@CruseSupport as a bereaved mum I can't imagine what these parents a feeling. Sending love and hugs to all involved and the rest of us who are affected 💙💙💙💙💙💙
@criminographer You go girl, you are much stronger than you give yourself credit for. Just talking about Alexander shows you are dealing with your loss and using the strength you get from knowing he is smiling down on you
@BlondeHistorian At least books come with a guaranteed cuddle at this moment in time. Not quite the same I know but you're still super mum. I like the sound of the Short Sided Giraff, I think my grandchildren might be too old though. Still going to look it up on Amazon 💕💕💕💕💕💕
@BlondeHistorian@Aerobility Wow, that's beyond amazing Amy. You are so brave, I can't Imagine what it was like. Did you leave Ava behind? Did she mind?
@BlondeHistorian I'm pleased to hear that Amy, and it's how every pregnant woman should feel no matter what. My step daughter had NCT support throughout her pregnancies and is still in touch eight years on.
@BlondeHistorian You have done really well for twenty months Amy. LO is going to dictate how things go from here, it doesn't mean you won't have lots of cuddles though. Give yourself a big pat on the back for being Supermum💕💕💕💕💕
Many lifeline services including respite and end of life care will be cut if the next Government fails to maintain the £25m NHSE fund. Join us in calling on the next Government to maintain this funding by signing our open letter #shortlivescantwait
https://t.co/0vzJaeAsWR
New research from @theRCN shows the worrying extent of nursing workforce shortages. This needs to be addressed if we are to ensure seriously ill children are able to access the care and support they need, when and where they need it. #shortlivescantwait#GeneralElection
@ejgarner85 Loosing a child is one of the hardest things. To use your grief and knowledge of what parents need. Empathy and compassion are skills that cannot be taught. You will make an exceptional paediatric nurse
As a fulltime carer, @stoswaldsuk gave Dad Ian a much-needed break from caring for his daughter Eve, knowing she was safe. But children's hospices are at risk. This #ChildrensHospiceWeek, help us protect £25m of funding. Sign our open letter: https://t.co/9h9U8Ll3X3
@Tog4ShortLives When my son was diagnosed with ALD, we were blindsided by his diagnosis, no treatment just palliative care. In South Wales a new hospice opened and we were amongst the 1st there. They saved our lives, were there for us as a family. 24 years on they are still there, supportin us
Nearly one fifth (16%) of children’s hospices’ running costs are paid for by the £25m NHSE fund. Despite this, this funding stream is yet to be confirmed for years beyond 2024/25.
❗Please read❗
An important piece from ITV via @StormLNewton and @PA about the risks to vital children’s hospice services if the next government doesn’t act urgently to protect £25m of funding:
https://t.co/tXWrkISOlm
A child dying is one of the most intensely painful experiences you can go through. This link provides advice on how to care for yourself after the loss of a child: https://t.co/i6lVBZBc65
#bereavement#grief#sandsawarenessweek#childrenshospiceweek
@criminographer@takeabreakmag@SUDCUK1 I'm going to try and get hold of a copy Emily. I've only arrived home from hospital today so will get my daughter to get me one. I did a lot of similar things when Samuel died, I am a carrier of ALD, it's very rare like PPA2deficiency. Sending love xxx