Happy Friday! 😊
Applications to join our team of volunteers have reopened! 💻 See the current positions here: https://t.co/eb2yYtbcDJ (Deadline April 26th).
Excited to make sure the future of EP continues to reflect what is important to our followers! Any questions, DM us☺️
I’m considering writing a book on coping with epilepsy (and everything that living with it involves!).
Planning for it to cover a range of topics, with input + advice from lots of people with lived experiences (our followers!).
Thoughts on this idea would be appreciated😊💭📖
Thank you for the package @BrainTumourOrg@HeadSmartUK 🧠📕
A well timed delivery on #InternationalWomensDay where I am remembering one of my brightest lights whose love and strength continues to inspire me daily.
Looking forward to advocating in her memory this year ❤️
@mindsofepilepsy I went private because of this issue in my area (north England) with the NHS. Finding someone who understands the challenges of epilepsy is important and I think has helped with my therapy!
We are halfway to our recruitment target already (within a week)!!! 🤩🤩
Thanks to all who have completed the survey so far. We are still looking for young adults to take part, with the chance of winning a £25 voucher or £25 to donate to an epilepsy charity of your choice! 🤗🧠
We are looking for young adults (aged 18-25) who are living in the UK + have an epilepsy diagnosis to complete this online survey which aims to explore psychosocial predictors of mental health outcomes. Link below.
Please share☺️🗒
https://t.co/4PagpUnFed
Epilepsy patients and caregivers favor person-first terminology, such as "person with epilepsy," according researchers at University of Osijek. The study reveals 53.9% of those survey disapproved of the label "epileptic." Learn more: https://t.co/H0gQQmO3j9
Just submitted my application to get feedback from people w/ epilepsy on an epilepsy research project I have been developing.
Involving patients from the design stage is crucial to ensure research is both important and relevant to the very people it aims to positively impact☺️💡
Absolutely delighted to launch our ‘Get Involved’ page! After many requests, we are now taking applications for volunteers 🎉
Very excited to get more people involved and make sure the future of EP reflects what is important to our followers 😄⭐️💻
https://t.co/QritRfx9Nd
Crying happy tears - I just received the ‘Volunteer of the Year Award’ from @GreatOrmondSt for making an exceptional difference ⭐️ Just shows people with epilepsy really can achieve their dreams ☺️🎊