Hope in our Hearts

Hope has a mitochondrial disease Pyruvate Dehydrogenase Complex Deficiency. This page is to raise awareness and funds for vital research.

[Hope in our Hearts @HopeIn0urHearts]

Please read and share to raise awareness! 💜⚓️💛

[The Lily Foundation @4Lilyfoundation]

All of us at The #LilyFoundation are excited to be working with @itvcorrie on a storyline about a child with a mitochondrial disorder. We're so grateful to the show for highlighting an issue that affects hundreds of families in the UK. Find out more: https://t.co/8DDZpauAf0

[Hope in our Hearts @HopeIn0urHearts]

@Yelly38618613 @eliistender10 Zzz. Z

[Hope in our Hearts @HopeIn0urHearts]

Maybe @AsdaServiceTeam @asda and @Morrisons

[The Freya Foundation @Freyafoundation]

@sainsburys @Tesco @Ocado @waitrose please can you start cancelling prebooked recurring slots and only allowing those who are extremely vulnerable & shielding to book?! We have vulnerable families who can’t get food. Help us!!

[Hope in our Hearts @HopeIn0urHearts]

Please retweet!

[The Freya Foundation @Freyafoundation]

@itvnews @itvwestcountry

[Hope in our Hearts @HopeIn0urHearts]

Wonder how we’re supposed to self isolate as a family (due to little ones health) when I can’t get a food delivery even well into April.
Friends have been great at dropping off bits, but we can hardly ask someone to shop for a family of 5 for a week. Anyone? @Tesco @asda 🙏 😖

[Hope in our Hearts @HopeIn0urHearts]

Wonder how we’re supposed to self isolate as a family (due to little ones health) when I can’t get a food delivery even well into April
Friends have been great at dropping off bits, but we can hardly ask someone to shop for a family of 5 for a week. Anyone? @Morrisons @sainsburys

[Hope in our Hearts @HopeIn0urHearts]

Yes 🙌🏻 🧼 💦

[@jenmonnier.bsky.social @JenMonnier]

You're supposed to wash your hands for 20 sec, which is the time it takes to sing Happy Birthday twice. But I'm tired of singing Happy Birthday and you probably are too, so I've done the very important public service of compiling other songs with roughly 20 sec choruses to sing:

[Hope in our Hearts @HopeIn0urHearts]

ee59/58

[Swindon Town Football Club @Official_STFC]

🍕

The Lucky Row is back, courtesy of @Dominos_UK

Will you be next to receive a delicious half-time snack?

Retweet this tweet and reply with your row and seat number to be in with a slice of the action!

#STFC 🔴

[Billie Piper @billiepiper]

Cannot get behind a man who shames single mums and their children, uses casual racism, gambles with the NHS and gives zero fucks about our children’s future. To all the young ones, learn how to vote tactically & rid us of this looming horror show: https://t.co/VNBKRcu81G ✌️❤️xx

[Hope in our Hearts @HopeIn0urHearts]

Team Hope?

[The Lily Foundation @4Lilyfoundation]

Our @LLHalf team is growing and you can join us! Sign up today for this fabulous race on 29th March 2020 & know you are helping us to fight mito every step of the way. Fundraising pledge is £350 & no registration fee. https://t.co/gzvUkL3eK7
#lilyfoundation #llhm

[Hope in our Hearts @HopeIn0urHearts]

Thank you ☺️

[The Lily Foundation @4Lilyfoundation]

On behalf of all our families the #lilyfoundation would like to say a huge thank you to our mighty team of #volunteers who helped make our 6th annual #lilyfamily weekend a huge success. We simply could not do this without your #support ❤❤❤

[Hope in our Hearts @HopeIn0urHearts]

@GottaGettaGUND This is Hope with her favourite ‘lambie ‘ Lena the lamb @fund

[Hope in our Hearts @HopeIn0urHearts]

Mummy promised me she’d never make me lay on a dirty bathroom floor. Really hope @RunFestRun can get a @MobilooUK unit for the weekend

[The Lily Foundation @4Lilyfoundation]

If swimming is your hobby why not turn it into a fundraising opportunity with the Great North Swim, Lake Windermere on 7th June? Distances to suit all levels & abilities - 250 metres, 1/2 a mile, 1 mile, 2 miles, 5k or 10k. https://t.co/fkb8c72TAf
#lilyfoundation #swim #fundraise

[The Lily Foundation @4Lilyfoundation]

Team Hope have been part of our Lily family for many years, going from strength to strength, growing in numbers & continuously raising awareness of #mitochondrialdisease Last wknd, the gorgeous Hope was right in the thick of it, at the Commonweal 5 Mile event. Thanks Team Hope! x

[The Lily Foundation @4Lilyfoundation]

Chasing a half marathon PB? The @Virgin_Sport Oxford half marathon on 13th October could be the race for you! Just one Team Lily guaranteed place up for grabs - sign up today: https://t.co/7CMidgA4SW
#lilyfoundation #moveitforMITO #thinkMITO

[The Lily Foundation @4Lilyfoundation]

We were completely blown away when the very lovely @JamieTheakston presented us with this cheque for £100,000 from the amazing Global's @makenoise This grant will really make a difference to the support services we can offer those affected by #mitochondrialdisease #lilyfoundation

[Hope in our Hearts @HopeIn0urHearts]

@JenSmith___ @carolineandhonk Thank you Jenny 😘

[Hope in our Hearts @HopeIn0urHearts]

Hope has ‘over loved’ these favourite toys of hers 😢. I was looking for someone to repair them, but a friend suggested I contact @GottaGettaGUND and @LeapFrog to see if they can help. Lambie (aka Lena the Lamb by Gund isn’t available anymore so we can’t let them go

[Naomi and Jack's @naomiandjacks]

Whoooooosh! Spinning always leads to #smiles!