Heather Block

A real patient advocate, going broke and unfunded. Just call me Dona Quixote.

[Heather Block @H3ath3rBlock]

Cancer Patient to Congress: I Won’t Stop Till You Lower Drug Prices - YouTube https://t.co/miuUU2FG2W

[Heather Block @H3ath3rBlock]

@DavidP4AD Thanks David.

[Heather Block @H3ath3rBlock]

@DavidP4AD A bad day in the life of this cancer patient. Lost the use of my legs. Cancer moved to lepto meningeal disease & joined hospice.

[Heather Block @H3ath3rBlock]

@Atul_Gawande Will you pls explain this to my hospice + program? My Medicare demo project is barely providing any services.

[Heather Block @H3ath3rBlock]

@tomleblancMD .After 6+ years with mets, I turned the corner from living with cancer to beginning the dying with cancer phase. Feeling isolated & frightened. I’m not sure my medical team will be a part of this phase or remain safely ensconced in treatment world.

[Heather Block @H3ath3rBlock]

@LizSzabo My med onc tore up orders for colonoscopy & mammo since my stage 4 diagnosis. Why keep looking for problems?

[Heather Block @H3ath3rBlock]

@ChrisCoons Not just seniors! This Delaware resident has cancer.

[Heather Block @H3ath3rBlock]

@AdyBarkan @ASlavitt @SenatorCollins Aren’t they taxing my cancer by getting rid of medical deduction? As Americans, whatever you do, don’t get terminally ill. The lack of compassion is astounding.

[Heather Block @H3ath3rBlock]

@AdyBarkan @ASlavitt @SenatorCollins I’m with you as my cancer progresses. I don’t want to worry about keeping my Medicare or benefits being cut when I’m trying to live for as long as I can.

[Heather Block @H3ath3rBlock]

Congrats, Mabruk, & Mazel Tov to my oncologist for being named Chair, ECOG! Hoping this means you’ll finally cure me (joking). Proud of you. @awolff https://t.co/AnbdxUuD7q

[Antonio Wolff, MD (#HealthPolicyIsEconomicPolicy) @awolff]

Honored, flattered, humbled, excited, and more. A privilege to follow the brilliant footsteps of M Abeloff, N Robert, W Wood, N Davidson, G Sledge, J Sparano, and K Miller. Even better, Abeloff & Davidson helped raise me at @HopkinsKimmel! https://t.co/VNJMU69Oqr

[Heather Block @H3ath3rBlock]

@RSKemp01 All of those DCIS findings in breast cancer.

[Heather Block @H3ath3rBlock]

@jamie_love @RogueRad @VinayPrasad82 @oncology_bg Understand. I’m assuming my dr was so dismissive as my disease has progressed so far that we’ll take any PFS. I’m on 3rd line chemo in a year if one doesn’t count Ibrance.

[Heather Block @H3ath3rBlock]

@RogueRad @VinayPrasad82 @oncology_bg And why does my oncologist ignore it when I raise issue of olaparib showing Pfs but not OS? Because I will die of disease keeps progressing? I know @jamie_love was asking the same but I’m really not clear.

[TranspariMED @TranspariMED]

Opacity alert: many trial results for the #breastcancer drugs #palbociclib & #ribociclib approved today by NICE are missing #AllTrials

https://t.co/l3XmPB2aDF

[Heather Block @H3ath3rBlock]

@awolff Because NICE negotiates & is willing to say no. The US needs a NICE.

[Heather Block @H3ath3rBlock]

@GregCPhillips @NancyLeaMond @NBCNews #nohealthtax

[Heather Block @H3ath3rBlock]

@oncology_bg Agree. I’m prob alive after 6 years metastatic cancer due to exercise & chemo.

[Heather Block @H3ath3rBlock]

@charlesornstein @ProPublica I’ll miss your reporting on Health. But congrats on the new job.

[Women's March @womensmarch]

#RoyMooreChildMolester is trending. Let’s make sure it’s trending all day every day until this sexual predator is out of the Alabama Senate race.

Women, this is our time, and we say: no more sexual predators in the White House, in our government, in Hollywood, anywhere.

[Heather Block @H3ath3rBlock]

@Carolynyjohnson @DusetzinaS @tricia_neuman Not just seniors. I didn’t qualify for clinical trial. Off label so insurance won’t pay. Should I pay $30k per month? Only PFS studies.

[Pinboard @Pinboard]

Know a good progressive House candidate who has a shot at winning a rural district, but is having trouble raising money? Email me the details ([email protected]) and I'll pay them a visit. Let me be your political truffle pig!