Liam Galvin

Board Member - Irish Lung Fibrosis Association (@ILFA_Ireland) and
European Pulmonary Fibrosis Federation (@EU_IPFF), Patient Co-Chair @ErnLung,

[ILFA Ireland @ILFA_Ireland]

@ILFA_Ireland calls on Government, HSE and relevant stakeholders to prioritise lung transplantation as a matter of urgency. This includes sustained investment in transplant services, ongoing donor awareness campaigns, & transparent reporting/accountability https://t.co/v3xSnKSRGS

[European Lung Foundation @EuropeanLung]

Today is #WorldAsthmaDay! 💙 ELF provides free, reliable information about #Asthma in 9 languages to support people living with the condition around the world.

Learn more: https://t.co/nLCXIYCXQ2

[Rare Disease Clinical Trial Network, Ireland @rare_trial]

Huge congrats Sarah Forde for reaching the finals of #ENGAGE2026! Sarah presented "A Faulty Switch: How One Cell Trips the Lung Circuit" to a packed house. Well done to Sarah and her supervisors on their rare disease research.

[European Lung Foundation @EuropeanLung]

Today is Alpha‑1 Awareness Day 💙

Learn more about alpha-1 antitrypsin deficiency (#AATD), a rare genetic lung condition and help raise awareness. Earlier understanding can lead to earlier diagnosis and improved support.

🔗: https://t.co/gVSWWABhxO

[ILFA Ireland @ILFA_Ireland]

The next online ILFA Patient Information Day will take place on Tuesday, 31st March at 2pm. Please register via the link below.
https://t.co/jrkheGZthm

[ERS publications @ERSpublications]

European Respiratory Journal: Fan-to-face therapy is a simple, feasible, low-cost, low-resource nonpharmacological approach to reduce exertional breathlessness during exercise training in adults with chronic lung disease https://t.co/G8S2OLdGiO

[Rare Disease Clinical Trial Network, Ireland @rare_trial]

RDCTN and @UCDMedicine were delighted to host the inaugural PH-ILD Forum in collaboration with @UnivParisSaclay and Royal Brompton Hospital/@imperialcollege. The meeting brought together global experts from 14 countries!

[Liam Galvin @IPFthurles]

Great news for the patient community

[James D Chalmers @ProfJDChalmers]

Approved today: the first ever approved therapy for bronchiectasis in Europe
Congratulations investigators, patients and Insmed
Science changes lives
European Commission Approves BRINSUPRI™ (brensocatib) as the First and Only Treatment Approved for Non-Cystic Fibrosis Bronchiectasis in the European Union - Nov 18, 2025
https://t.co/8qP8JEYEXd

[ERS @EuroRespSoc]

🚨Free educational opportunity: apply now for the ERN-LUNG Academy 2026

We are calling on medical professionals across the EU to apply for the opportunity to develop their knowledge of rare respiratory diseases.

Apply by 30 November, 2025 – learn more: https://t.co/SXpZMF72lA

[European Lung Foundation @EuropeanLung]

The first patient-centered studio session at #ERSCongress! 💙

Co-chaired by patient representatives Helen Parks and Steve Jones, this busy session explored why many patients struggle to access pulmonary rehabilitation globally.

[Liam Galvin @IPFthurles]

My thanks to MEP @JerkovicRomana & the European Respiratory Society for this timely event on "Scaling up EU Prevention policies for Respiratory Health" so important for the #pulmonaryfibrosis & wider #Respiratory Patient community #CurePF

[Trevi Therapeutics @TreviThera]

We are pleased to share the positive topline results from the Phase 2b CORAL Trial of Haduvio in Patients with Idiopathic Pulmonary Fibrosis Chronic Cough.  

Join our conference call today, June 2nd, at 8:30 a.m. ET. 

Read the press release: https://t.co/SP3DSq7Pbr

$TRVI

[Pilar Rivera-Ortega @PilarRiveraOrt1]

Dear ILD community,

You are cordially invited to this webinar organized by @RespirEffect (REG) tomorrow June 5th at 4 pm BST - UK time (5 pm CEST) 👇

#Screening #EarlyDiagnosis #ILD #PulmonaryFibrosis #PrimaryCare

🫁🌎

[Phil Molyneaux @drphilmol]

Fantastic news for all our patients with IPF who suffer with cough! An overall 43% reduction in cough counts, similar improvement in patient reported cough and benefits seen in 2 weeks. We look forward to the phase 3 study!

[Toby Maher @TobyMMaher]

Great to see publication of the first positive phase 3 trial in patients with IPF. This represents an important step forward in the treatment of this terrible disease. #cureipf

[Liam Galvin @IPFthurles]

Great session on "Enhancing Patient Advocacy through Evidence Based Practices" led by @anmari_russell at the @EU_IPFF 's 1st European PF Patient Advocacy Forum #CurePF

[Liam Galvin @IPFthurles]

Preparations underway for the 1st European PF Patient Advocacy Forum - 4 days of learning & collaborative discussions led by the European #PulmonaryFibrosis Federation @EU_IPFF #CurePF

[Liam Galvin @IPFthurles]

@ErnLung 's Elisabeth Humbert-Dorfmüller talking Registries & the ERN-Lung Academy in Dublin at the @rare_trial conference

[Liam Galvin @IPFthurles]

Attending the 2nd Irish Rare Disease Clinical Trial Network Conference representing @ILFA_Ireland and the @EU_IPFF - kicking off with sessions on ERN Registries

[ERN-LUNG @ErnLung]

ERN-LUNG's network coordination team member Gergely Meszaros giving an insight on most recent and ongoing communication and dissemination activities