Inclusive Trials

Solving health inequalities by making trials work for everyone. Sharing relevant research and discussions to support inclusive trials. Led by @drheidirgreen.

[Trial Forge @Trial_Forge]

We've added a lot more examples of completed NIHR INCLUDE Ethnicity Frameworks to the website, courtesy of the CSO-funded STRIDE project.

Hopefully these will help trialists to complete Frameworks for they own trials:

https://t.co/MF5Fs06Dt7

[Dr Addy Adelaine @AddyAdelaine]

Sheffield Uni engaged me and others in the most thoughtful way, which allowed us the time space & safety for thoughtful conversations. I didnt lead the work, but it's a good example of co-creation with marginalised academics. A rare & enjoyable experience, come find out more

[Trial Forge @Trial_Forge]

If you are collecting ethnicity data in a trial, have a look at the recommendations from the INCLUDED project on how to do this well:

https://t.co/nGcJFLkdyg

[Inclusive Trials @InclusiveTrials]

Yes to this ⬇️

[Victoria Shepherd @VickyLShepherd]

At @britgerontology #bsg2023 conference & interested in #CareHome research? Tomorrow @BENocivelli is presenting her review of barriers/facilitators to including residents in research, including recommendations for researchers
@ResearchWales @CTRCardiffUni @PRIMECentre @DPMRes

[Inclusive Trials @InclusiveTrials]

Inclusive trials is the order of the day everyday at @COUCHhealth_ 🥳

[COUCH Health @COUCHhealth_]

We're excited to announce that @drheidirgreen, a leading figure in #healthresearch, has joined the team as Director of Health Research Equity. Find out how she'll be driving forward strategies and initiatives to make health research equitable for all:
https://t.co/LU6zCxyavX

[Shaun Treweek @shauntreweek]

@EgalityHealth is offering a 3-month community engagement internship to support their work on improving diversity in research.

More at https://t.co/p0aTMIOWmD

Deadline 7th July.

[Inclusive Trials @InclusiveTrials]

Glad to see these conversations happening. Recommendations from the INCLUDED project are coming soon and, we hope, will contribute to improvements.
https://t.co/RrUXyTHcz9
@drheidirgreen @COUCHhealth_ @shauntreweek @hsru_aberdeen @Ratna_Sohanpal @pctuqmul @EgalityHealth

[Inclusive Trials @InclusiveTrials]

Great piece from @wellcometrust on the problem with ethnicity categories in UK health data -
"Ethnicity categories in UK healthcare are inconsistent and not always accurate. This has real-world consequences."
Read or listen to the full piece here ⬇️
https://t.co/7dMPfeg7sE

[MESSAGE (Medical Science Sex & Gender Equity) @MESSAGE_TGI]

Why is @MESSAGE_TGI an important project for biomedical research in the UK? #sexandgenderdifferences case study: Diabetes
A short🧵 ​1/

[MESSAGE (Medical Science Sex & Gender Equity) @MESSAGE_TGI]

Fantastic to read such comprehensive & clear guidance by @ChantalRytz et al on improving inclusion of trans and non-binary individuals in cardiovascular research.

Many suggestions which could be applied in other fields too - highly recommend reading!

🔗https://t.co/RnAhzoGspA

[Trial Forge @Trial_Forge]

Including older people in health and social care research: new recommendations based on the NIHR INCLUDE framework just published.

Read more at https://t.co/5d47BLmCjn

[Dr Suman Prinjha @SumanPrinjha]

Ethnic inequalities in health and care show diversity in need and disadvantage

Ethnic inequalities in healthcare and outcomes occur across the entire life course. Analysis by broad ethnic groups can mask substantial variation within them 👇🏽 https://t.co/kce9tLboJZ

[Shaun Treweek @shauntreweek]

..and a little bit more on STRIDE is at https://t.co/KRkWgBtrjk

[Inclusive Trials @InclusiveTrials]

Which ethnic groups need to be represented in your trial? Recommendation to support discussion on this coming from the @Trial_Forge STRIDE project ⬇️
#InclusiveTrials #InclusiveResearch

[Trial Forge @Trial_Forge]

Our STRIDE project has produced some new recommendations on how to decide which ethnic groups your trial needs:

https://t.co/wtIJedqTtI

These are version 1– comments on these recommendations are most welcome (see link for details)

[Trial Forge @Trial_Forge]

Including older people in health and social care research: some new and sensible recommendations just published based on the INCLUDE Framework.

https://t.co/pbVxaYopEy

[Inclusive Trials @InclusiveTrials]

@IngaSchmidt93 Of course that's the case, of course it is.

[Inclusive Trials @InclusiveTrials]

This highlights an important point that is often overlooked; when we talk about inclusive trials participants are not our only focus. To be truly inclusive, we need the people leading trials and providing expertise to build high quality trials to be inclusive too.

[Inclusive Trials @InclusiveTrials]

Important work from @StanfordDeptMed's Celina Yong.
Trials with female PIs are associated with greater recruitment of female patients, but the proportion of cardiovascular trials led by women has not increased over the past decade. #InclusiveTrials
https://t.co/BcmnS6sE9R