Julie 👹

Aigrie chronique. Hashimoto + Covid Long + Dysautonomie/POTS, qui dit mieux?

[Morefun Studios @MorefunStudios]

🎉Roco Kingdom Test Access GIVEAWAY!

The Closed Beta Test is almost here and we've got 50 test access up for grabs!

🎁Prize: 50× Roco Kingdom Test Access

How to enter:
1. Follow @MorefunStudios & @RocoKingdomEN
2. Repost

Event ends at 23:59 (UTC+0) on Oct 16. Winners will be announced on X and contacted via DM within 2 days after the event ends.

Sign-ups are still open: https://t.co/b66UCMZ4ME
Wishlist on Steam now: https://t.co/KI9VobaeUc

#RocoKingdom #Roco #giveaway #MorefunStudios

[Julie 👹 @HedaMcGrath7]

@ghostsfr08 @CoDQG_ Oui en vrai ils ont fait des efforts pour une fois. Déjà ils ont réduit la taille de certains opus précédents et là ça m'a l'air pas trop mal optimisé pour un jeu qui a plusieurs modes différents 🤞

[Julie 👹 @HedaMcGrath7]

@ghostsfr08 @CoDQG_ 115go d'après steam

[Julie 👹 @HedaMcGrath7]

@CallofDutyFR Le gameplay plus réaliste et les maps 🔥

[Julie 👹 @HedaMcGrath7]

@CallofDuty @CallofDuty
Edenz#9003769
MW4 Beta Stats

[Han 🖤 @spoonfulofhan]

I wish able bodied people understood that being forced to rest and lay around because of sickness isn't the same as them getting to rest. It's not enjoyable.

[ThePOTSPostman @ThePOTSPostman]

No one really talks about the anger that comes with chronic illness.

Angry your body betrayed you.
Angry at how unpredictable every day is.
Angry at friends who have abandoned you.
Angry at feeling forgotten.
Angry at missing moments you’ll never get back.
Angry at doctors.

Angry because it just keeps getting worse.

[Dianna Cowern @thephysicsgirl]

I made a new video about the status of my health. I’m finally talking and walking!

And thank you to my friend @992tobias for letting me share his ME/CFS story, too.

https://t.co/FaTP3MJpG3

[Dr. Sean Mullen @drseanmullen]

🧠💓 Long Covid Still Hurting the Body Two Years Later
A new study followed people with Long Covid two years after their infection. These weren't people who “just needed to get outside” or “exercise more.” These were former athletes, workers, parents—trying to recover from a virus that won't let go.

What did researchers find?

Let’s just say it wasn’t subtle.

⬇️

Their bodies were still stuck in fight-or-flight mode.
They measured nerve activity directly (with a microneedle in the leg), and found 77% more sympathetic bursts than controls. That's not “anxiety”—that's chronic nervous system overdrive.

Their blood vessels didn’t dilate like they should.
Flow-mediated dilation—something your arteries do when you need more oxygen—was 26% lower. That’s a red flag for future cardiovascular events.

Their hearts weren’t functioning normally.
On the surface, ejection fraction might look fine. But strain imaging (a more sensitive test) showed subclinical damage—the kind of dysfunction seen in heart failure, but often missed in routine care.

Their aerobic capacity was tanked.
Even when they tried to push themselves on a bike test, their peak oxygen use was 21% lower than controls. Same effort. Less output. That’s not deconditioning. That’s physiological impairment.

Blood samples told the rest of the story:
🩸 Higher oxidative stress
🩸 More endothelial cell debris (a marker of vascular damage)
🩸 Lower antioxidant defense
All of this 2 years post-infection.

Still think it’s just in their head?
Still think repeated infection is no big deal?

Still think this is something we should "learn to live with"?
We don’t need more “resilience” propaganda.
We need prevention. Surveillance. Actual clinical trials. Mechanistic understanding. And scalable interventions that target the right systems.
A promising one?
IMST – inspiratory muscle strength training.
5 minutes/day of breathing against resistance.
Early trials show it can lower blood pressure, reduce nerve overactivity, and improve vascular health.

It's not a cure.
But it's a start.
And it's a hell of a lot more than “just go for a walk.”

https://t.co/csRSy1VJvc

[PATHER @patchagil]

J’ai des coquilles Saint Jacques qui ont dépassé la date limite de consommation.
Puis-je les mettre au compost ?
La Saint Jacques se composte-elle ?

[Long COVID Labs @longcovidlabs]

📣 It’s here!

We’re gearing up as the first LC Labs-supported case studies launch this week. The clinicians we’re collaborating with are prescribing a combination treatment of Pemgarda monoclonal antibodies and Paxlovid. ✨

Pemgarda is a long-acting monoclonal antibody that binds to the spike protein of SARS-CoV-2, blocking the virus from entering cells. It stays in the body for months, hopefully helping to reduce viral persistence. 🦠

We’re combining it with the antiviral drug Paxlovid, which will inhibit the virus’s ability to replicate and stop it from spreading from cell to cell. 🛑

This combination is similar to the combination that cured our founder @rd_108, and we’re hopeful that it will be effective against SARS-CoV-2 viral persistence. 🙏

Patient # 1 will be traveling to the clinic to receive his Pemgarda infusion this Friday, April 25.

He’ll also be taking 10 days of Paxlovid at the standard daily dose, receiving Pemgarda on Day 6.

We’ll be tracking his biomarkers for safety monitoring as well as using experimental methods that we’re developing to detect presence of the SARS-CoV-2 virus. 🔬

We plan to share this data open-source, as rapidly as we can. 📊

Long COVID patients have been waiting long enough.  We’re beyond excited to take this step toward finding answers! 🙏❤️‍🩹

[Dr. Sean Mullen @drseanmullen]

179 experts. 28 countries. 1 message:

Long COVID is real, multi-systemic, and devastating. It affects over 400 million people. And we're not prepared.

New global consensus just dropped.

https://t.co/U8nsX8q360

🧵

1.
Long COVID is not "just fatigue." It’s organ damage, immune dysfunction, and neurological injury—even when tests look “normal.”
Consensus: routine labs often miss it. We need biomarker access. We need real diagnostics. Now.

2.
Functional impairment matters. Long COVID isn’t just about symptoms—it’s about how much harder life becomes even without them.
This redefines the disease. It’s invisible disability at scale.

3.
Consensus: Long COVID includes dysautonomia (POTS), mast cell activation (MCAS), mitochondrial dysfunction, endothelial damage, & more.
This isn’t one disease. It’s a syndrome of syndromes.

4.
PEM (post-exertional malaise) is real. Exercise isn’t always safe.
Consensus: “Graded exercise” can harm if POTS or PEM aren’t ruled out.
No more “just walk it off” advice from uninformed doctors.

5.
Most standard tests will come back normal. That doesn’t mean you’re fine.
Consensus: Advanced imaging, tilt tests, CPET, microclot detection, and mitochondrial function markers are needed—but rarely available.

6.
The kids aren’t okay.
Consensus: We must study how repeated infections affect kids’ brains, immune systems, hormones, and learning.
COVID is not “mild in children” if it leaves them cognitively impaired.

7.
Vaccines help—but they don’t prevent Long COVID.
Consensus: Some develop symptoms after vax. Some improve. Some get worse. We need research, not gaslighting.

8.
Mental health matters—but it doesn’t cause Long COVID.
Consensus: Psychological support can help—but this is NOT a psychiatric condition. It's physiological. And measurable.

9.
Consensus: clean indoor air reduces Long COVID.
Translation?
It’s still airborne.
If your school or workplace isn’t filtering air, they’re increasing risk of disability.

10.
Consensus: We need global investment in diagnostics, treatment, and workplace protections.
Governments cannot abandon public health because “the vibes are off.”

11.
The economy? Also infected.
Consensus: Long COVID is crushing productivity, deepening inequality, and draining healthcare systems.
Ignoring it is a policy failure.

12.
This isn’t over. Not even close.
We need trials.
We need funding.
We need prevention.
We need to listen to patients.
179 global experts agree.
Will your government?

[Lapsyrévoltée @lapsyrevoltee]

Important ❗ : enfin des données sur les INTERACTIONS MEDICAMENTEUSES liées au CBD. Le CBD a d'abord été présenté comme un produit miracle pour les douleurs, l'insomnie, l'anxiété & il était dit que cette forme n'occasionnait aucune interaction avec d'autres médicaments MAIS 1/

[Candace D. @DiaryofaSickGrl]

Once you become chronically ill and don’t get better you just basically become irrelevant to everyone you knew.

[ThePOTSPostman @ThePOTSPostman]

Doctor: “How are you?”

Me, internally: Existence feels like a punishment, my body is decaying faster than my will to fight it,
I haven’t got real rest in years and the only consistent thing in my life is pain.

Me, out loud: “I’m fine.”

[Nain Portekoi 🇨🇵 @Nain_Portekoi]

Aujourd'hui un jeune homme a préféré se tuer plutôt que de continuer à subir les séquelles d'un COViD long.
Vous savez le COVID, cette maladie que certains crétins essayent de faire passer pour une grippette.
Le COVID tue, et le COVID peut aussi laisser des séquelles à vie.

[Meg @megannn_lynne]

Waking up every morning, saying “I can’t keep living like this” & then continuing to live like that

[Candace D. @DiaryofaSickGrl]

Being healthy