@LeicsCountyHall is this really how you treat older disabled people needing social care?
Unaffordable charges, repeated assessments & threats to remove DPs if they don’t “play ball”
They’re exhausted & distressed, yet the badgering continues!
This isn’t care. It’s coercion!
“We are rare, we are many, we are strong, we are proud" We are NAA10 Ogden Syndrome parents! help us spread the word and teach the world https://t.co/79lS78fGzZ
Thanks @eurordis for raising awareness of rare. New video for all patients with a rare disease #RareDiseaseDay2021
We are excited to be taking part in this years #Rarefest20 Check out our poster in the gallery! Raising awareness for NAA10 Ogden syndrome! Thanks @camraredisease for having us! Enjoying the event so far
Azaria has an ultra-rare genetic condition called NAA10 syndrome. It's SO incredibly rare only a handful of people in the world have it and as a result, very little is known, so wonderful Carolyn's set up a support group. For more info go to @naa10gene and https://t.co/i1v4Cn8NbU