GenTAC Alliance

Committed to advancing the understanding of genetically triggered thoracic aortic diseases & their treatment. Powered by @MarfanFdn. #aortaed #aorticdissection

[GenTAC Alliance @GenTACAlliance]

Trying to help a patient with a genetic aortic and vascular condition like #VEDS #LoeysDietz or #Marfan? Check out our Clinical Management Videos & Tools. #healthcareproviders #doctors #rareconditions https://t.co/HQlNkMB7Yy

[GenTAC Alliance @GenTACAlliance]

What are the top 3 things we wish every emergency department pro knew about aortic emergencies? Take 2 minutes to watch and share the video from @keaglemd; save lives! Visit https://t.co/mPnxscmkw4 to learn more! #aortaed #emergencymedicine #themarfanfoundation #VEDS #loeysdietz

[GenTAC Alliance @GenTACAlliance]

Share information about emergency preparedness, the signs and symptoms of dissection, and how to mitigate risk. Visit our new aortic disease awareness page https://t.co/mPnxscmkw4
#aorticdiseaseawarenessweek #aortaed #themarfanfoundation

[GenTAC Alliance @GenTACAlliance]

Register now! #Marfan, #LoeysDietz, and #VEDS! Don't miss the Midwest Symposium. Hear from area experts and meet up with your community. Register today at https://t.co/sSYm9RmqgB. #rareconditions #midwest #indiana #ohio #kentucky #illinois #michigan #marfansysndrome #marfans

[GenTAC Alliance @GenTACAlliance]

Register to join the GenTAC Alliance Basic and Translational Science Working Group for a free webinar, “Accessing GenTAC Data and Biospecimens Using BioLINCC,” on June 27 at 12:00 p.m. Eastern. To register, visit https://t.co/HIDccFgVup.

[GenTAC Alliance @GenTACAlliance]

Join the GenTAC Alliance Basic and Translational Science Working Group for a free webinar, “Accessing GenTAC Data and Biospecimens Using BioLINCC,” on June 27 at 12:00 p.m. Eastern. To register, visit https://t.co/HIDccFgVup.

[GenTAC Alliance @GenTACAlliance]

A new report published by the American Academy of Pediatrics, @AmAcadPeds, aims to help pediatricians recognize the features of #Marfan syndrome as well as care to maximize health and quality of life in those with the condition. https://t.co/g8KsbUap9F
#MarfanSyndrome

[GenTAC Alliance @GenTACAlliance]

Join us on April 12, 1 pm Eastern, for a special webinar from the GenTAC Alliance on Genetic Testing: Perspectives from the US and Europe. Register here: https://t.co/Y8D5rwwKeQ
@uzgent @OHSUNews

[Michigan News @UMichiganNews]

Soccer journalist Grant Wahl died due to an undetected ascending aortic aneurysm while covering #WorldcupQatar2022.

@umichCVC has experts available who can speak in-depth about the condition-how it occurs, prognosis, treatment, etc. Contact @NoahFromson
https://t.co/zByQ9nrus5

[TheMarfanFoundation @MarfanFdn]

The Foundation is saddened to learn that journalist Grant Wahl has died due to complications of an ascending thoracic aortic aneurysm. Diagnosed, this condition can be treated if the risks are known. Please help us share these warning signs with others. https://t.co/0WqZiUAMs4

[GenTAC Alliance @GenTACAlliance]

STILL TIME TO REGISTER: On December 1 at 11:00 a.m. ET, the GenTAC Alliance will host a webinar titled “Transcriptional and Epigenetic Factors in the Generation of Thoracic Aortic Disease.” To view the speakers and register to attend, visit https://t.co/iSwbrFjgWW. #AortaEd

[GenTAC Alliance @GenTACAlliance]

On December 1 at 11:00 a.m. ET, the GenTAC Alliance will host a webinar titled “Transcriptional and Epigenetic Factors in the Generation of Thoracic Aortic Disease.” To view the speakers and register to attend, visit https://t.co/JrivhexH61. #AortaEd

[American College of Cardiology @ACCinTouch]

Because outcomes for patients w/ #aorticdisease are enhanced at programs w/ ⬆️ volumes, experienced practitioners & extensive management capabilities, Multidisciplinary Aortic Team care is considered in determining the appropriate⏰of intervention.

[American College of Cardiology @ACCinTouch]

Shared Decision-Making (SDM) is encouraged to determine the optimal medical, endovascular & open surgical therapies. In pregnant patients w/ #aorticdisease SDM is🔑when considering CV risks of pregnancy, diameter thresholds for prophylactic aortic #cvSurg & mode of delivery.

[American College of Cardiology @ACCinTouch]

CT, MRI & echocardiographic imaging of patients w/ #aorticdisease should follow recommended approaches for image acquisition, measurement & reporting of relevant aortic dimensions & frequency of surveillance before/after intervention.

[American College of Cardiology @ACCinTouch]

At centers w/ Multidisciplinary Aortic Teams & experienced surgeons, the threshold for surgical intervention for sporadic aortic root & ascending aortic aneurysms has been ↘️ from 5.5 to 5.0 cm & ↘️ in scenarios among patients w/ heritable thoracic aortic aneurysms.

[American College of Cardiology @ACCinTouch]

In patients significantly smaller or taller than avg, surgical thresholds may incorporate indexing of the aortic root or ascending aortic diameter to patient body surface area or height, or aortic cross-sectional area to patient height.

[American College of Cardiology @ACCinTouch]

Rapid aortic root growth or ascending aortic aneurysm growth is defined as ≥0.5 cm in 1 year or ≥0.3 cm per year in 2 consecutive years for those w/ sporadic aneurysms & ≥0.3 cm in 1 year for those w/ heritable thoracic #aorticdisease or bicuspid aortic valve.

[American College of Cardiology @ACCinTouch]

In patients undergoing aortic root replacement surgery, valve-sparing aortic root replacement is reasonable if the valve is suitable for repair & performed by experienced surgeons in a Multidisciplinary Aortic Team.

[American College of Cardiology @ACCinTouch]

Patients w/ acute type A aortic dissection should be considered for transfer to a high-volume aortic center to improve survival. The operative repair of type A aortic dissection should entail at least an open distal anastomosis rather than a supracoronary interposition graft.