Grampian PF Support Group

Grampian Pulmonary Fibrosis Support Group

[Taskforce For Lung Health @lungtaskforce]

Toxic air is one of the biggest threats to our health. Air #pollution damages healthy lungs and makes problems worse for people living with a #lung condition. Here we answer some of the most asked questions around air pollution… https://t.co/Qz6b81M3sl

[Kirstin Tait @kirstintait]

NHS Grampian today reminding people to wear face masks when visiting hospitals as coronavirus cases continue to rise @STVNews

[Grampian PF Support Group @GrampianPf]

@TamesideGroup

[Tameside Pulmonary Fibrosis Support Group @TamesideGroup]

Going on holiday? Take one of our Support Group posters, & join our 'around the world with TPFSG' challenge to raise awareness of this dreadful incurable disease. It'll just take a few seconds out of your day. Send your photo to contact details on poster ⛱

[Gavin Leah @h00d3h]

@DoomlordVek @IanDunt The elephant in the room, as soon as we need Iranian oil Liz Truss finds that paying the UK's debt and gaining Nazanin's release isn't as impossible as we had been led to believe. #sogladsheshome

[Ian Dunt @IanDunt]

God she's impressive.

[Louise Doran @FoxyLady0811]

Raising awareness of Pulmonary Fibrosis 💜 Imagine being connected to this cylinder in order stay alive and get enough oxygen #cureipf #pulmonaryfibrosis #health #breathing #lungs #ipf

[Grampian PF Support Group @GrampianPf]

@TamesideGroup Happy birthday Clive

[IPF Awareness @IPFawareness]

Please listen and share. Every day a positive decision is not made, it is a nail in someones coffin. This is crucial, especially when some people may not be eligible for transplant these antifibrotic drugs are the only help. #cureipf #pulmonaryfibrosis

[Gary Lineker @GaryLineker]

Wow.

[Louise Doran @FoxyLady0811]

It is about time Pulmonary Fibrosis was more in the public eye like as other illnessses such as cancer and dementia. So much suffering, it needs a cure or at least some kind of treatment 🤞Thanks @rach_hopkins #pulmonaryfibrosis #cureipf

[Normal Island News @NormalIslandNws]

BREAKING: The prime minister who gets free gourmet takeaways, free holidays to Mustique and free flat refurbishments is against the idea of ordinary people getting "free stuff" because that would be socialism x

[Grampian PF Support Group @GrampianPf]

Commiserations to family, friends and all of those who knew and loved her

[Grampian PF Support Group @GrampianPf]

So sad to hear of the passing of Janice Long. So very sad. Her support for sufferers of #IPF is well known and she will be missed by many, many of us @ActionPFcharity @CHSScotland @janicelongdj

Thank you for everything you very quietly did for us Janice - we will miss you RIP

[Grampian PF Support Group @GrampianPf]

@BoltonFibrosis Ridiculous denial of a possible early death denying and life enhancing drug by NICE while it could still have maximum effect!

[Action for Pulmonary Fibrosis @ActionPFcharity]

Good article by @stephenpollard but it doesn’t describe what it’s like to have your remaining years on hold for the thousands of people who have #IPF #pulmonaryfibrosis We want priority access along with other vulnerable groups https://t.co/9Jibnw1f46

[Jim Simpson @VintageJim]

@ActionPFcharity @sajidjavid @NHSGrampian @ScotGovFM - Scotland needs to take note and take some urgent action to protect those who are at greatest risk - those of us with #PF and #IPF are literally dying to be booster jabbed! Can we please get our booster vaccine shots sooner rather than later @lungscotland

[Action for Pulmonary Fibrosis @ActionPFcharity]

A slow roll out of the 3rd vaccine or booster jab & the government aren’t yet implementing #CovidPlanB is leaving patients with #PF #IPF isolated and forgotten again! As many face the last few years of their lives in #lockdown this isn’t good enough. Come on @sajidjavid!

[Steve Jones @ActionPFsteve]

Yes out @ActionPFcharity patient survey showed that for patients and their families the most important member of the ILD team is the specialist nurse. We need more CNSs and training on ILDs for respiratory nurses in DGHs

[Bolton Pulmonary Fibrosis Support Group @BoltonFibrosis]

Thank you for bring these important facts to our attention. I had forgotten about carers registering the fact with their GP. I will certainly pass the information onto our members @BoltonFibrosis in my next email update