cohorte Cruces-Burdeaux @equipo_eas
🦋 sin tratamiento previo y con actividad moderada a grave ➡️ previno la acumulación de daño.
🔗https://t.co/TmmjBYdRX3
🟪 Consultations are short. Lupus is complex.
💫 A simple way to help patients prepare, prioritise, and support more focused discussions.
The Lupus Consultation Cards are now available in 18 languages.
🔗 Download them for free: https://t.co/3MeKw54wR5
#MakeItCount
💬 Our voices matter in every consultation. That's why we want to remind you of our #MakeItCount campaign.
✅ The Lupus Consultation Cards can help you prepare for appointments, organise your thoughts & focus on what matters most.
Download & use them 👇
https://t.co/3MeKw54wR5
🦋#DíaMundialDelLupus
Una enfermedad sistémica, heterogénea y multiorgánica que exige una mirada experta.
El internista es fundamental en el diagnóstico precoz, seguimiento y abordaje integral.
💜 Actualizarse, visibilizar y acompañar es cuidar.
#InvisibleParaTiRealParaMi
#Lupus is an autoimmune disease that affects nearly 500,000 people in Europe and over 5 million people in the world.
It affects not only patients but also their loved ones.
Let's raise awareness of the importance of an early diagnosis
#WorldLupusDay#MakeItCount#Lupus100
✅ Interesting #metaresearch projet, about international collaborations in #lupus 🌏🌎🌍
Can you guess the proportion of #lupus papers including at least one co-author having an affiliation country different from the other co-authors of the same paper?
The answer...is ~18%
FcγRIIIA-reporter assay revealed that bioactivity of circulating IC was significantly elevated across systemic autoimmune diseases and was associated with disease activity, particularly in SLE. In SLE, the assay reflected disease activity, identifying risks even in patients with low anti-dsDNA levels
A&R
https://t.co/gSY5ohaHJz
Systematic review examined extracorporeal membrane oxygenation use in patients with life-threatening rheumatic disease complications. 57% (416/734 patients) were successfully bridged to recovery, with highest survival in AAV diffuse alveolar hemorrhage and lowest survival in myositis rapidly progressive ILD
ACROR
https://t.co/pXSNK3ZyWm
FDA has issued a drug safety warning for avacopan (Tavneos), dentifying 76 cases of drug-induced liver injury, including 7 cases of rare vanishing bile duct syndrome (VBDS). There were 8 deaths https://t.co/WkBhs1rNpf
Economic analysis of ESR & CRP testing (are they same or different?). Compared to doing either ESR OR CRP, they found the ESR + CRP testing was cost-effective strategy, reducing misdiagnoses, followup costs and overall healthcare costs. https://t.co/UU15bxuPKP
✅ Now that #LupusGPT is published in the Lancet #Rheumatology (LINK: https://t.co/Xqr1mPkHZp), I wonder whether you have previously tested the app itself. Ask it anything about #lupus, in any language and tell me what you think: https://t.co/Qob1EunPPL
💥 KABOOM!
Our #LupusGPT work is now published in @TheLancetRheum‼️
🏆 A big moment for LupusGPT, but also for what can happen when patient voice is built in from the start, not added at the end.
Free. Multilingual. Valid information on lupus
https://t.co/7Nqayplfsl
✅ If you are at #ELM2026 by @SLEuroSociety, don't miss the first official presentation of LUPUS-ALERT, the first co-developed instrument by @LupusEurope to screen for vulnerabilities, inequities, and more broadly assess socio determinants of health in #Lupus. Poster 193 👍