HAWALK SC

Walking to raise #hydrocephalus awareness and critical funds for research and education in South Carolina. Join us!

[Hydrocephalus Assoc. @HydroAssoc]

Keeping track of developmental milestones can help parents support their child with #hydrocephalus. Focus on progress, not comparisons—every child develops at their own pace. Learn what to monitor, when to seek help, & how to support your child’s growth: https://t.co/fMGU6zYSQx

[Hydrocephalus Assoc. @HydroAssoc]

Our Pen Pal Program helps kids 7-12 build lasting friendships with others who understand #hydrocephalus. Through letter exchanges, they connect over shared experiences & hobbies. The best part? Meaningful friendships that last a lifetime! 💌 https://t.co/M0vIEjcGRs"

[Hydrocephalus Assoc. @HydroAssoc]

Funding for #hydrocephalus research under the CDMRP is at risk! Congress is working on the FY25 budget & it could cut this critical funding. Recent research led to the 1st clinical trial for a drug to prevent hydrocephalus Call your Representative NOW! https://t.co/JEe8ilYFIc

[Hydrocephalus Assoc. @HydroAssoc]

Medicaid is a lifeline for many in the hydrocephalus community—but proposed federal funding cuts could put critical care at risk. Learn what #Medicaid covers, why it matters, and how cuts to federal Medicaid funding would hurt #hydrocephalus patients https://t.co/VioD1WoKYH

[Hydrocephalus Assoc. @HydroAssoc]

This Rare Disease Week, we’re advocating for the #hydrocephalus community—because every voice matters 💙 If you're ready to join us in the fight for strong policies, research, and awareness, take action today: https://t.co/JucJKodmEN
#RareDiseaseWeek #RareDC2025

[Hydrocephalus Assoc. @HydroAssoc]

From spending the first six weeks of her life in the NICU to having her first shunt placed one day shy of being one month old, Savannah's strength & resilience have inspired her family in ways they never imagined. Read Savannah’s #hydrocephalus story here👉https://t.co/tjcevuvyKD

[Hydrocephalus Assoc. @HydroAssoc]

Happy New Year! 🥳This season, we’re grateful for our incredible community whose dedication brings hope and progress to those impacted by #hydrocephalus. Together, we’re making a difference. Wishing you joy, peace, and good health in the coming year.💙 #HydrocephalusAssociation

[HAWALK SC @HAWALK_Columbia]

@OllyOtterSC Happy Otterween 🦦🎃

[Hydrocephalus Assoc. @HydroAssoc]

There are four community meetups for adults—whether you're in the Western, Southeast, or Mid-Atlantic regions, come meet others from 18 states and Washington, D.C. Plus, there’s a special meetup for parents of young adults. Learn more and register below!
https://t.co/pdrdVk507O

[HAWALK Charlotte @HAWALK_CLT]

MARK Your Calendars! #Year12 #CharlotteWALKParticipants

12th Annual Charlotte, North Carolina Hydrocephalus Association WALK

Location: Mint Hill Veterans Memorial Park, 8850 Fairview Road, Mint Hill, NC 28227

Rescheduled: Saturday November 9th!!! 🥰

https://t.co/NZY0QDemud

[Hydrocephalus Assoc. @HydroAssoc]

A shunt system is the most common treatment for #hydrocephalus, relieving pressure on the brain by diverting excess fluid to another part of the body—learn about the different types of shunts and how they work. https://t.co/AwhtNEuG0Z
#HAM2024

[Hydrocephalus Assoc. @HydroAssoc]

Calling all gamers! We need your help to connect HA with the gaming community to help build awareness, form relationships, and raise funds for our mission. Take 1 minute to complete the survey below and join our "Gaming Street Team". https://t.co/NyHiJaXgB1

[HAWALK SC @HAWALK_Columbia]

We WALK 1 Week from today. We are so excited to see all our #hydrofamilies and meet some new ones as we gather for our Hydro Family Reunion. You guys are truly Amazing. We have attached Sponsors and our Vendors on it.
#HAWalk_Columbia #WorkingTogetherToMakeADifference

[Hydrocephalus Assoc. @HydroAssoc]

World Hydrocephalus Day is almost here! 🌍 Join us on Sept 20 to raise global awareness for #hydrocephalus and the need for better treatments. Get involved: https://t.co/FzWCYStsd0 #HAM2024 #WorldHydrocephalusDay

[Hydrocephalus Assoc. @HydroAssoc]

Join the Hydrocephalus Action Network (HAN) today and use your voice to #advocate for those impacted by #hydrocephalus — because your voice matters! https://t.co/h5QvsFmIZZ
#HydrocephalusAdvocacy #HAM2024

[HAWALK SC @HAWALK_Columbia]

Hydrocephalus Awareness Month is the perfect time to educate everyone about this condition. Watch this video that simplifies what #hydrocephalus is, showcases treatment options, and highlights key symptoms to watch for. Be sure to share it! 💙 #HAM2024
https://t.co/Zec3gnBC22

[HAWALK SC @HAWALK_Columbia]

We're excited to Welcome our Honorary Chair this year, Dr. Monica Chau who is the National Director or Research for Hydrocephalus Association We're looking forward to seeing her on Saturday, September 28th.
#HAWalk_Columbia #WorkingTogetherToMakeADifference

[HAWALK SC @HAWALK_Columbia]

Hydrocephalus is a neurological condition that is an abnormal accumulation of CSF in the brain & doesn’t communicate properly in the ventricles. The Only Treatment is #BrainSurgery. #Hydrocephalus 1 in 770 babies will develop Hydrocephalus. #NOTRare #HAM2024 #AwarenessMATTERS

[HAWALK SC @HAWALK_Columbia]

Super Excited to add Egg Roll Express on Spears Creek Church Road as a GOLD sponsor for our WALK. Make sure you to stop by and visit them. #HAWalk_Columbia #WorkingTogetherToMakeADifference

[HAWALK SC @HAWALK_Columbia]

We're down to 7 days to get our Sponsors on the back of our 2024 WALK shirts. If you would like to have your logo on the back of our shirt please contact us today. [email protected]
#HAWalk_Columbia #WorkingTogetherToMakeADifference