We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ https://t.co/VhKhQrJx4S
Every ALS story puts a face to the disease and inspires action.
Whether you're living with ALS, caring for someone who is, or supporting a loved one, we want to hear your story.
Share it today: https://t.co/ZPftkjsjRN
Every Veteran deserves to live safely and independently at home.
The Autonomy for Disabled Veterans Act would increase funding for home accessibility modifications, helping disabled Veterans—including those living with ALS—adapt their homes.
Take action: https://t.co/1B54bFmviE
ACT for ALS is one step closer to being reauthorized! 🎉
Each vote YOU helped secure supports the largest bucket of federal ALS funding in history: ACT for ALS.
Thank your legislators for supporting ACT for ALS: https://t.co/wrmx1pypaZ
The House and Senate have both passed their versions of ACT for ALS! 💙
This progress is thanks to strong bipartisan leadership. We’re looking forward to continued momentum to ensure ACT for ALS is signed into law as soon as possible! Thank our champions: https://t.co/wrmx1pypaZ
💡 ALS research moves forward because our community chooses hope—and action 💙
ALS Signal, designed for and by people impacted by ALS, makes it easier to explore ongoing and upcoming clinical trials.
Explore ALS Signal today: https://t.co/kIalfksJrM
Justice for ALS Veterans must pass this Congress.
Surviving spouses of ALS Veterans are denied DIC benefits because the law requires the Veteran to have lived 8+ years after diagnosis. Most people with ALS live just 2–5 years. Fix this broken policy: https://t.co/iok5N4qCZd
🚨 WE DID IT!
The Senate passed their version of ACT for ALS last night! We're one step closer to reauthorizing this historic piece of legislation.(Shout out to ACT for ALS coauthors and I AM ALS cofounders @bsw5020 and @sabrevaya!) Thank your lawmakers: https://t.co/wrmx1pypaZ
"One day you are fine, and the next your whole world comes to a halt. You can't see past the day after he is gone. The second you think about anything 'after,' an overwhelming feeling of guilt takes over that you get to live"—Darlene | caring for someone living with ALS
"Hope changed things for Jay." 💙
Thanks to the House's vote to reauthorize ACT for ALS, we're one step closer to sustaining Expanded Access Programs for families facing ALS. Join us in thanking your Representative: https://t.co/DF1a2nrg2F
@houseofwoodcock Dan talked about this himself in this piece, where he names the therapy he credits with giving him back his voice: https://t.co/l2aCNSJMCz
You can also check out our clinical research dashboard: https://t.co/W9woak2HZg
"I am living proof of the power of the medicine and the innovation... Before ACT for ALS, there was nothing available to any of us. Now we all have hope"—Dan Tate, Jr., I AM ALS Board Member, living with ALS
Ask your Senators to pass ACT for ALS: https://t.co/mr09LldAKa
ACT for ALS is in the Senate, and we're so close!
A Senate vote is expected soon. Then we'll be just one signature away from 5 more years of accelerated progress toward ending ALS.
Ask your Senators to support ACT for ALS: https://t.co/mr09LldAKa
ALS won't wait—and neither should we.
Advocate.
Donate.
Volunteer.
Every action moves us one step closer to a cure.
Take action today: https://t.co/nMs3xuJEDJ
Thank you for your advocacy, Sandra & family! 💙
Living with ALS or caring for someone who is? You don't have to figure it out alone.
I AM ALS Peer Mentors offer connection, encouragement, and self-advocacy tips from someone who shares similar experiences.
Apply to be matched with a mentor: https://t.co/ynhY6F1PxU
It takes a community to end ALS.
Every action moves us one step closer. Join us today by taking just a minute to make a difference.
➡️ https://t.co/nMs3xuJEDJ
Thank you for your advocacy, Kelly & family! 💙
Community—we're closer than ever to reauthorizing ACT for ALS.
But time is running out. ACT for ALS expires next month.
Our advocacy got us this far. Let's keep the pressure on until this bill is law. Ask your Senators to support ACT for ALS: https://t.co/mr09LldAKa
ACT for ALS explores multiple pathways to understanding and eventually treating ALS at once.
That's why we call it the single fastest path to a world without ALS. Ask your Senators to pass ACT for ALS: https://t.co/mr09LldAKa #ACTforALS