Today, NICE have given approval for the life-changing #cysticfibrosis modulator drugs to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community.
https://t.co/x7TV04xqXU
In May, we met with trial coordinators and CF doctors working across the UK for our Spring Clinical Trials Accelerator Platform (CTAP) centre workshop. #ResearchWednesay#CFNews
Read the full story on our website.
➡️ https://t.co/FZsMtUJGKD
Boosted dose of twice weekly ETI with clarithromycin in LMIC not eligible for reimbursement- keeping cost down and potential to improve clinical outcomes! Mind blowing! @ecfs_ecfng @bda_cf
We currently have 18 clinical trials on the Trials Tracker. These studies are looking for lots of people to take part, including children and people who are not taking CFTR modulators.
You can search all UK CF clinical trials on our website.
➡️ https://t.co/EYH4tYbhfb
A message from our Chief Executive, David Ramsden, to mark our 60th anniversary today.
Keep an eye out throughout the year, as we continue to mark this very special milestone.
Since 1964, we won’t stop until CF does. 💛
➡️ https://t.co/LmPXWIofn0
In June, over 2,000 researchers, doctors and CF teams gathered at the European CF research conference, organized by European CF Society (#ECFS), discussing the latest news in #cysticfibrosis.
#ResearchAppreciationDay (1/3)
Dr Helen Chadwick educating us on how WE should tailor eduction to the person with CF. Importance of starting the education early, revisit and reinforce in a supportive way. @CFLeeds #ECFS2023
In the meantime, we'd love you to check out our video, featuring members of the CF community about their #clinicaltrial experiences. #BePartOfResearch (2/2)
https://t.co/V0Qs6PePIC
@LeedsHospitals Dietitian Dee has won top honours- an IRIS Award. She was nominated by multiple patients and staff for her dedication, kindness and for just being Dee, which as you all know equates to being a lovely human and a dietitian that we’re all proud off, well done Dee!