US open giveaway pt 1
My awesome partner @FootJoy and I are giving away these cool US open themed shoes! Whatever size you wear.
Retweet, comment, must follow myself and footjoy to win.
The impact of #RareDiseases is more than you can imagine.
On @rarediseaseday, we connect to create change. Amplifying voices and listening to experiences, we work together to drive progress that is meaningful and inclusive. Learn more at https://t.co/CNMhzYNMFo
@eurordis
PGAPappas 12 Days of Christmas #SantaDaredMe DAY 8 Giveaway 2
🎁 New LAB Golf Putter (Choose ANY model, RH or LH here: https://t.co/58CQIhbZAF) 👀
To enter:
🎄 Repost
🎄 Follow @PGAPappas and @labgolfputters#ReleaseTheKringle! https://t.co/KOZIswwOHx
In honor of #EBAwarenessWeek, I’ve updated my tattoo with a butterfly 🦋, designed alongside an artist who lives with EB. It’s a reminder of the daily pain and resilience of those affected by this rare condition. Raising awareness one step at a time! #EpidermolysisBullosa
During #SSIEM2024, our team highlighted advances that are transforming the treatment of rare lysosomal storage disorders including #Fabry disease and #AlphaMannosidosis. Tomislav Gaspar, Head of Rare Diseases Austria & Switzerland, shares insights about @ssiem2024_Porto.