GI LGMD de l’AFM-Téléthon

Groupe d'intérêt LGMD Myopathies des Ceintures

[Institut de Myologie @Inst_Myologie]

#WMS2024 Poster session of the day 1 with our experts from @Inst_Myologie presenting their work at @WorldMuscleSoc congress.
Audrey El Kaim, Jean-Yves Hogrel & @tanya_stojkovic
@BiotherapiesIns @researchmyology @HopPitieSalpe

[GI LGMD de l’AFM-Téléthon @GiLGMD]

Aides à domicile : L’AFM-Téléthon et APF France Handicap lancent un cri d’alarme | #aidants https://t.co/qHJNEBcgv9 via @Telethon_France

[TREAT-NMD® @TREAT_NMD]

On Limb-Girdle Muscular Dystrophy Awareness Day, we're highlighting the importance of resources for those working with individuals living with neuromuscular conditions.

At TREAT-NMD, we are dedicated to advancing knowledge and support for LGMD. We invite physiotherapists and healthcare professionals to explore our POD-NMD platform, which offers valuable resources tailored for working with individuals with neuromuscular conditions.

Check out our LGMD-specific resources and guides here: https://t.co/zVWPQ7D4P0

Together, we can enhance care and support for those affected by LGMD. Join us in raising awareness and ensuring that everyone has access to the information they need.

#LGMDawareness #PODNMD #TREATNMD #NeuromuscularConditions

[TREAT-NMD® @TREAT_NMD]

Today is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day!

This day is dedicated to raising awareness of the rare neuromuscular diseases that affect individuals around the world. With over 30 different types of LGMD, increasing understanding is key to driving research, improving care, and supporting those living with the condition.

At TREAT-NMD, we’re proud to stand with the global community to shine a light on LGMD and the ongoing efforts to advance diagnosis, treatment, and care.

Join us in raising awareness by sharing resources and learning more about LGMD. Together, we can make a difference.

#LGMDawareness #LimbGirdleMD #TREATNMD

[GI LGMD de l’AFM-Téléthon @GiLGMD]

#LGMDAwarenessDay Music Party avec DJ Junior 💚 le 30/09/2024 de 19H30 à 21H00 ➡️ Scan QR Code

[Institut de Myologie @Inst_Myologie]

#LGMD2024 Aujourd'hui c'est la Journée internationale de sensibilisation aux myopathies des ceintures. Nos équipes sont fières de soutenir et suivre ces patients dans 3 essais cliniques en cours à @Inst_Myologie
https://t.co/ltPExwxaa6
#lgmdday2024
@Telethon_France @LgmdAwareness

[LGMD Awareness Foundation, Inc @LgmdAwareness]

Today is LGMD Awareness Day! 💚 Help us Advocate - Educate - Celebrate limb-girdle muscular dystrophy. 💚Please share our post to help raise awareness.

To learn more, visit https://t.co/737EGwYowk

#LgmdAwareness
#lgmdday2024
#TogetherWeAreStronger

[GENETHON France @GenethonFr]

[#LGMD2024]
💥This Monday 30 September, Isabelle Richard's team supports International Limb Girdle Muscular Dystrophy Awareness Day.
🎈💚 @GenethonFr's work is concrete hope for patients.
@atamyo tx
👉https://t.co/nRRXWqQkHR
#LGMDAwareness

[Institut de Myologie @Inst_Myologie]

#lgmdday2024 Today is #LGMD Awareness day. Our research teams @Inst_Myologie are happy to support and follow patients with this neuromucular disease.
Check out ongoing clinical trials at @Inst_Myologie ➡️ https://t.co/v4Wi5dnbgf

@Telethon_France @BiotherapiesIns @LgmdAwareness

[Atamyo Therapeutics @AtamyoTX]

In honor of LGMD Awareness day, @atamyoTX announces key milestones in our #genetherapy for #LGMD. Read the full release: https://t.co/QV9PYjOLFP

[GI LGMD de l’AFM-Téléthon @GiLGMD]

Recrutement terminé de l’étude Fortify de phase 3 pour le traitement de la #LGMD2i

Le nombre de participants initialement prévu a été dépassé 💚!

#LGMDAwarenessDay #LGMD #lgmdday2024

https://t.co/ya8vXGnElf

[Atamyo Therapeutics @AtamyoTX]

@AtamyoTX is proud to announce this new partnership with The Dion Foundation to expand our first-in-human trial of ATA-200 #genetherapy to treat LGMD2C/R5 in the US. Read full press release here: https://t.co/X9CCx5tfzv #LGMD #MuscularDystrophy

[JWMDRC @jwmdrc]

Some of the team recently attended the 1st European LGMDR9 Community Conference in Amsterdam.

This was a gathering of people affected by LGMD type R9/2I, including patients, their families and clinical experts, to meet and learn about progress in research and clinical trials.

[Atamyo Therapeutics @AtamyoTX]

Atamyo Therapeutics Obtains US FDA Fast Track Designation  for ATA-100, a Gene Therapy in Phase 1/2 Clinical Trials for Limb-Girdle Muscular Dystrophy Type R9 (LGMD-R9) https://t.co/yTp4otcTEe

[Sarepta Therapeutics @Sarepta]

BREAKING: Today, we announced the U.S. FDA has expanded the product label for our gene therapy and more people may be able to receive treatment.
Intended for U.S. audiences

[GI LGMD de l’AFM-Téléthon @GiLGMD]

Nouveauté : la carte d’urgence « Dystrophie musculaire des ceintures » de @filnemus est désormais disponible. Très important pour les patients atteints de #LGMD ! Un grand MERCI 🙏🏼 aux cliniciens #Filnemus 💚!

https://t.co/jlpLWEb9lz

#limbgirdle

[GENETHON France @GenethonFr]

📣[NEWSLETTER]
@Frederic_Revah reviews the results of #gene therapy trial for #DMD sponsored by @GenethonFr and the advances of the #LGMD trial with @AtamyoTX .
Do not also miss our activities about research collaborations and #scientific publications.
https://t.co/pChKnshWzg

[GI LGMD de l’AFM-Téléthon @GiLGMD]

Et c’est parti pour la première Conférence européenne pour les personnes atteintes de #LGMD2i #LGMDR9 à Amsterdam 💚!

[Atamyo Therapeutics @AtamyoTX]

@AtamyoTX approved to initiate #clinicaltrial of ATA-200 in France and Italy. ATA-200 single-injection #genetherapy aimed to treat LGMD2C/R5 caused by mutations in the g-sarcoglycan gene. Ph1b study to evaluate safety and efficacy in children. https://t.co/KtFWw3znuq
#LGMD

[Atamyo Therapeutics @AtamyoTX]

Atamyo Therapeutics Obtains Regulatory Authorization in Europe to Initiate a Clinical Trial for ATA-200, its Gene Therapy to Treat Limb-Girdle Muscular Dystrophy Type 2C/R5 - https://t.co/nFwj0LsV1L