Hemo Girls Rock

Hemophilia Educator, Advocate, Research Supporter, Patient. All opinions are my own.

[Hemo Girls Rock @HemoGirlsRock]

#1: Info women need hematologists to know: When women say they are bleeding excessively, INVESTIGATE, rather than question.

[Hemo Girls Rock @HemoGirlsRock]

Please Share! The Hemophilia A Research Program (HARP) is studying how hemophilia A affects mothers and babies. For more information, visit https://t.co/M60mXuCQNB. To join the study visit https://t.co/UymhXJv9kT.

[Novo Nordisk Medical US @NovoMedUS]

On World Hemophilia Day, we reaffirm our commitment to the hemophilia community.

Today, we share Shellye's story, emphasizing the need to recognize this rare bleeding disorder across its full clinical spectrum. #WHD2026

https://t.co/GCoSrBkRCl

Intended for US HCPs Only.

[Shematologist, MD @acweyand]

@lmhuber1982 @oldmangotree Is this your hemoglobin or ferritin? Typically ferritin isn’t checked but if it is ferritin 13 is wayyyy too low a cutoff. Adults should be at least 25, ideally 50+

[Shematologist, MD @acweyand]

@froglet80 Evidence in adults that ferritin should be 50+

[Mary Cushman 🫀🧠🩸 @MaryCushmanMD]

Ferritin <30 = IRON DEFICIENCY.
Thanks @sholzberg for setting this right! Spread the word #MedTwitter & #HemeTwitter!

[Vinay Prasad MD MPH @VPrasadMDMPH]

This is misguided. The q is at what ferritin is there randomized data that giving iv iron helps. Ref standards are beside the point

[Hemo Girls Rock @HemoGirlsRock]

@EM_RESUS Women can get hemophilia.

[Hemo Girls Rock @HemoGirlsRock]

2/ ..and be treated at a hemophilia treatment center. Of 3.2 million people predicted to have VWD under 2% are seen at hemophilia treatment centers. Therefore, this 16 year statistic, while a great stride in learning, is a highly biased sample and likely grossly underestimated.

[Hemo Girls Rock @HemoGirlsRock]

1/ Please stop using the 16 year CDC statistic when talking about how long it takes for women to be diagnosed with VWD!!! This statistic is taken out of context and misquoted. The CDC study interviewed 75 women with VWD who managed to get a diagnosis.

[Hemo Girls Rock @HemoGirlsRock]

Please stop using the 16 year CDC statistic when talking about how long it takes for women to be diagnosed with VWD!!! This statistic is taken out of context and misquoted. The CDC study interviewed 75 women with VWD.
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[Hemo Girls Rock @HemoGirlsRock]

@VPrasadMDMPH Agreed. My mom and both her siblings all exercised a lot and all of them have had dementia issues.

[Farzad Mostashari @Farzad_MD]

1/ After residency at Mass General Hospital, I reported to Atlanta to meet my fellow CDC Epidemic Intelligence Service Officers.

I have never felt so intimidated by my peers

The best and the brightest, they were star clinicians, had served in disaster zones; MD/PhDs and MSF.

[Hemo Girls Rock @HemoGirlsRock]

@akshatdoctor Thank you for sharing this fantastic video clip and for being an amazing advocate fie women with hemophilia!❤️

[Hemo Girls Rock @HemoGirlsRock]

Over 1 million women are likely affected by #hemophilia worldwide. Read to learn more https://t.co/5bAdTqr10T

[Hemo Girls Rock @HemoGirlsRock]

@ProfMakris The pharmaceutical industry has highly overestimated the patient interest in gene therapy for Hemophilia a. Risks do not outweigh benefits when there are so many fantastic therapies available. Additionally, mild Hemophilia can be more nuanced and frustrating to treat than severe.

[Hemo Girls Rock @HemoGirlsRock]

Hematologists are so good at protecting women w/ hemophilia during surgery and the days immediately following hysterectomy. Quite a few, however, forget about bleeding risk weeks after as stitches dissolve, sending patients to the ER pouring 🩸

https://t.co/pekYNJIr2c

[Hemophilia News Today @hemophilia_news]

How does a patient advocate balance medical risks and benefits with a bleeding disorder? See her thoughtful approach. Read more: https://t.co/KwddOdgrTi

#HemophiliaAwareness #HemophiliaLife #HemophiliaCommunity #LivingWithHemophilia

[Hemo Girls Rock @HemoGirlsRock]

@gretchemaben Ooh! I just ordered my first robot and am waiting for it to arrive and meet my dog and cats!

[Hemo Girls Rock @HemoGirlsRock]

@meganysta @torontolibrary OMG… not okay.

[Tyler Black, MD @tylerblack32]

"[AIDS] is not being caused by a virus. It's not a virus... These people are dying because of 'poppers'... they were people who were part of a gay lifestyle... "

"This is not a viral disease, but it's a disease that is environmental."

- HHS Secretary Nominee RFK Jr

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