Khrystal Davis

Passionate voice in the rare disease community as a patient advocate and writer. Loving mother to Hunter, our terminally ill 4yo with SMA Type I.

[Khrystal Davis @Hunt4acure]

@Hunt4acure: Happy New Year Rare Friends 🎉 I know 2016 will be an amazingly rare year. #raredisease @thefastmovement @rarepov @noahontherun

[Forestlands @Forestlands]

@Hunt4acure @YouTube When it's the only hope it's important to try!

[Khrystal Davis @Hunt4acure]

Should the Terminally Ill Have the Right to Try Risky, Non FDA Approved ... https://t.co/hoAzvauduT via @YouTube

[Khrystal Davis @Hunt4acure]

@JonU235 Of course, how could I forget Jon! I remember now 😃 I ran errands in my galoshes, gloves, and coat. It was a good day.

[Khrystal Davis @Hunt4acure]

@JayTheKurgan Thank you for the Retweet Jay. Do you listen to any talk radio or podcasts? @W_Angels_Wings

[Khrystal Davis @Hunt4acure]

Thank you for the Retweet @JayTheKurgan @RTDIceDam & @JonU235 Did you get Did you get snow today? @Hunt4acure

[Khrystal Davis @Hunt4acure]

Happy Saturday. I'm in St. Louis, and it's snowing. Where are you? Any chance of snow? #snow

[Khrystal Davis @Hunt4acure]

@Stanley_Team Thank you for the Retweet Chrishena. I hope you're having an amazing weekend. @TheFastMovement @RarePOV

[Khrystal Davis @Hunt4acure]

LISTEN & RETWEET: inspiring rare mom on radio: https://t.co/YXkbcvpXVD Stephanie Collins on Never Ever Give Up Hope @W_Angels_Wings

[Khrystal Davis @Hunt4acure]

We never get enough blessings for Hunter ❤ https://t.co/Lj8u2mFDT5

[Khrystal Davis @Hunt4acure]

Happy Birthday Yadria! @_aridaaay I hope you have an amazing day. Did you know butterflies are good luck? ... https://t.co/awh3b5Mc3I

[Khrystal Davis @Hunt4acure]

Thank you for your kind words Bella. @bellomayok We are very blessed. Do you have a project you're working on now? https://t.co/Lj8u2mFDT5

[Khrystal Davis @Hunt4acure]

Thank you for the Retweet Jay. @JayTheKurgan Do you have any big plans this weekend? @_aridaaay

[Khrystal Davis @Hunt4acure]

Thanks for following John! @JohnNosta Are you at #CES? #raredisease #technology #innovation

[Khrystal Davis @Hunt4acure]

@Hunt4acure: What kind of scientist do you aspire to be? @_aridaaay #raredisease #scientist #compassion

[Khrystal Davis @Hunt4acure]

Thank you for the tweet Yadira. ❤️ @_aridaaay You're so kind. We are lucky that Hunter receives treatments.

[Eliot Brenner @eliotmbrenner]

Nonprofits struggle to pay minimum wage - via @NonProfitTimes @pndblog https://t.co/lIwc8jsO1I

[Eliot Brenner @eliotmbrenner]

Top 10 Most-Read @childtrends Research of 2015 https://t.co/qQr03corIz #children

[Stephanie Fischer @RarePOV]

Positive step for better patient outcomes: CA Hospitals Required To Keep Caregivers In The Loop https://t.co/U69hOh9S6K via @khnews

[Stephanie Fischer @RarePOV]

Patients leaving hospitals often don’t understand care plans https://t.co/nfAE08K2Zu via @Reuters #hcldr

[Stephanie Fischer @RarePOV]

@hesaonlineorg @venriquezrios @mindingourelder @chroniccurve 2016 is a RARE leap year so we have 366 days to raise awareness!