Help4HD

Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.

[Help4HD @Help4HDI]

Our sincere gratitude to Acting FDA Director Kyle Diamantas & U.S. #FDA for convening the #HuntingtonsDisease roundtable. Collaboration like this ensures voices of #HDcommunity remain at the center of research, drug development, & regulatory decision-making.

[Help4HD @Help4HDI]

Long Term Care in a Psychiatric Ward ~ Leah depicts the reality of long term care needs for loved ones facing #HD bringing to the surface the lack of #resources and awareness! Listen in on #Help4HDTV! #LongTermCare #HDAwareness

https://t.co/WnWS2frwaI

[Help4HD @Help4HDI]

Tune in as Jenna Heilman of @HDYOFeed joins Lauren on #Help4HDLive to share about this opportunity for young adults, #HDYO International Young Adults Congres 2027 in Barcelona, Spain! #HD

https://t.co/vHJftnvzYz

[Help4HD @Help4HDI]

"... aims to provide food options for individuals with dysphagia, a swallowing disorder..offers a variety of texture modified foods that are safe and east to swallow." ~#Dysphagia Food Bank💙💜💙

#Help4HD #Resource Database: https://t.co/GBufiWlhgM

[Help4HD @Help4HDI]

As we process applications we just want say how thankful we are for our dedicated #sponsors that make these programs for the #HD/ #JHD community possible! Thank you for helping us provide holiday relief to families this November! #Help4theHolidays

[Help4HD @Help4HDI]

Follow #Help4HD on Instagram for resources, events, and updates. #HDAwareness #TogetherWeAreStronger #Community

https://t.co/GWI02EAo84

[Help4HD @Help4HDI]

Trying this adaptive tech, the Beach Band! Tune in to our latest episode of #Help4HDLive as D.j. & Jessica talk with Katie about an open-door #HD community Thanksgiving, new traditions, & simple tips to empower independence.

https://t.co/Oh0YL6fENa

[Help4HD @Help4HDI]

We are here to support HD families! Check out all the support groups that Help 4 HD has available! #Help4HD #HuntingtonsDisease #SupportGroup

Find the right Support Group for you! https://t.co/G6VZXwkHrv

[Help4HD @Help4HDI]

Virtual HIPE successfully completed! Thank you community for participating in our #HD education event and a special thank you to our generous #sponsors that have supported our final HIPE of 2026! #Help4HDHIPE2026 #FacingtheUnknownwithHope #HuntingtonsDisease

[Help4HD @Help4HDI]

REMINDER!!! Monday Mixer will NOT meet this week, but we hope to see you next week on November 16th at 4pm PST! Email [email protected] for details.

[Help4HD @Help4HDI]

#Help4theHolidays November program is now open for applications! #Help4HD is providing qualifying #HD/ #JHD families relief towards a #holiday meal. The program is on a first-come basis and will close in a few days. Details here: https://t.co/oF1oE5XHi3

[Help4HD @Help4HDI]

Facing the Unknown with Hope~ HIPE Virtual November 2026 ~ Tune in for Special announcements, Q&A with HD Experts, #HDResearch updates, & more! LISTEN NOW! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

Tune in: https://t.co/KZaa92pDIA

[Help4HD @Help4HDI]

LIVE ~ Facing the Unknown with Hope~ HIPE Virtual November 2026
Tune in for Special announcements, Q&A with HD Experts, #HDResearch updates, & more! LISTEN NOW! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

https://t.co/xSYono1IHh

[Help4HD @Help4HDI]

Help 4 HD HIPE Virtual is Tomorrow!
Tune in and join us!
https://t.co/EidhKWb8J0
Passcode:320676
We are also streaming on
YouTube: https://t.co/qgrzOaUXoK
Facebook: https://t.co/0mMAoRksgo

[Help4HD @Help4HDI]

Virtual HIPE is TOMORROW! Tune in for these informative sessions with #HDExperts, #HDResearch updates, special announcements, & more! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

Link: https://t.co/EidhKWaATs
Passcode: 320676

[Help4HD @Help4HDI]

These gene-positive gals respond to #EndofLife questions including arrangements for funeral, healthcare, & more on #Help4HDTV! #Help4HD End-of-Life Toolkit is designed for #HD Families to initiate important conversations! Listen NOW!

https://t.co/PW3s37HD4q

[Help4HD @Help4HDI]

Resources for end-of-life planning are coming to #Help4HDTV! Listen as Leah & Jamie discuss this part of the #HD toolkit TOMORROW at 9am PST! #Help4HD #HuntingtonsDisease #endoflife

https://t.co/PW3s37IaTY

[Help4HD @Help4HDI]

Exciting news for the #HD community: Skyhawk Therapeutics has dosed the first US participants in the global FALCON-HD study, evaluating SKY-0515 as a potential new treatment. Recruitment ongoing at 40+ sites worldwide! #HDResearch

https://t.co/7OkXQ0sEC2

[Help4HD @Help4HDI]

Sign up **WITH AN ADDRESS** to enter the drawing for giveaways on the app: https://t.co/bnBRTG0Gz9

On Saturday: Click session, Click giveaway at the bottom, Click the "Participate" button #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

[Help4HD @Help4HDI]

THIS SATURDAY! 💙💜💙Don't miss these sessions designed with your questions in mind! Join this FREE #Virtual #HD education event ~ Tune in at 7:45am PST! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease

Details: https://t.co/oF1oE5XHi3