If I've learned anything on this journey it's the truth and beauty of impermanence. Everything changes. Emotions like sorrow arise and unravel. And a great teacher of this wisdom of change is Nature. Today was first day I was kissed by the rising Sun as we move toward Solstice! Holy.
The most incredible couple days with the most incredible people. This disease is the worst; the people fighting it — those who have it, their caregivers and families and those who are working to help end it — are just the best. ❤️
#EndALS#SnowyStrong#TeamGleason#NoWhiteFlags
How do you describe beauty personified in 140 characters? Catherine Scott. Her bodily absence has broken hearts into a million pieces. But having her for the short time we did, helped changed the world. Peace, to an incredible, loving, passionate, fierce soul.
Excited to support @BeckmanInst Speech Accessibility Project, an initiative to make voice recognition technology more useful for people with a range of diverse speech patterns & disabilities. Project supported by @Microsoft@Amazon@Apple@Google@Meta
https://t.co/mUJW9C0JQp
Today marks the 16th anniversary of Steve’s blocked punt and the 11th anniversary of Team Gleason.
Thank you to our followers and supporters for being a part of this journey.
Our Future is Greater Than Our Past! -SG
#nowhiteflags#saints#teamgleason
Thank you Karen Roy and our partner, @GoNumotion, for sharing the importance of seat elevation!
➡️ We need your help before September 14th! Make your voice heard! https://t.co/sIZLta4FBX
Visit https://t.co/8FD40SMOTN for more info
https://t.co/R0344GWuBU
@US_FDA Game changers can change the game with one point. With ALS, every second, every minute, every hour, and every point can mean the difference between living and loss. Help us change the game. #EveryPointMatters
Last night, we partnered with @MLB and @TeamGleason for an inclusive ceremonial first pitch in honor of Lou Gehrig Day. Watch as @SteveGleason uses our Look to Speak technology to start last night's game. Try the app at https://t.co/LHA6h3waOi
It was so glorious to be with you two! Thank you Chris and Kelsie. You both asked me such courageous & vulnerable questions about marriage w ALS, parenting & moving thru fear so we can live without suffering, in absolutely any circumstance. I love yall!
https://t.co/lstJGSCpH3
9000 words from our breath of fresh air from social media. Including a visit from my family, St Josephs "father Sun" day which is my birthday, and the fucking epic gala raising 2.5M for our foundations @TeamGleason & Answer ALS. I've never hugged my kids, but Gray hugs me!
I'm grateful to share - I’m writing a book!
Live Impossible
With my good friend @JeffDuncan_
Honored to be published by Knopf of Penguin Random House & will be available at your favorite bookstores and online in 2024. This is an opportunity to create something unique & powerful!