Healthy Immune & Human Tolerance thru inclusive-creative-learned Im-Hu Behaviors for a brilliant, loving u/us/world of diversity; Board-Cert Immunologist
🌍 We’re bringing together top healthcare experts from across the globe to lead discussions that matter to you at the 2026 National Conference.
View the lineup here: https://t.co/UZhib1YFCK
🧬 Genetic counseling is a process that helps individuals and families understand the likelihood of a genetic condition and what that risk may mean for them.
For families affected by #PrimaryImmunodeficiency, genetic counseling can provide clarity, guide decisions about genetic testing, and support earlier diagnosis and treatment.
Understanding your family history isn’t just information - it can be lifesaving. 💙
#GeneticCounseling #PrimaryImmunodeficiency #GeneticTesting #PIAwareness
📆 Mark your calendars! Walk & Community Days is returning to Philadelphia on Saturday, September 12. You don't want to miss one of our largest walks. Not in the area? Events are coming to Milwaukee, Boston, Tampa, Seattle, San Antonio, and a virtual walk. https://t.co/JsyTeOcAXC
Pediatric immunologist Dr. Mark Ballow recently concluded his tenure with the Immune Deficiency Foundation (IDF). Ballow served on the Medical Advisory Committee starting in 2010 before transitioning to medical director in 2017. https://t.co/4CWapv5Mz3
16 years ago today, the Lazarus Effect premiered on HBO. The documentary, shot in Zambia, showcases the incredible impact that ARV medication can have on people living with HIV.
Saw a patient today with a hemoglobin of 1.9 g/dL. For context, a level that low is almost incompatible with normal consciousness, but she walked right into the clinic on her own feet.
For three long years, she lived with crushing weakness and since last 6 months breathlessness from just walking across a room. Why didn’t she get help sooner? At first, it was because the kids had crucial school exams and later her husband was reluctant to deal with the hassle of a hospital admission.
Her health was treated as a background inconvenience.
When we dug deeper, it got worse. A year ago, her Hb was 6.4 g/dL. A doctor explicitly told them she needed immediate admission. The family refused, walked out with a basic strip of iron tablets, she took them for two weeks, forgot about them, and nobody in the house ever bothered to check on her or remind her.
She didn't even come to the hospital today because of the air hunger. She came because her periods had completely stopped for months. Her body was so profoundly starved of iron and oxygen that it literally shut down her reproductive axis just to divert what little blood she had left to her heart and brain.
It’s completely heartbreaking. A woman will literally bleed her body dry, gasp for air for years and keep working silently, only to be brought to a doctor when her normal functioning stops.
Please check on the women in your homes. Stop letting them normalize chronic exhaustion.
Lyle Gittens (108) and Eleanor Gittens (107), a beautiful Black couple from Miami, Florida, are celebrating over 83 years of marriage.
Married in 1942, they hold the Guinness World Record as the world’s oldest living married couple.👏🏿❤️
For many people with primary immunodeficiency, the 2026 National Conference will be the first time they meet someone who's also diagnosed. Are you looking for a community that just gets it? Join us in San Antonio June 25-27. https://t.co/buzPz4SVae
It's not uncommon for a person with primary immunodeficiency (PI) to manage physical and mental health conditions. Managing your mental health can help ease the stress of living with a serious chronic healthcare condition! Help us raise awareness by sharing this post. 🦓 💙
Help us prepare for Advocacy Day, #PICommunity! This year, we're advocating for strong federal vaccine policy and H.R. 8538, the PI Post Acute Access Act. Use our Action Alert system to tell your legislators why you support these priorities: https://t.co/jiA0FBe81o.