Hunter returned to heaven at 9:45 am Thurs. Our hearts are broken into a million pieces, but Hunter has won. He's free of pain and running in heaven. His message of compassion, love& living life fully will forever be his legacy. #defeatdipg#morethan4@TRFdotORG#cancersucks
You're the love of our lives...and oh how we miss you big man. We promise we will never stop living as you would want us to live, or fighting for a better tomorrow. #livelikehunter#morethan4#cancersucks
We're searching for places you loved, that's good for our soul&where we feel you closer. You're everywhere around us&within us. We talk to you throughout the day&know that you're with us. Nighttime is the hardest; we crawl into bed every night with tears.
Yesterday we thought we were losing Hunter as I held his limp body in my arms; we prayed&cried. His body's like a new baby-weak&fragile, & it'll be a long road to regain all he lost overnight. We fight for the #mostbestdays on earth for our little man. He deserves so much more.
We're home w/a feeding tube aftr 4days @seattlechildrens. Pray Hunter continues to improve! We don’t know the next steps for Hunters treatment, but we hang on to hope and continue to believe in miracles💖#slaycancerwithdragons#defeatDIPG#morethan4#goGold#cancerkid
Hopefully we'll bring him home for palliative care. We will be living day by day with Hunter surrounding him with love. Please pour your love, light and prayers out to Hunter, we need them like never before. 💖🙏🏻Pic taken 7days ago. Life changes in an instant #defeatDIPG
Hunter is stable @seattlechildren. His tumor grew. He had an allergic reaction during treatment&has been sleeping 20 hours a day. He can’t lift his head&is having trouble swallowing, so today a feeding tube was forced down is fragile throat 😢
Hunter has a disease he never had a chance at winning. With a less than 1% survival rate, kids don’t fight DIPG&ever win; 99% never get the miracle their parents pray for every day. We hoped science would cure this horrendous disease, and thus save our precious Hunter.
@UWDawgPack@UW_MBB Thank you for the love and support you've given Hunter Jones! We're hoping he'll win this and #defeatdipg with the life-saving treatment he's getting. #morethan4