ICOSEP

Uniting the global endocrine community to improve awareness, diagnosis & care. Because every child’s growth matters! Sept 20th #ChildGrowthAwarenessDay

[ICOSEP @ICOSEPorg]

🌍 Uniting for better endocrine health worldwide!
ICOSEP connects medical societies, patient orgs & advocates to improve early diagnosis and care for children with endocrine conditions.
Learn more ➡️ https://t.co/rpRqhnfXn5

🧬 Why growth matters:
A child’s growth isn’t just about height — it’s a key sign of overall health. Slower or faster growth can signal underlying endocrine or systemic issues.
Awareness saves time. Early diagnosis saves lives.

💡 What ICOSEP does:
✅ Builds global networks linking doctors & patient groups
✅ Shares multilingual growth awareness resources

🤝 Join the movement!
Membership is free — and open to all medical societies, advocacy groups, and healthcare professionals dedicated to endocrine health.
Together, we amplify the global voice for children’s growth.

#GrowthAwareness #ICOSEP #MedicalCommunity #Endocrinology #GrowthAwarenessDay #PediatricHealth #EndocrineHealth #GlobalHealth #ChildrensGrowth #fyp

[ICOSEP @ICOSEPorg]

Your voice matters more than you think. 💬

Do you feel heard and understood during your medical visits? Your experience can help shape better care for individuals with growth disorders.
By taking just a few minutes to complete our survey, you can help improve communication, care coordination, and access to services for others.

👉 Take the survey in your preferred language: https://t.co/RI5nYqarKd

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkFRPw

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #PatientCare

[ICOSEP @ICOSEPorg]

How well is your care team supporting you? 💬

Your experience matters. From communication to care coordination, every interaction plays a role in the quality of care you receive.

By sharing your feedback, you can help improve support, understanding, and access to services for individuals with growth disorders.

It only takes a few minutes to make a meaningful impact.

👉 Take the survey in your preferred language:
https://t.co/RI5nYqaZzL

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkGpF4

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #BetterCare

[ICOSEP @ICOSEPorg]

Better care starts with your voice. 💬

If you or someone you care for has experience with growth disorder care, your feedback can make a real difference. From communication to care coordination, your insights help shape more effective and supportive healthcare.

It only takes a few minutes to share your experience — and your input can help improve care for others.

👉 Take the survey in your preferred language:
https://t.co/RI5nYqaZzL

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkGpF4

#YourFeedbackMatters #GrowthDisorders #PatientExperience #HealthcareImprovement #BetterCare

[ICOSEP @ICOSEPorg]

Your voice matters. 💬

If you or someone you care for has experience with growth disorder care, your feedback can help improve communication, care coordination, and access to services worldwide.

It only takes a few minutes to make a meaningful impact.

👉 Take the survey in your preferred language:
https://t.co/RI5nYqaZzL

Together, we can help improve care for individuals with growth disorders.

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkGpF4

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #GlobalHealth

[ICOSEP @ICOSEPorg]

Your voice matters more than you think. 💬

Do you feel heard and understood during your medical visits? Your experience can help shape better care for individuals with growth disorders.

By taking just a few minutes to complete our survey, you can help improve communication, care coordination, and access to services for others.

👉 Take the survey in your preferred language: 🔗https://t.co/RI5nYqarKd

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkFRPw

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #PatientCare

[ICOSEP @ICOSEPorg]

Your voice matters. 💬

If you or someone you care for has experience with growth disorder care, your feedback can help improve communication, care coordination, and access to services worldwide.

It only takes a few minutes to make a meaningful impact.

👉 Take the survey in your preferred language:
🔗https://t.co/RI5nYqaZzL

Together, we can help improve care for individuals with growth disorders.

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkGpF4

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #GlobalHealth

[ICOSEP @ICOSEPorg]

How well is your care team supporting you? 💬

Your experience matters. From communication to care coordination, every interaction plays a role in the quality of care you receive.

By sharing your feedback, you can help improve support, understanding, and access to services for individuals with growth disorders.

It only takes a few minutes to make a meaningful impact.

👉 Take the survey in your preferred language:
https://t.co/RI5nYqarKd

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkFRPw

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #BetterCare

[ICOSEP @ICOSEPorg]

Better care starts with your voice. 💬

If you or someone you care for has experience with growth disorder care, your feedback can make a real difference. From communication to care coordination, your insights help shape more effective and supportive healthcare.

It only takes a few minutes to share your experience — and your input can help improve care for others.

👉 Take the survey in your preferred language:
🔗https://t.co/RI5nYqarKd

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkFRPw

#YourFeedbackMatters #GrowthDisorders #PatientExperience #HealthcareImprovement #BetterCare

[ICOSEP @ICOSEPorg]

Your voice matters more than you think. 💬

Do you feel heard and understood during your medical visits? Your experience can help shape better care for individuals with growth disorders.
By taking just a few minutes to complete our survey, you can help improve communication, care coordination, and access to services for others.

👉 Take the survey in your preferred language: https://t.co/RI5nYqaZzL

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
https://t.co/8N1GLkGpF4

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #PatientCare

[ICOSEP @ICOSEPorg]

Wonderful to see Cinzia Sacchetti and Letizia Licini from @AfadocOnlus representing the Redefining ISS team at the European Conference on Rare Diseases in Prague. Cinzia is lead, presenter for our poster on the key unmet needs of children living with ISS and our recommendations to close these critical gaps.

A huge thank you to every individual and organization whose collaboration made Redefining ISS possible. We're just getting started! Association Grandir @magicfoundation , Marco Cappa, Alexander Jorge

@novonordisk To read more about Redefining ISS, visit our website: https://t.co/4yv4AmgTDI

[ICOSEP @ICOSEPorg]

We're pleased to share that one of ICOSEP's patient organization partners, @AfadocOnlus , will be presenting a poster, "Redefining ISS: Patient Led Insights Driving Transformative System Change in Idiopathic Short Stature," at the 13th European Conference on Rare Diseases and Orphan Products (ECRD), taking place in Prague from June 3rd - 4th, 2026.

This work highlights the work of our Redefining ISS team, showing how patient and caregiver experiences can help drive meaningful improvements in recognition, diagnosis, family decision-making, and psychosocial support for children living with Idiopathic Short Stature (ISS).

We look forward to sharing these findings with the global endocrine community and continuing conversations about improving care and outcomes for families affected by ISS.

The Redefining ISS: Improving Confidence and Clarity initiative was developed in collaboration with and funded by Novo Nordisk, while the resulting recommendations reflect the views of ICOSEP and participating patient organizations.

To learn more, please click on this link: https://t.co/xCIx065OVT...
Thank you!

[ICOSEP @ICOSEPorg]

We're pleased to share that one of ICOSEP's patient organization partners, @AfadocOnlus , will be presenting a poster, "Redefining ISS: Patient Led Insights Driving Transformative System Change in Idiopathic Short Stature," at the 13th European Conference on Rare Diseases and Orphan Products (ECRD), taking place in Prague from June 3rd - 4th, 2026.

This work highlights the work of our Redefining ISS team, showing how patient and caregiver experiences can help drive meaningful improvements in recognition, diagnosis, family decision-making, and psychosocial support for children living with Idiopathic Short Stature (ISS).

We look forward to sharing these findings with the global endocrine community and continuing conversations about improving care and outcomes for families affected by ISS.

The Redefining ISS: Improving Confidence and Clarity initiative was developed in collaboration with and funded by Novo Nordisk, while the resulting recommendations reflect the views of ICOSEP and participating patient organizations.

To learn more, please click on this link: https://t.co/xCIx065OVT...
Thank you!

[ICOSEP @ICOSEPorg]

🌎Change is happening for children with idiopathic short stature (ISS) and you can be part of it.

📄🚀Earlier this year we launched our Redefining ISS report to call for change from people across the healthcare system, and now we’re excited to build on that momentum. Coming soon is a national consensus letter calling for better recognition of ISS worldwide, stay tuned to get involved! 🤝💙

✅In the meantime, find out more about the Redefining ISS project: 🔗https://t.co/nHyymvSuNd

#RedefiningISS
#idiopathicshortstature
#growthawareness
#icosep

[ICOSEP @ICOSEPorg]

Better care starts with your voice. 💬

If you or someone you care for has experience with growth disorder care, your feedback can make a real difference. From communication to care coordination, your insights help shape more effective and supportive healthcare.

It only takes a few minutes to share your experience — and your input can help improve care for others.

👉 Take the survey in your preferred language:

🇺🇸 English: https://t.co/xrThnJ6iwc

🇮🇹 Italian: https://t.co/HwHE4sS9Y8

🇩🇪 Germany: https://t.co/lRAYPuWpB0

🇪🇸 Español: https://t.co/t0qvJoTSuL

🇫🇷 Français: https://t.co/suemZBxxI0

🇰🇷 한국어: https://t.co/K6uvEmGQQg

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
Facebook - https://t.co/CKX2p5AbCA
Instagram - @scientific_seminars_foundation
Linkedin - https://t.co/RDwowKpz9N
Twitter/X - @ScientificSemi1

#YourFeedbackMatters #GrowthDisorders #PatientExperience #HealthcareImprovement #BetterCare

[ICOSEP @ICOSEPorg]

Your voice matters more than you think. 💬

Do you feel heard and understood during your medical visits? Your experience can help shape better care for individuals with growth disorders.
By taking just a few minutes to complete our survey, you can help improve communication, care coordination, and access to services for others.

👉 Take the survey in your preferred language:

🇺🇸 English: https://t.co/xrThnJ6QlK

🇮🇹 Italian: https://t.co/HwHE4sSHNG

🇩🇪 Germany: https://t.co/lRAYPuWXqy

🇪🇸 Español: https://t.co/t0qvJoUqkj

🇫🇷 Français: https://t.co/suemZBy5xy

🇰🇷 한국어: https://t.co/K6uvEmHoFO

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
Facebook - https://t.co/CKX2p5AJs8
Instagram - @scientific_seminars_foundation
LinkedIn - https://t.co/RDwowKq6Zl
Twitter/X - @ScientificSemi1

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #PatientCare

[ICOSEP @ICOSEPorg]

Your voice matters. 💬

If you or someone you care for has experience with growth disorder care, your feedback can help improve communication, care coordination, and access to services worldwide.

It only takes a few minutes to make a meaningful impact.

👉 Take the survey in your preferred language:

🇺🇸 English: https://t.co/xrThnJ6iwc

🇮🇹 Italian: https://t.co/HwHE4sS9Y8

🇩🇪 Germany: https://t.co/lRAYPuWpB0

🇪🇸 Español: https://t.co/t0qvJoTSuL

🇫🇷 Français: https://t.co/suemZBxxI0

🇰🇷 한국어: https://t.co/K6uvEmGQQg

Together, we can help improve care for individuals with growth disorders.

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
Facebook - https://t.co/CKX2p5AbCA
Instagram - @scientific_seminars_foundation
Linkedin - https://t.co/RDwowKpz9N
Twitter/X - @ScientificSemi1

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #GlobalHealth

[ICOSEP @ICOSEPorg]

Last year, 70% of families told us the impact of idiopathic short stature on their child's life is not properly recognized. This has to change.

We will soon be launching a national consensus letter calling on policymakers to recognize ISS as a medical condition. Stay tuned for updates!

In the meantime, find out more about the Redefining ISS project: https://t.co/nHyymvSuNd

[ICOSEP @ICOSEPorg]

How well is your care team supporting you? 💬

Your experience matters. From communication to care coordination, every interaction plays a role in the quality of care you receive.

By sharing your feedback, you can help improve support, understanding, and access to services for individuals with growth disorders.

It only takes a few minutes to make a meaningful impact.

👉 Take the survey in your preferred language:

🇺🇸 English: https://t.co/xrThnJ6iwc

🇮🇹 Italian: https://t.co/HwHE4sS9Y8

🇩🇪 Germany: https://t.co/lRAYPuWpB0

🇪🇸 Español: https://t.co/t0qvJoTSuL

🇫🇷 Français: https://t.co/suemZBxxI0

🇰🇷 한국어: https://t.co/K6uvEmGQQg

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:

Facebook - https://t.co/CKX2p5AbCA

Instagram - @scientific_seminars_foundation

Linkedin - https://t.co/RDwowKpz9N

Twitter/X - @ScientificSemi1

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #BetterCare

[ICOSEP @ICOSEPorg]

Better care starts with your voice. 💬

If you or someone you care for has experience with growth disorder care, your feedback can make a real difference. From communication to care coordination, your insights help shape more effective and supportive healthcare.

It only takes a few minutes to share your experience — and your input can help improve care for others.

👉 Take the survey in your preferred language:

🇺🇸 English: https://t.co/xrThnJ6iwc

🇮🇹 Italian: https://t.co/HwHE4sS9Y8

🇩🇪 Germany: https://t.co/lRAYPuWpB0

🇪🇸 Español: https://t.co/t0qvJoTSuL

🇫🇷 Français: https://t.co/suemZBxxI0

🇰🇷 한국어: https://t.co/K6uvEmGQQg

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
Facebook - https://t.co/CKX2p5AbCA
Instagram - @scientific_seminars_foundation
Linkedin - https://t.co/RDwowKpz9N
Twitter/X - @ScientificSemi1

#YourFeedbackMatters #GrowthDisorders #PatientExperience #HealthcareImprovement #BetterCare

[ICOSEP @ICOSEPorg]

Your voice matters more than you think. 💬

Do you feel heard and understood during your medical visits? Your experience can help shape better care for individuals with growth disorders.
By taking just a few minutes to complete our survey, you can help improve communication, care coordination, and access to services for others.

👉 Take the survey in your preferred language:

🇺🇸 English: https://t.co/xrThnJ6QlK

🇮🇹 Italian: https://t.co/HwHE4sSHNG

🇩🇪 Germany: https://t.co/lRAYPuWXqy

🇪🇸 Español: https://t.co/t0qvJoUqkj

🇫🇷 Français: https://t.co/suemZBy5xy

🇰🇷 한국어: https://t.co/K6uvEmHoFO

This initiative is supported by Scientific Seminars International Foundation. Give Scientific Seminars a follow:
Facebook - https://t.co/CKX2p5AJs8
Instagram - @scientific_seminars_foundation
LinkedIn - https://t.co/RDwowKq6Zl
Twitter/X - @ScientificSemi1

#YourVoiceMatters #PatientExperience #GrowthDisorders #HealthcareImprovement #PatientCare