MPS1 Research

MPS1 is a rare genetic disease that damages cells throughout the body. MPS1 Research Foundation is a public non-profit charity raising money for new treatments.

[MPS1 Research @HelpMPS1]

Please remember all those with MPS - today is International MPS Awareness Day https://t.co/DPdWGsnSPi

[MPS1 Research @HelpMPS1]

Sarah and Greg were both honored to speak on behalf of the MPS1 Research Foundation at a groundbreaking ceremony... http://t.co/LtJSYtRCRn

[MPS1 Research @HelpMPS1]

Erik was joined by his parents and grandparents at LA BioMed where we were excited to present a check for $60,000... http://t.co/PnCeRDv3kd

[MPS1 Research @HelpMPS1]

Erik's positivity will help him travel farther than most, regardless of his pace. Go, Erik, go!! - Polly & Scott... http://t.co/TrwPauSQor

[MPS1 Research @HelpMPS1]

During our morning walk in Corona del Mar, Cooper and I paused to remember Erik & Sawyer's walk for MPS1. http://t.co/py5vt95FmN

[MPS1 Research @HelpMPS1]

Special Thanks to Erik’s Grandfather Richard Fletcher and Erik’s Aunt Kristi for stepping forward for MPS1 today... http://t.co/lsGFIELAwe

[MPS1 Research @HelpMPS1]

If you have not seen the video yet - here it is!
http://t.co/P3Kl38ONGf http://t.co/jQ8To2UKs7

[MPS1 Research @HelpMPS1]

Ruth Pries - Thank you so much for your generous donation and continued support! http://t.co/Zb3oC6vjGR

[MPS1 Research @HelpMPS1]

A very special thank you to Susan Nelson – our first donor for STEP FORWARD!

[MPS1 Research @HelpMPS1]

I posted 8 photos on Facebook http://t.co/r6BwW8A2Wz

[MPS1 Research @HelpMPS1]

STEP FORWARD has started! Donations are coming in. Who will be the first person to post a photo of their walk... http://t.co/3RSLFN4rGA

[MPS1 Research @HelpMPS1]

A very special thank you to Susan Nelson – our first donor for STEP FORWARD! Who will be first to post a photo on our Facebook page?

[MPS1 Research @HelpMPS1]

I posted 11 photos on Facebook in the album "Erik's Chance Fundraiser - 2013" http://t.co/XP8UucEM8N

[MPS1 Research @HelpMPS1]

Time to STEP FORWARD and Walk in the Footsteps of MPS1! See the video and participate at https://t.co/OijFv2mvD5

[MPS1 Research @HelpMPS1]

We are excited to announce our first-ever online fundraising event – STEP FORWARD, Walk in the Footsteps of MPS1!... http://t.co/Tn2cLZd3Q3

[MPS1 Research @HelpMPS1]

Getting ready to launch our first-ever online event - STEP FORWARD, Walk in the Footsteps of MPS1. Stay tuned.....

[MPS1 Research @HelpMPS1]

Celebrating a great day! Today is the 12-year anniversary for Erik’s Bone Marrow Transplant – big brother Ian... http://t.co/DfNQxB2seB

[MPS1 Research @HelpMPS1]

Celebrating a great day! Today is the 12year anniversary for Erik’s BMT – big brother Ian was his donor.

[MPS1 Research @HelpMPS1]

Over 100 guests attended the fourth “Erik’s Chance” reception in Newport Beach at the striking new Civic Center.... http://t.co/LrGntdkC2S

[MPS1 Research @HelpMPS1]

The third “Erik’s Chance” reception was a huge success. This year the largest number of guests we have ever had... http://t.co/5O1YUemc