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EMIF
@IMI_EMIF
Improving access to human health data enabling new insights into diseases and treatments
#EMIF
#RWE
Joined January 2016
25
Following
231
Followers
93
Posts
IMI_EMIF
retweeted
EFPIA
@EFPIA
over 8 years ago
Thanks to the development of a mobile application,
@IMI_EMIF
identified 10 plasma proteins associated with disease severity & progression for
#Alzheimer
’s disease
#CarryTheTorch
https://t.co/cGVUtIAy3c
EMIF
@IMI_EMIF
almost 9 years ago
Closure of
@IMI_EMIF
- can we create an inclusive system with Digital literacy & Collaboration- it's already happening in Estonia
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
How do we link all the data sets to avoid stagnant silos ? A new generation of rules and regulations and Infrastructure
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
We want to achieve "a Learning Healthcare System" @johanvanderlei
#EMIF17
Who to follow
IHI Prominent
@IHI_PROMINENT
This project has received funding from the Innovative Health Initiative Joint Undertaking (JU) under grant agreement No 101112145. https://t.co/s2dj67Hojx
JPND Research
@JPNDeurope
JPND is the largest global research initiative aimed at tackling the challenge of neurodegenerative diseases.
George Tofaris
@GeorgeTofaris
MRC Senior Clinical Fellow @The_MRC. Molecular neurodegeneration @NDCNOxford and @KavliOxford. Professor and Consultant in Neurology @UniofOxford @OUHospitals
EMIF
@IMI_EMIF
almost 9 years ago
The illusion of a lot of data - but still silos to overcome - and you need LOCAL data - Johan van der Lei
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Johan van der Lei on harnessing health data - Netherlands style -
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Lili Milani of the Estonian Genome Project - impressive Bio-banking from Estonia as an example for Europe
#EMIF17
IMI_EMIF
retweeted
European Patients' Forum
@eupatientsforum
almost 9 years ago
Our Secretary General
@NABedlington
on patient-centred data and reported outcomes at the
#emif17
#Tallinn
EMIF
@IMI_EMIF
almost 9 years ago
Nicola Bedlington
@eupatientsforum
focuses on Patient reported outcome measures from the Patient Perspective
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Session 4
@IMI_EMIF
- Harnessing Health Data for Managing Patient Benefit/Risk - what new Processes do we need ?
#EMIF17
IMI_EMIF
retweeted
Bettina Ryll
@BettinaRyll
almost 9 years ago
'Crap research remains crap research, independent of who funds it' Lembit Rägo
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Lembit Rägo and the CIOMS perspective - we all agree "the Rationale" but people are not rational
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Alison Bourke @QuintilesIMS What is it about data that makes sharing more complex
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Participants WANT to be re-contacted in Data sharing - Pieter Jelle Vasser
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Pieter Jelle Visser Health Data sharing in Alzheimer's - valid research question + Acknowledgement + funding
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Great session 2 - but the question is how do we scale up from the great examples given - encouraging
#EMIF17
IMI_EMIF
retweeted
Duane Schulthess
@DuaneSchulthess
almost 9 years ago
Danius Pavalkis discusses open access to patient health data for improved EU research.
@IMI_EMIF
#openinnovation
#emif17
EMIF
@IMI_EMIF
almost 9 years ago
"Lets support "Team Science" to promote research inputs from each country" Dainius Pavalkis
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
"two and a half million European scientific publications per year" Dainius Pavalkis
#EMIF17
EMIF
@IMI_EMIF
almost 9 years ago
Dainius Pavalkis - Open innovation, Open Science & Open to the world
#EMIF17
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