Huntington's NSW ACT

We support people affected by Huntington’s disease to live their best life by shaping a future which is supportive, inclusive and empowered.

[Rare Disease Day @rarediseaseday]

Kicking off Rare Disease Day 2022... It's Oceania! 🌏

With over 50 events taking place across the continent today, Oceania is leading the way for #RareDiseaseDay

Are you marking Rare Disease Day in Oceania? Let us know how you're getting involved! 👇👇👇

[Huntington's NSW ACT @HuntingtonsNSW]

Tune into 89.1FM this morning at 10am to hear our CEO, Lewis Kaplan, interview on Huntington's disease. @givingbackrbm https://t.co/aYhm6Xlm81

[Huntington's NSW ACT @HuntingtonsNSW]

@lilhanly Thank you for sharing your story Lillian.

[Lillian Hanly @lilhanly]

This year I had the privilege of making a short film. It’s about Huntington’s Disease, but also about decisions, family, and vivaciousness of life. I hope you can watch it and find something to take with you.

https://t.co/DaEcnDPyhH

[The Inheritance @Inheritance_Doc]

Wonderful end to 2017 with incredible news of @ionispharma @Roche trial. Watch Bridget interviewed on @BBCNewsnight https://t.co/tJyfAX4PeA
#huntingtonsdisease https://t.co/omKP5BkDdv

[Huntington's NSW ACT @HuntingtonsNSW]

#Huntington’s Disease: the Pope steps in to help raise awareness https://t.co/jGbpOofQ7z

[Huntington's NSW ACT @HuntingtonsNSW]

#HDdennomore @HDdennomore

[Huntington's NSW ACT @HuntingtonsNSW]

Salute! Thank you and congratulations Charles (and @DrEdWild!), from all of us Down Under! #Huntingtonsdisease #Hddennomore https://t.co/rRv0TJ9r3G

[Huntington's NSW ACT @HuntingtonsNSW]

Heartfelt congratulations to the #Hddennomore team in Rome for making this happen! Many memorable and momentous moments, including this. https://t.co/NkxgvICGaI

[Huntington's Disease Association of Ireland @HDAI_ie]

Pope Frances meets Nancy Wexler whose team discovered the gene for HD #HDdennomore @HDdennomore

[Huntington's Disease Association of Ireland @HDAI_ie]

@DrEdWild @HDBuzzFeed Meeting Pope Francis this morning @HDdennomore @Pontifex #HDawareness

[Huntington's NSW ACT @HuntingtonsNSW]

WATCH LIVE NOW #HDdennomore Pope Francis' special audience with the HD community https://t.co/OVH3KS3aNs #Huntingtons @HDdennomore

[Huntington's NSW ACT @HuntingtonsNSW]

#Huntington's Awareness Month is not over! @Inheritance_Doc is screening in #Newcastle Friday 30 Sept 6pm. Tickets: https://t.co/IepZ21xVYK

[Huntington's NSW ACT @HuntingtonsNSW]

Sheltering under the gum trees at @ParraPark as we gathered to #Walk4Hope for #Huntingtons.

[Huntington's NSW ACT @HuntingtonsNSW]

Pink and Green at @ParraPark as we #Walk4Hope to raise money, awareness and support for #Huntingtons.

[Huntington's NSW ACT @HuntingtonsNSW]

Thanks @ParraPark for a beautiful place to #Walk4Hope for #Huntingtons

[Huntington's NSW ACT @HuntingtonsNSW]

Thank you @Shikye_Alyce #MissGalaxy2017 & @LionsParra for supporting #Huntingtons #Walk4Hope @ParraPark #ParraPark

[Therese Alting @theresealting]

#walk4hope #parrapark #huntingtonsdisease

[Huntington's NSW ACT @HuntingtonsNSW]

#Huntingtons #Walk4Hope in beautiful @ParraPark come rain, hail or shine! #parrapark

[Huntington's NSW ACT @HuntingtonsNSW]

Thank you @2GB873 for talking about #Huntingtons. #Sydney join us TODAY 11am #Walk4Hope in beautiful @ParraPark