HAE International (HAEi)

HAEi is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. We are dedicated to improving the lives of people with HAE.

[HAE International (HAEi) @HAEDAY]

Last chance!
Being #active4HAE in purple ended on 31 May, but you can submit any activities you completed during the challenge but haven't added yet until the end of today (7 June).
You can enter your activities in HAE Companion or on https://t.co/u0BEWGIGYd
#active4hae #haeday

[HAE International (HAEi) @HAEDAY]

The second 2026 edition of Global Perspectives is now available online, allowing you to translate all articles into your preferred language. Read the latest news and hear from our global community: https://t.co/ee3wwwWkzP
Please feel free to share with others.

[HAE International (HAEi) @HAEDAY]

2026 HAEi Regional Conference Americas abstract call!
We invite Scientific Track participants to submit abstracts on all aspects of HAE diagnosis & management. Case reports also welcome.
Details: https://t.co/Tsv0hVTrEl
Submission deadline: Friday 26 June, 23:00(11:00 pm) CEST

[HAE International (HAEi) @HAEDAY]

The last day of May is the last day of the hae day:-) activity challenge
You can enter your activities in HAE Companion or via https://t.co/u0BEWGIGYd
Download HAE Companion - The App Store https://t.co/ZxyCi11GT8 or Google Play https://t.co/Pxpzgi4tCt
#active4hae #haeday

[HAE International (HAEi) @HAEDAY]

The activity challenge finishes on Sunday - so, keep going! Physical and wellbeing activities count https://t.co/u0BEWGIGYd
Add activities via the feature in the HAE Companion app:
The App Store https://t.co/ZxyCi11GT8
Google Play https://t.co/Pxpzgi4tCt
#haeday

[HAE International (HAEi) @HAEDAY]

In this year's first issue of Global Perspectives, Jess Myers from the US HAEA shares key 2025 highlights for the organization, looking towards a positive future for US HAEA members in 2026: https://t.co/n08m3q4wBC

Find the full magazine: https://t.co/mkMXC4COWi

[HAE International (HAEi) @HAEDAY]

In Global Perspectives #1 2026, Marijk Beekman-Kortekaas, HAE Netherlands, proudly looks back on what the organization has achieved: 2025 has been filled with milestones that have strengthened the community and given new energy to move forward https://t.co/rIM8HpRAbD

[HAE International (HAEi) @HAEDAY]

In the latest issue of Global Perspectives, Ernst Greber from HAE Switzerland tells us about events and activities of the Swiss organization during the last months of 2025. https://t.co/mSwllx6ci3

Read the full edition here https://t.co/mkMXC4COWi

[HAE International (HAEi) @HAEDAY]

Monday 25 May, is your last chance to use your travel grant for the 2026 HAEi Regional Conference Americas!
If you have a travel grant and haven’t used it, register now, and use your travel grant before it’s too late https://t.co/jXurnyiuvL

[HAE International (HAEi) @HAEDAY]

In the latest issue of Global Perspectives, Lim Yong Hao, HAE Singapore tells us about developments for HAE patients and caregivers in Singapore in 2025, reflecting steady progress in treatment access, research engagement, and community participation https://t.co/l0XWaosEDj

[HAE International (HAEi) @HAEDAY]

A year of change and new goals for our association – that is how Alicia Campos from HAE Spain starts the news from the Spanish organization in the first 2026 edition of Global Perspectives https://t.co/0hrCZLfi3r

Full magazine here https://t.co/mkMXC4COWi

[HAE International (HAEi) @HAEDAY]

In the latest issue of Global Perspectives, HAE Portugal tells us about its annual meeting, held for the first time in northern Portugal as part of its aim to decentralize the organization https://t.co/augNQSLbAA

Read the full magazine 👉 https://t.co/mkMXC4COWi

[HAE International (HAEi) @HAEDAY]

1 more week to be #active4HAE in purple as our activity challenge runs to the end of May! keep going – and add your physical and wellbeing activities 📖 🏋️‍♂️ 🧘‍♀️ 🏃🌺🚴🎨🎸🙌
Head over to the website to join in https://t.co/u0BEWGIGYd
#haeday

[HAE International (HAEi) @HAEDAY]

Monday 25 May is your last chance to use your travel grant for the 2026 HAEi Regional Conference Americas. If you have a travel grant and haven’t used it, head to our conference website and register now: https://t.co/jXurnyiuvL

[HAE International (HAEi) @HAEDAY]

In the latest Global Perspectives, HAE Panama tells us that 2025 has been a year of very positive results with official treatment guidelines for patients with HAE finally approved and distributed to all hospitals and health centers in the country: https://t.co/mfZeOdXEKj

[HAE International (HAEi) @HAEDAY]

In Global Perspectives #1 2026, Michal Rutkowski, HAE Poland tells us about their activities during the last months of 2025 under the headline: A Year of Intensive Work Concluded with Success https://t.co/Qe5CFAuJ7N
Read the full magazine here: https://t.co/mkMXC4COWi

[HAE International (HAEi) @HAEDAY]

2026 HAEi Regional Conference Americas, Ottawa, Ontario, Canada, 23-25 October: travel grants must be used for registration on 25 May 2026 at the latest! If you need a visa to enter Canada, we advise you apply as soon as possible- more info in the FAQs: https://t.co/jXurnyiuvL

[HAE International (HAEi) @HAEDAY]

Happy hae day:-) 16 May! Our global day unites the HAE community in raising awareness of HAE. The hae day:-) theme is #active4HAE. >158,000,000 steps have been generated from 1000s of activities added to the challenge by people in 45 countries worldwide: https://t.co/u0BEWGIGYd

[HAE International (HAEi) @HAEDAY]

Tomorrow 16 May is hae day:-) HAEi Member Organizations worldwide are #active4HAE organizing many HAE awareness events, including art exhibitions, patient meets, purple light-up buildings/landmarks, family events, and more. Find a calendar of events here: https://t.co/RvigPyDO8d

[HAE International (HAEi) @HAEDAY]

In Global Perspectives #1 2026, HAE Lebanon tells us that Nour El Chami, HAE Lebanon Patient Lead, attended and presented at the 16th Annual Meeting of the Lebanese Society of Allergy and Immunology, sharing her family’s journey with HAE https://t.co/L07FkjIhpc