Health Stories Project

The world is a better place when every story is shared. Join to participate in interviews, awareness campaigns, research & more #HealthStoriesProject

[NAMI @NAMICommunicate]

Asking for help is a sign of strength!
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Image by @sravya_attaluri

[Health Stories Project @HealthStories]

Good day to you May 2nd. Today on the @GreaterGoodSC happiness calendar - give warm greetings. Let's fill some buckets today!

[Greater Good @GreaterGoodSC]

This month, we hope our Happiness Calendar helps you be calm, clear, and kind with others.

https://t.co/xaHmwiQ2uK

[Health Stories Project @HealthStories]

In 1996, Beth was diagnosed with #polycystickidneydisease (#PKD), which causes cysts to grow inside the kidneys. Beth’s evolving response to living with PKD has shaped the course of her life.

This #NationalKidneyMonth, we share some of her thoughts: https://t.co/SUNxgSBWPg

[Health Stories Project @HealthStories]

Kimberley suffered a work-related injury that changed the entire trajectory of her life.

Here she shares a situation she encountered with someone she used to consider a friend and how the hurtful words that person said affected her: https://t.co/IDHnywsvm0

[Health Stories Project @HealthStories]

Of those who have completed our inflammatory bowel disease survey, more than 70% have recorded that the symptoms they experience have a major or severe impact on their lives.

Are you living with Crohn's disease or ulcerative colitis? Take our survey now: https://t.co/o0gEoCalSz

[Health Stories Project @HealthStories]

Lindsey kept her #narcolepsy diagnosis to herself, family and close friends, until September 2019 when she decided to finally post about her health experiences on her social media.

Here she shares how opening up about her diagnosis has helped her: https://t.co/Ml4eEvc8WL

[Health Stories Project @HealthStories]

Gina's life completely changed when she was diagnosed with #rheumatoidarthritis at 34 years old. She went from being an active owner and operator of a hair salon at 34 years old to completely disabled by 46.

Here she shares her story: https://t.co/3cWW735fNh

[Health Stories Project @HealthStories]

As some are diagnosed with chronic lymphocytic leukemia (CLL), they are told they may be living a life with cancer in it for many years to come.

Did your outlook change when you were diagnosed with CLL? Take this survey to share: https://t.co/oqekSdsNA7

[Health Stories Project @HealthStories]

Improving #womenshealth makes societies stronger. Advice to #doctors:

➡️ Listen: we know our bodies best

➡️ Believe: don't ignore/dismiss our health concerns

➡️ Don't judge: it isn't helpful, we don't come to feel bad about ourselves, we come to receive care

#iwd2022

[Health Stories Project @HealthStories]

Some people with skin conditions, including prurigo nodularis (PN) have mentioned feeling judged by others as a result of their appearance.

Have you ever experienced judgement for a skin condition you're living with? Take this survey to share: https://t.co/Iu6BDA4qwr

[Health Stories Project @HealthStories]

One winter night in 2000, Kara was involved in a terrible car accident and airlifted to a hospital. Faced with a long and difficult recovery but determined to live the life she’d planned, she worked through the pain.

Read Kara's full story here: https://t.co/ExcHFK5wqe

[Health Stories Project @HealthStories]

Danielle has been living with #bipolardisorder since 1996. This condition, and others she lives with, affect her life daily.

Here shares hurtful words her father told her and how comments like this affect her and others living with a similar condition: https://t.co/WVDqTNnyJb

[Health Stories Project @HealthStories]

A breast cancer diagnosis may change the entire trajectory of someone's life. Our community is currently sharing what part of their journey has had the biggest impact and change in their lives.

Take our survey to share your experiences with #breastcancer: https://t.co/T5eQEqZDgu

[Health Stories Project @HealthStories]

Living with a rare #kidneydisease can be difficult. This #NationalKidneyMonth, some of our members are sharing the types of communities they've found to help them navigate their health journey.

Were you able to find a community? Take our survey to share: https://t.co/E23aIJpmwy

[Health Stories Project @HealthStories]

Although chronic lymphocytic leukemia (#CLL) is the most common leukemia in adults, it is still a #raredisease.

Have you been diagnosed with CLL? Your story has the power to change lives. Share your experiences here: https://t.co/i6IIG4eo9s #chroniclymphocyticleukemia #leukemia

[Health Stories Project @HealthStories]

Representation matters, especially in healthcare.

We seek to share all sides of the human experience and to enable our members to define themselves.

Consider participating in one of our opportunities: https://t.co/5PKi42s7Lf

#BlackHealthMatters #BlackHealth #BlackHistoryMonth

[Health Stories Project @HealthStories]

Living with a rare #kidneydisease can be hard. Some of our members have shared that having a positive attitude, family and friends are what keep them going.

What keeps you going? Take this survey to share your story: https://t.co/dCAM6WB5PY

#igan #iganwarrior #ckd #dialysis

[Health Stories Project @HealthStories]

#HidradenitisSuppurativa (HS) is a chronic, burdensome inflammatory skin disease.

Since receiving your diagnosis, what sort of lifestyle changes have you made to help mitigate and lessen flareups in your daily life? Take this survey to share: https://t.co/01hIf6TpfK

[Health Stories Project @HealthStories]

Rare diseases may be hard to diagnose, including rare kidney diseases. What or who helped you through the difficulty of being diagnosed? We want to know.

Taking our latest #kidneydisease survey is the perfect way to share your story. Get started: https://t.co/dCAM6WB5PY
#igan

[Health Stories Project @HealthStories]

Are you living with chronic lymphocytic leukemia (CLL)? What you experience matters. Share your story through our unique opportunity: https://t.co/i6IIG4eo9s

Don't miss this opportunity to raise awareness. #chroniclymphocyticleukemia #leukemia #CLL