IIH Awareness

This page is intended to raise awareness of Idiopathic Intracranial Hypertension. Original posts and reposts of IIH Warriors, Care Providers, Doctors, and More

[Mark @MarkHeadache]

My #IIH study showed that "normal" #BMI is uncommon at presentation 3.7% but should be considered.
Patients had worse visual fields at baseline but similar papilloedema.
Long term visual and headache outcomes were similar.
@IIHUK @BrainLabBhamUk @DrMollan
https://t.co/k3fd4HTBUr

[IIH Hub @iih_hub]

Unveil the truth about IIH with our Myth Busting Alert! 🌈💪 Swipe through to dispel misconceptions, grasp realities, and empower your well-being. 🚀✨ Your journey to wellness begins with understanding. #IIHMyths #WellnessJourney #DebunkTheMisconceptions

[Tirzah Kijzer @Kijzer]

Struggling with chronic pain from migraine and Idiopathic Intracranial Hypertension (IIH), Laura McKee put exercise near the bottom of her priority list.

Now she's swimming with a renewed motivation to live her best life. 🏊‍♀️
https://t.co/ito54rCyzX https://t.co/qi2DsFnVdL

[Restore Vision @RestoreOptic]

How Idiopathic Intracranial Hypertension Affects Sight https://t.co/VoRYhOslNy via @YouTube

[Neurology Journal @GreenJournal]

This study investigated the possible association between glymphatic outflow and extent of transverse sinus stenosis in patients with idiopathic intracranial hypertension. Learn more: https://t.co/m97odkZ0t3

#IIH #NeuroTwitter

[IIH Awareness @IihAwareness]

#iihawareness #iih #idiopathicintracranialhypertension #spoonie #ableism #disability #csf #fluidbuildup #spinaltap #digitalart

[IIH Awareness @IihAwareness]

For those with shunts have you found your symptoms of IIH to improve? If so by how much percent would you say? #iih #iihawareness #chronicillness #spoonie

[🦋Erin ‘O Gehling-Üporsky🦋 @erinuporsky]

SSA needs to act now! I know if we come together we could make this happen! Please take just a minute to sign & share today; Grant Idiopathic intracranial hypertension IIH/PTC a Brain Injury as a legal disability! - Sign the Petition! https://t.co/YkhJ37DJ4M via @Change

[IIH Hub @iih_hub]

The Impact of Weight Bias and Stigma for Patients with Idiopathic Intracranial Hypertension (IIH) with Sofia Cienfuegos, PhD

Join us for our next Practitioner Webinar Series on June 12 at 6:00 PM ET

Registration is open and free. Reserve your spot >>
https://t.co/kTuhnLpKsG

[RMR @MedinaRiojaMD]

Idiopathic intracranial hypertension (IIH): a spectrum? 🥸🧠🤔

WOP: without papilledema.

#Neuro #Neurology #NeuroTwitter #EndNeurophobia
#Education #Headache #IHH

[IIH Awareness @IihAwareness]

For those with shunts have you found your symptoms of IIH to improve? If so by how much percent would you say? #iih #iihawareness #chronicillness #spoonie

[Santi™️🫡🤘 @USFpunDaddy]

Hands down, this is the best advice I can share in twitter! #HurricaneIan #Ian

[MigraineCollective @MigraineColl]

Just a reminder we are chatting LIVE this Wednesday!

[IIH Awareness @IihAwareness]

September is IIH Awareness Month!

[IIH UK @IIHUK]

~ SAVE THE DATE ~

Our online Patient conference webinar will take place on Wednesday 14th September 9:45am - 3:00pm

Speaker details and topics will be shared soon.

[Translational Brain Science Research Birmingham UK @BrainLabBhamUk]

Exiting times: treatment developments for #IIH with GLP-1RA—> Presented at Australian New Zealand Headache Society @AusNZHeadSoc next to phase 3 trial @DrMollan @ArmyBrainDoc @IIHUK @NANOSTweets @EHF_Official @BHPComms

[IIH Awareness @IihAwareness]

#iihawareness #iih #idiopathicintracranialhypertension #spoonie #ableism #disability #csf #fluidbuildup #spinaltap #digitalart

[IIH Awareness @IihAwareness]

Our brains can all be a little wonky at times #iih #findacure #idiopathicintracranialhypertension #spoonie #chronicillness #chroniclain #brainfog #neurology #research

[IIH Awareness @IihAwareness]

What are your challenges after being diagnosed with IIH? #iih

[IIH UK @IIHUK]

Our Obesity Stigma in IIH survey was just one of three posters entered into #EUNOS2022
You can read our write up from this survey on our website here: https://t.co/nubRPh5OMI