helping ezra

Amazing boy with rare genetic disorder #Gould Syndrome. Also has #Epilepsy, #Autism, & #Hemiplegia had his 4th brain surgery 12/3/19 for his seizures.

[helping ezra @HelpingEzra]

Some good advice from Darth Vader to Ezra today @memorialhermann thank you for visiting all of the kids on the floor @501stLegion. This is what giving back to the community looks like. #helpingezra #gouldsyndrome @TheEllenShow

[helping ezra @HelpingEzra]

Asked what he wanted to say to everyone this morning (he thought I was videoing) “have a nice day, like, and subscribe...lol”. So love ❤️ this kiddo.

[helping ezra @HelpingEzra]

Ezra had fun getting his hair cut 💇‍♂️ today. Was Ezra’s best experience ever! Robert Young was awesome 😎. Ezra did not want to go. Wanted to hang out 😆 and asked when he gets to go back. WOW. #helpingezra #haircut

[helping ezra @HelpingEzra]

Ezra struggles very hard with learning (reading, writing, memory) issues & the ability to tell us why he is feeling a certain way. I think this song might help say what Ezra feels ❤️ “We'll Get By” (The Autism Song) Johnny Orr Band... https://t.co/E1DwXUvGSa

[helping ezra @HelpingEzra]

Amazing video made by a father of another Gould Syndrome child 🧒. Please help us educate others on #gouldsyndrome when you watch see if you can find our hero 🦸‍♂️ Ezra https://t.co/KxPF1NA4Hs

[helping ezra @HelpingEzra]

“Mommy you’re a Princess. Am I still your Boss Baby?” 💗 #helpingezra

[helping ezra @HelpingEzra]

Someone is having fun 😁! He asked if we could get one ☝️ like this for at home 🏠

[helping ezra @HelpingEzra]

@SarahKelleyKISD @teach_valadez @UlrichKISD That’s awesome and very out of the box 📦. Great way to motivate your student 👨‍🎓. They are lucky 🍀 to have such a cool 😎 teacher.

[helping ezra @HelpingEzra]

Saw this post of Mr. Kobe loving on a child with epilepsy. He left a real legacy of helping others. #epilepsy #helpingezra #gouldsyndrome

[Helmets4Helmets @Helmets4Helmets]

We will NEVER FORGET and always strive to make you proud Mr. Kobe! 💜💛💜💛 @kobebryant @TheView #KobeBryant #RIPKobe #mombamentality #Kobe #fightlikebryson #protectlikebrock

[helping ezra @HelpingEzra]

@K_Crosetto @abc13houston @FOX26Houston @TheEllenShow @KHOU @HoustonChron Loves his brother ❤️ and that shirt represents his brother. He picked out. #kliencain

[helping ezra @HelpingEzra]

Ezra has a message for Darth Vader. We appreciate all he does https://t.co/Fk02kYfKNN #helpingezra #gouldsyndrome @abc13houston @FOX26Houston @TheEllenShow @KHOU @HoustonChron

[helping ezra @HelpingEzra]

Darth Vader promised Ezra after Ezra’s surgery he would come to his Birthday Party 🥳. Commander Ezra showing him around! Check out his Facebook tomorrow for more pictures & videos. #helpingezra #gouldsyndrome #DarthVader @Marriott @MarriottBonvoy

[helping ezra @HelpingEzra]

Wow! Ezra made 2 of 3 baskets at regulation height. SO PROUD 🤩 #helpingezra #gouldsyndrome @NBA

[helping ezra @HelpingEzra]

Blast from the past. Seven years ago today! He had a rough night before. Little did we know it was probably seizures. Dad took him for a little Dad/Ezra time at Sams for pretzels 🥨. What a real hero 🦸‍♂️ #helpingezra #gouldsyndrome #epilepsy

[helping ezra @HelpingEzra]

@MartinaStippler Congratulations on your special day!

[helping ezra @HelpingEzra]

“Donuts with Dad” what a great event! Ezra loved ❤️ it. What a great 👍 and amazing school we have. #helpingezra #gouldsyndrome @MahaffeyKISD

[helping ezra @HelpingEzra]

Ezra and his cuddle buddy🐶. Sweet dreams our little Hero 🦸‍♂️ #helpingezra #gouldsyndrome #boxerdog

[helping ezra @HelpingEzra]

Don’t be sad. Ezra fell while playing & now has a little scar just like the Lion King character. 😆 He asked us to start calling him “Scar” this morning...oh what a imagination Ezra has! #helpingezra #gouldsyndrome

[helping ezra @HelpingEzra]

Happy Birthday to Gould Syndrome Hero and Ezra’s Mom! #gouldsyndrome #happybirthday @HolyCowPretty

[helping ezra @HelpingEzra]

Oh no the big bad Wolfe! 😆 stopped to pick up Cajun roses 🌹 (crawfish) for his mom. He saw the Wolfe and asked to get his picture. Once he touched picture was not happening 🤣. #helpingezra #gouldsyndrome

[helping ezra @HelpingEzra]

Look 👀 who is 9 years old today! He woke up to a surprise (Ryan’s World Cereal). He was so excited 🥳 #helpingezra #gouldsyndrome #happybirthday