Grainne Tynan

Sjögren’s Advocate & Senior Occupational Therapist. Views my own.

[PPI Ignite Network Ireland @PPI_Ignite_Net]

Setting up a PPI panel? Well worth a read. @hrbireland @CURAMdevices @Researchirel

[RCSI PPI Ignite @RCSI_PPI_Ignite]

Fantastic blog post by Gráinne Tynan, patient researcher on the @SYNERG_IE team, sharing details on how their PPI panel was established and how they collaborate. Really useful info for anyone setting up a PPI panel!

[Grainne Tynan @Gra_Tynan]

Here’s a new blog post I wrote about our experience of setting up a PPI panel for SYNERGIE-IE research programme.
#Sjogrens #PPI

[SYNERG-IE @SYNERG_IE]

“PPI is central to SYNERG-IE, as our programme aims to co-create solutions with people living with Sjögren’s, ensuring that their lived experiences directly shape research priorities, methodologies, and outcomes.” – Gráinne Tynan

Read about it here: https://t.co/F76QgchDUD

[Sjögren's Ireland @SjogrensIrl]

We’re really looking forward to discussing our Sjögren’s advocacy journey with @JGabhann at this year’s event.

#SjogrensSynergie

[Sjögren's Ireland @SjogrensIrl]

We’re delighted to announce that this year’s Sjögren’s event will be held on 2nd Nov. For the 1st time this will be in online & in person in @RCSI_Irl . We’re really looking forward to meeting as many of you as possible!

Please register your interest: https://t.co/XX7nChCdtX

[SYNERG-IE @SYNERG_IE]

What is Sjögren’s?

Sjögren’s is a common and serious autoimmune disease that can affect the whole body. The most frequent symptoms are dry eyes, dry mouth, severe fatigue and chronic pain.

🔗For more info visit: https://t.co/qddZYaVskX

[Sjögren's Ireland @SjogrensIrl]

Delighted to have our Sjögren’s Ireland support group mentioned in this article by Dr Jenny Moffett in @RCSI_Irl

“The group has evolved into a crucial space for patients to share knowledge and experiences.”

[Sjögren's Ireland @SjogrensIrl]

Fantastic article by Dr Jenny Moffett in today’s @IrishTimes about #Sjögrens, featuring our cofounder Deirdre Collins talking about the uncertainties of living with a complex chronic illness.

https://t.co/VcaQJrEGYy

[Grainne Tynan @Gra_Tynan]

@SiobhanK105 @SYNERG_IE Thanks Siobh!

[Grainne Tynan @Gra_Tynan]

I’m delighted to be part of the new @SYNERG_IE research team in RCSI.

SYNERG-IE is a 5-year multidisciplinary research programme that aims to address longstanding challenges in the recognition, diagnosis and management of #Sjogrens.

#WorldSjogrensDay

[RCSI @RCSI_Irl]

To mark #WorldSjögrensDay, @SYNERG_IE is opening a call inviting patients and the public to join an advisory panel.

SYNERG-IE, based in RCSI, aims to address longstanding challenges in the recognition and management of Sjögren's.

More ➡️ https://t.co/xU9nZhRxId

#RCSIengage

[Sjögren's Ireland @SjogrensIrl]

We are very excited to announce that @SYNERG_IE team at @RCSI_Irl has launched an open call for volunteers to join our new PPI Advisory Panel.

https://t.co/aHG8wfffz6

#worldsjögrensday #worldsjogrensday #sjogrens #sjögren #autoimmune #ppi

[Grainne Tynan @Gra_Tynan]

@EemerEivers @SYNERG_IE Thanks Eemer!

[RTÉ News @rtenews]

The Irish Blood Transfusion Service has issued an appeal for an additional 2,000 blood donations over the next four weeks to help the national blood supply, as some blood groups have fallen to less than three days of stock https://t.co/DkgZbdrWnB

[Sjögren's Ireland @SjogrensIrl]

Sjögren's Ireland recently met up with Dr Joan Ní Gabhann-Dromgoole to celebrate winning best poster from patient point of view at the 16th International Symposium for Sjögren’s Disease in the Netherlands. 📷 Thanks @xNVSP!
#Sjogrens #Sjögrens #Sjogrensawareness #autoimmune

[Sjögren's Ireland @SjogrensIrl]

We sometimes get asked why we don’t call it Sjögren’s Syndrome anymore. This thread sums it up perfectly 👇

Sjögren’s disease research is far behind other rheumatic diseases because it was wrongly dismissed as an unserious & rare syndrome.

[Sjögren's Ireland @SjogrensIrl]

Change of the Dental Treatment Scheme is urgently needed in Ireland @DonnellyStephen

“The scheme is haemorrhaging dentists and requires immediate attention. Alarmingly, the number of dentists has dropped by almost 50% in the past 10 years.”

@IrishDentists

[Sjögren's Ireland @SjogrensIrl]

Snapped! 📷 Sjögren's Ireland team at the RCSI Public Patient Involvement Knowledge Exchange Event. The team are standing in front of a poster created in collab between @JGabhann and Sjögren's Ireland.

#Sjogrens #Sjögrens #Sjogrensawareness #sjogrenswarrier #peersupport #PPI

[Sjögren's Ireland @SjogrensIrl]

Last chance to apply for 2 funded PhD positions in RCSI studying #Sjogrens. The roles will research:

1: Understanding and Improving Sjögren’s Care and Health Professions Education

2: Prescribing and Medicines Optimisation to Enhance Sjögren’s Care

Details below 👇