GlobalSkin

The International Alliance of Dermatology Patient Organizations is a global voice for skin patient-centred research, advocacy & support.

[GlobalSkin @IADPO]

☕ Join the GlobalSkin-Europe Summer Coffee Chat on June 19 (13:00 CET) and connect with fellow members across Europe.

📣 Member Event in Vienna: Sept 29
💶 14 travel bursaries available
🗓️ Apply by June 26

🔗 Details are in your inbox!

[GlobalSkin @IADPO]

📣 Save the Date: UNITE 2027! In one year, GlobalSkin Members will gather in Montreal, June 3–5, 2027, for connection, collaboration, and action. Join peers from around the world to learn, share, and help shape the future of skin patient advocacy.

#GSUNITE2027 #GlobalSkin

[GlobalSkin @IADPO]

June 1-7 is Hidradenitis Suppurativa (HS) Awareness Week. HS is a chronic inflammatory skin disease that can significantly impact physical health, mental wellbeing, employment, and quality of life.

Learn more: https://t.co/luCqw9CU2c

[GlobalSkin @IADPO]

The 2026 #GlobalSkin AGM is taking place June 23 and all relevant documents can be found in Members-only area. Also, profiles of eight candidates running for Board of Directors this year are now available. Details in your inbox. #AGM #BoardElection #Governance

[GlobalSkin @IADPO]

#GlobalSkin is at #PEOF2026 in Sevilla this week. CEO Jennifer Austin joins the panel “Elevating the Value of Patient Experience Data,” while Allison FitzGerald serves on the Organizing Committee. Together, we're advancing patient-centred healthcare. #PatientEngagement

[GlobalSkin @IADPO]

🌟 #FollowFriday 🌟 Spotlight: Psoriasis Canada @PsoriasisCan1 an org that Supports Canadians impacted by #psoriaticdisease through education, advocacy, resources & community connection.

Learn more: https://t.co/Jzn8nkFLtS

#GlobalSkinMembers #SkinAdvocacy #PatientAdvocacy #Der

[GlobalSkin @IADPO]

The May edition of the Members Matter Bulletin is here! Members, check out your inbox for the bulletin. Not yet a member? Join the #GlobalSkin community and connect with dermatology patient leaders from around the world. Learn more at https://t.co/bO6uoeH16W.

#Dermatology

[GlobalSkin @IADPO]

GlobalSkin is excited to attend #WCRSD2026 in Versailles, France, July 1–3, 2026! We look forward to seeing you there. Register for the congress here: https://t.co/Knd6RdWPDd

#GlobalSkin #RareDisease #Dermatology #WCRSD

[GlobalSkin @IADPO]

🌟 #FollowFriday Spotlight: @TheEDSociety, an org that supports people affected by #EDS & #HSD through advocacy, education, research & community connection in the #UK and beyond.

Learn more: https://t.co/8yFTyy4icW #PatientAdvocacy

[GlobalSkin @IADPO]

Today in Geneva, #GlobalSkin joined the @ILDSDerm , @Anesvad, @ILEPAntiLeprosy, and representatives from Côte d’Ivoire and Togo to co-host an official side event titled “From Resolution to Action: Implementing the Skin Diseases Resolution WHA78.15” at #WHA79

[GlobalSkin @IADPO]

Today at #WHA79, GlobalSkin CEO Jennifer Austin joined @IAPOvoice’s The Value Collection exhibition, sharing her son James’ hospital ID band to highlight the importance of coordinated, compassionate, people-centered care.

#PeopleCentredCare #GlobalSkin #SkinHealth

[GlobalSkin @IADPO]

#GlobalSkin CEO Jennifer Austin and Public Affairs Director Visnja Zaborski Breton are in Geneva for #WHA79, advancing implementation of the Skin Diseases Resolution, strengthening partnerships, and ensuring patient voices help shape global skin health policy.

#SkinHealth

[GlobalSkin @IADPO]

A reminder to GlobalSkin Members to register for the Closing Webinar of our Regional Engagement Workshop Series, taking place on May 28 from 9:00–10:30 AM EDT. For registration details, please check your email.

#GlobalSkin #RegionalEngagement #Webinar #SkinHealth #Dermatology

[GlobalSkin @IADPO]

Reminder: Join the upcoming #WHA79 Side Event online on May 21, 2026 (18:00–19:30 GMT+2) from anywhere in the world! Register to attend virtually: https://t.co/A6UY9vNk8D

#SkinHealth4TheWorld #GlobalHealth #Dermatology #SkinDiseases #ILDS

[GlobalSkin @IADPO]

Today is #GlobalPorphyriaDay! Let's join hands to advocate for better awareness, timely diagnosis, improved care, and stronger support for everyone impacted by this #RareDisease. Learn how you can play your part: https://t.co/4KebfBQEr3

#Porphyria

[GlobalSkin @IADPO]

May 17 is #NFAwarenessDay. Let’s raise awareness, share stories, support research, and help make NF more visible in our communities. Get involved: https://t.co/r2WVkwbnP6

#Neurofibromatosis #NF #EndNF #NFAwarenessMonth

[GlobalSkin @IADPO]

🌍 Attention GlobalSkin-Europe Community Member Bulletin out now!

📩All details in your inbox now!

Together, we continue strengthening patient voices across Europe. 💙

[GlobalSkin @IADPO]

May is #MyositisAwarenessMonth — a time for the myositis community to come together, raise awareness, and help others better understand this rare disease. Learn how you can play your part: https://t.co/qteREUpSGP

#MyositisAwareness #TheMyositisAssociation #MyTMA

[GlobalSkin @IADPO]

💡 Reminder: Applications for the 2026 World Atopic Eczema Day Fund close May 28 at 11:59 PM ET!

💰 Grants of up to $2,200 CAD available for WAED initiatives, including the NEW Advocating to Policymakers category.

📢 Toolkit now available. Funding is limited — apply now!

[GlobalSkin @IADPO]

World Patients Alliance is hosting a session on May 26 to explore how patient organizations can help identify barriers to care, influence policy, strengthen accountability, and improve access to healthcare services, medicines, and diagnostics. Register: https://t.co/St10plD4hz