Alongside patients, researchers, @Mndassoc and @MNDoddie5, we're calling for clarity NOW, on the delivery of the promised £50m investment into targeted #MND research. People with MND don't have time to wait @beisgovuk @dhscgovuk. Read more 👇 #United2EndMND
Only a day left to enter this brilliant competition in aid of @mndassoc! Your chance to win a great prize courtesy of my fellow @mndassoc patron Eddie Redmayne. Good luck!! 🤞 https://t.co/cUuNYroUkX
We received some bad news yesterday. Holly’s tumour has stopped responding to the chemo and has grown.
We now need to find another treatment quickly before the tumour grows any further as it’s causing pressure on her lungs and heart.
#BloomSyndrome#WilmsTumour#ChildhoodCancer
3 years ago today, I was diagnosed with MND and my life changed forever. But I am full of hope for the future due to the £50m Govt investment for our amazing scientists to find treatments. #United2EndMND#FollowTheScience@GillianKeegan@sajidjavid
Tomorrow is rare disease day. But did you know that Motor Neuron Disease is not a rare disease 💡1/300 people are at risk of being diagnosed with MND in their lifetime. Watch our video below for more info 👇
THEY’VE GONE AND DONE IT 🎉🍾 Rob and a peloton of over 100 cyclists delivered the match ball in 48 hours in a sensational finish to Doddie Aid, raising over £250,000 for My Name’5 Doddie Foundation.
A huge thank you to all involved, time for a well-earned rest 👏
"Graham is truly a wonderful man. He's been my soul mate for nearly 30 years”
Debbie whose husband Graham has MND, took on our #TheExtraMile challenge walking an extra mile each day during January. She completed the challenge and raised almost £2,000.
💙 https://t.co/o1GbUJ4j5H
Today we remember Gordon Aikman, who sadly passed away on February 2nd 2017, aged 31, after a 3 year battle with MND. 💙
Although sorely missed, the future is brighter for those living with #MND because of Gordon's fundraising work and relentless campaigning.
just found an old video on my phone and my nan is speaking to me in it.. first time ive been able to hear her voice in nearly 8 years
im a mess
Motor Neurone Disease ruins everything 💔
Outside of football, Steph raises awareness and funding for research into Motor Neurone Disease via the Darby Rimmer MND Foundation @darbyrimmermnd. She has also been awarded an MBE for services to football.
📸@actionimages
Up to date facts of Motor Neurone Disease. Every week in the #UK alone 42 people die. A person's lifetime risk of developing MND is around 1 in 300. #NoCause#NoCure for #MND#ALS#EndALS#EndMND
Please go along to support your local club todayl
What football match are you going to this afternoon?
Let's make this a massive thread to publicise all the games that are taking place!
PLEASE SUPPORT YOUR LOCAL CLUB
🗣️“I represent the whole MND community now, it’s brilliant to continue raising awareness."
Kevin Sinfield has today been awarded his OBE 🎖️ for his outstanding fundraising efforts for the MND Association in support of ex-teammate and friend Rob Burrow🦏🏉