HSAWARENESS.ORG

Our #HSAWARENESS programs and projects seek address the unmet needs and to improve the quality of life for #HidradenitisSuppurativa (HS) patients globally.

[HSAWARENESS.ORG @HSisNOTu]

(PODCAST) @RonBercume Hopes to Bring #Awareness to #HidradenitisSuppurativa https://t.co/4SkTqJz1u8

[HSAWARENESS.ORG @HSisNOTu]

Tomorrow I am being interviewed for an #HidradenitisSuppurativa feature for the https://t.co/hNi6RAhdJo blog. I would be happy to collect quotes and take a few minutes during the interview to read them to the audience. More details here: https://t.co/LmR0UtzuLo

[Hidradenitis Suppurativa (HS) Ireland @hsireland1]

Surgical Techniques for HS 2: Mini-Unroofing and Deroofing https://t.co/LbMZ2ffNlT via @hsireland1#hidradenitissuppurativa #hs

[HSAWARENESS.ORG @HSisNOTu]

"Experts from the United States and Canadian Hidradenitis Suppurativa Foundations have issued guidelines to assist clinicians in the diagnosis, evaluation and management of the condition, with an emphasis on an individualized approach to standard of care… https://t.co/zPmTjBlNiM

[HSAWARENESS.ORG @HSisNOTu]

“It was a nightmare,” says Johnson. “There’d be sometimes where I’d just…cup my hand on my cheek and rest my hand and it [the cyst] would pop in my hand. I remember some people being like ‘Hey, there’s something on your shirt, it looks like you’re bl… https://t.co/jDs8dddWrw

[HSAWARENESS.ORG @HSisNOTu]

"We evaluated Suicide risk among patients with HS in the United States, using a population-based data. The study included patients aged 18 years or older with an active status from 2011 to 2016 in electronic health records of 27 participating health care… https://t.co/y9IEJwEA41

[HSAWARENESS.ORG @HSisNOTu]

"We are your neighbors, your class mates, your coworkers, your family or even your best friend. We are everywhere." #HSAWARENESS https://t.co/B6MHHYVxaH https://t.co/B6MHHYVxaH

[HSAWARENESS.ORG @HSisNOTu]

"The 19th-century revolutionary thinker had a condition called hidradenitis suppurativa, in which the sweat glands in his armpits and groin become blocked and inflamed and his skin covered in boils and carbuncles." #HSAWARENESS https://t.co/Hk8ygRCV9e https://t.co/Hk8ygRCV9e

[HSAWARENESS.ORG @HSisNOTu]

"There is a larger conversation around accountability here for physicians, to not only help curb malpractice and patient abuse, but also to build a large database where we can identify, rate, and review our care. " #HSAWARENESS https://t.co/EN0POvznGk https://t.co/EN0POvznGk

[HSAWARENESS.ORG @HSisNOTu]

"“A significantly higher prevalence of thyroid disorders was found among patients with hidradenitis suppurativa, and additional study to increase the strength of the association was encouraged in a research letter published in Journal of the American Aca… https://t.co/EIFkm1zs65

[HSAWARENESS.ORG @HSisNOTu]

Mossy shares his personal experience with HS, including his personal treatment throughout the years. He discusses how stigma has affected his own journey, as well as his comorbidities, and troubles throughout his treatment. #HSAWARENESS … https://t.co/9zmTM2LeEE

[HS Action Together @HsAction]

#HSMillionsHiding will be at the @SiP2019. It was a international collaboration by people with #hidradenitissuppurativa that co-designed & co-created it in their own voices using the power of storytelling, art & science blended together 💜

[HSAWARENESS.ORG @HSisNOTu]

"We present a 73- year- old male with type 2 diabetes mellitus, who was hospitalized for painful nodular changes, on erythematous basis, located on the skin of the two lower limbs, the two axils and the abdomen" #HSAWARENESS https://t.co/CStAzCox9D https://t.co/CStAzCox9D

[HSAWARENESS.ORG @HSisNOTu]

"The novel scale is a reliable and valid HS outcome instrument and may capture a wide range of patients by assessing body surface area. Future research is necessary to demonstrate its responsiveness." #HSAWARENESS https://t.co/WSr9b0YfEB https://t.co/WSr9b0YfEB

[HSAWARENESS.ORG @HSisNOTu]

You can help raise Public Awareness for #HidradenitisSuppurativa (HS) patients! #HSAWARENESS https://t.co/CXZbNWjv1w https://t.co/CXZbNWjv1w

[HSAWARENESS.ORG @HSisNOTu]

"Our results show a high prevalence of NAFLD in #HidradenitisSuppurativa patients independent of classic metabolic risk factors. Therefore, we suggest HS patients to be evaluated for NAFLD and managed accordingly." #HSAWARENESS https://t.co/6lI85wqkLp https://t.co/6lI85wqkLp

[HSAWARENESS.ORG @HSisNOTu]

“It is easy sometimes with work of this nature to get stuck inside “the bubble” – to build and create for yourself when at all times needing to remain true to serving the needs of others by intention. ~@RonBercume” #HSGLOBAL #HSAWARENESS … https://t.co/JHZNT9xtdD

[HSAWARENESS.ORG @HSisNOTu]

"A therapeutic algorithm informed by the evidence available at the time of the review is provided." #HSAWARENESS https://t.co/EJH4xG7Rg9 https://t.co/EJH4xG7Rg9

[HSAWARENESS.ORG @HSisNOTu]

"This historical disregard from medical science has resulted in the HS patients like myself to live the majority, if not our entire lives without access to education, proper healthcare, understanding, or empathy from the people in their lives." #HSAWAREN… https://t.co/fgOFa6xFIs

[HSAWARENESS.ORG @HSisNOTu]

"Since 16, I’ve been suffering in silence. I was misdiagnosed many times before they found a name for what has since then ruined my body." #HSAWARENESS https://t.co/Q9zcka5VYI https://t.co/Q9zcka5VYI