Hypotonia Awareness

A support page to spread awareness about hypotonia and reduce misconceptions. Based on personal experience and research. #hypotonia #lowmuscletone 💪🏼💪🏾💪🏿

[Hypotonia Awareness @HypotoniaAware]

I’ve discovered the powers of CBD lotion and it is 1000% more effective than icy hot for muscle pain.

[Hypotonia Awareness @HypotoniaAware]

I haven’t been doing my postural movement therapy lately because I moved 2 months ago, and my neck and back have been screaming in agony!

[Hypotonia Awareness @HypotoniaAware]

I still have a lot of shame around people thinking I’m lazy, because my hypotonia is invisible. We are not lazy! We are just tired 😌

[Hypotonia Awareness @HypotoniaAware]

https://t.co/4u0EVcz9D1 #hypotonia

[Hypotonia Awareness @HypotoniaAware]

I never got a diagnosis beyond “benign congenital hypotonia”

[Hypotonia Awareness @HypotoniaAware]

I’ve started a postural therapy program! I’ve already noticed a difference in my posture.

[Hypotonia Awareness @HypotoniaAware]

and adults with hypotonia aren’t lazy either! 😉

[Hypotonia Awareness @HypotoniaAware]

@SureStep #hypotonia

[Hypotonia Awareness @HypotoniaAware]

@SureStep #hypotonia

[Hypotonia Awareness @HypotoniaAware]

Trigger Points and Joint Hypermobility

[Hypotonia Awareness @HypotoniaAware]

I don’t always notice my hypotonia and hypermobility because my body tries to stabilize itself with overactive muscles. Then I’m reminded by the pain from the knots, trigger points, and muscle spasms. 😫

[Hypotonia Awareness @HypotoniaAware]

I’ve had a continuous trigger point tension headache this past week, that just increases with stress. I go to bed with a headache and wake up with one.

[Hypotonia Awareness @HypotoniaAware]

Trigger point therapy helps some, but I haven’t found a way to deal with them long term. I’ve pretty much had the same trigger points in my neck and shoulders for 6 years at least.

[Hypotonia Awareness @HypotoniaAware]

#hypermobility #triggerpoints #hypotonia

[Hypotonia Awareness @HypotoniaAware]

Sometimes hypotonia is invisible! People don’t always see the fatigue and instability.

[Hypotonia Awareness @HypotoniaAware]

Generalized Slowing #EEG

[Hypotonia Awareness @HypotoniaAware]

EEG results are in: No seizure activity! Although there is a non-specific focal abnormality of slowing in the left temporal area. He said he is not worried about this but would like to follow-up in April. The MRI doesn’t correlate with the EEG.

[Hypotonia Awareness @HypotoniaAware]

Focal Slowing #EEG