Hidden & Visible Scars

Ex ICU Physio. PMH Graves Disease 19yrs-thyrotoxicosis hot weather, underactive in winters. ‘13 undiag. POTS/JHS mistook for thyroid-2x RAI-deteriorating since

[Hidden & Visible Scars @HiddenScars2016]

@OurTimeDating A total disgrace, I went through all the questions for my Dad to find someone, the price for a week was a disgrace, & now I see it’s based in the US, and not even the UK. Money grabbing extortionists.

[Hidden & Visible Scars @HiddenScars2016]

@WhatsApp Sort this out ASAP, you’re enabling people who take advantage, and even worse, you’re giving out phone numbers of people who are vulnerable, then are harassed for money. Please sort it out NOW.

[Hidden & Visible Scars @HiddenScars2016]

My Dad (who’s a 76 vulnerable man) is on WhatsApp and he gets messages from ‘women’ in revealing pictures, eventually asking for money. They know his phone number and keep asking for money. How is WhatsApp private, if this keeps happening??? Disgraceful @WhatsApp

[Hidden & Visible Scars @HiddenScars2016]

@Jesse_Spencer We’ve been binge watching Chicago Fire, just watching season 11 episode 18, it’s so nice to see you back. Have you any plans to return to the show? You are missed.

[Hidden & Visible Scars @HiddenScars2016]

I used to donate to WWF, but stopped, for an un-remembered memory…maybe money. I’m disappointed in myself. I’ve just visited the website to donate and have been shocked by the amount of endangered species living in the wild. Please, if you can, please donate/adopt an animal 🙏 x

[Hidden & Visible Scars @HiddenScars2016]

@NHSOrganDonor I just learnt from Google that people can donate their liver and kidney to strangers. I had no idea.

I registered with you 30 years ago for organ donation, signed the card, but had no idea, the above was possible. Please can you advertise, and let people know?

[Hidden & Visible Scars @HiddenScars2016]

I'm raising £650 to Scared to go to sleep. Fund disability support - Quality of life. Check out my @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/2Yhik5Yh68

[Hidden & Visible Scars @HiddenScars2016]

@beremarkablenow Hi Lauren, I listen to your sleep hypnosis videos every night, and sent you a message on instagram to say thank you but it disappeared, and now says it won’t send. Was it my message? I’m sorry x

[Change.org UK @UKChange]

This #InternationalHumanRightsDay - use your voice to sign urgent petitions to support those still at risk for fighting for their basic freedoms in #Iran

Support the movement - #WomenLifeFreedom

https://t.co/jENZOIlVYp

#IranRevolution2022

[Hidden & Visible Scars @HiddenScars2016]

I hope I’m wrong, as it would make @BootsUK an unscrupulous exploitative horribleness...but I had over £25 worth of points, now they’re saying I have £1. I was saving them for a crisis moment, when I might need niceness, & it seems they’ve stolen them. Email contact is rubbish

[Hidden & Visible Scars @HiddenScars2016]

Does anyone know if season 2 @NinjaWarriorAU is available to watch/stream in the UK?
Just watched season 1 on a #NowTV trial, awesome show!! Can’t see a season 2 though🥺

[Mark Meddings @MeddingsMark1]

If you are unaware of someone’s challenges, be careful how you judge their choices

[Hidden & Visible Scars @HiddenScars2016]

@DeneenMakayla 1st 4 days post 1st pfizer jab- dizzy, sick, headache and tiredness. Difficulty getting to sleep.
Day 5 today- only 3 hrs sleep last night. Never been able to sleep upright, it’s the same feeling in bed. Scared I’ve made another bad choice while unwell.
#POTS #Pfizer

[Hidden & Visible Scars @HiddenScars2016]

If you’re looking at joining @YourSSE - DON’T!!!

They’re clearly having financial issues and trying to con customers (see prev tweets), even now after the contract has finished.
#StayClear #SSE @BBCWatchdog @ofgem

[Hidden & Visible Scars @HiddenScars2016]

@TNLUK Thanks Finn, but all my lucky dips for the last year now arrive in the afternoon afterwards, & always have 3 numbers within 4-5 of each other. It does seem a little suspicious TBH, especially considering the new delivery time & 3 numbers always being close @TNLUK @BBCWatchdog

[Hidden & Visible Scars @HiddenScars2016]

I know all numbers have equal chances of winning the UK #NationalLottery, but I won 5 consecutive Lucky Dips (covering 6 mths), where 3 numbers were within 4-5 of each other?! What’s the odds?

Notifying emails arrive ~9hrs later now too #LottoLuckyDip #Suspicious @TNLUK @BBCNews

[Hidden & Visible Scars @HiddenScars2016]

@HMSACharity @UKPoTS @HopkinsMedicine I think it’s brain fog, just can’t think, even worse when warm or tired. Couldn’t communicate (written) for a few years after RAI and now it’s like writing in a foreign language. I didn’t start speaking until >2 y/o and needed a speech and language therapist #Brain&BodyFailing

[Hidden & Visible Scars @HiddenScars2016]

Please are there any tips to improve thinking & written communication with worsening #POTS & #thyroid?
Used to be so eloquent/intelligent, it was easy. Now I can barely string 2 written sentences together, some days it’s impossible #trapped @UKPoTS @HMSACharity @HopkinsMedicine

[Hidden & Visible Scars @HiddenScars2016]

I’ve been in a fog & totally different person for the last 4 yrs. I stopped mirtazapine & ivabradine 4 months ago & I can think, almost feel like me again, but sleep and weakness/fatigue is awful.

Does anyone with #POTS take anything to help sleep please? @UKPoTS @HMSACharity

[Hidden & Visible Scars @HiddenScars2016]

@DHSCgovuk I’ve had the text but when I call 119, there’s no option for booking a vaccine appt on the automated system, only testing options??

Is 119, the right number please?

[Hidden & Visible Scars @HiddenScars2016]

Goodbye and good riddance @YourSSE!! Appalling customer service, no reply to DM’s. Stealing money #LostCustomer #WordOfMouth

Bring on @ShellEnergyHome 🎉😊🤞

[Hidden & Visible Scars @HiddenScars2016]

Please can anyone help explain why @YourSSE would increase my monthly gas direct debit by £2 after the latest bill today, when my usage was down 7% compared to last year and I’m £21 in credit🤨🤔? Plus we’re entering the warmer months. Seriously?!

[Hidden & Visible Scars @HiddenScars2016]

Pretty sure @YourSSE is about to lose me as a customer. They’re raising their gas price but I’m £21 in credit & only pay £14/mth. They inc to £16, I took it back to £14. They’ve raised it to £15. I just took it back to £14. You do not need higher payments for at least a 1/4!! 😡

[Standing Up to POTS @POTSActivist]

Being chronically ill can feel all consuming. Thinking about your illness as part of your story rather than an integral part of yourself might help you consider the other chapters of your life that occur before, during, and after (hopefully!) your chronic illness. #SUTP