Intractable Epilepsy

Intractable is a UK registered charity, set up to help families with medical cannabis prescription costs for loved ones suffering from Intractable Epilepsy.

[Intractable Epilepsy @IntractableUK]

2/2: Please help us to spread awareness as we are the only registered children’s charity in the U.K. set up to help pay for epileptic children’s cannabis oil prescriptions.

(We all volunteer and do not get paid by the charity!).

[Intractable Epilepsy @IntractableUK]

Behind every seizure is a child, a parent, and a fight that never stops 💜

For many families, that fight includes access to treatment 🌿

This #PurpleDay we raise awareness for epilepsy and the reality families face daily.

Why is access still a battle? ⬇️

[Epilepsy Society @epilepsysociety]

Researchers at Glasgow Caledonian University are developing a wearable headset to help predict epileptic seizures. The AI-powered device analyses brain and heart activity and has shown encouraging results in early tests. Click here to read more: https://t.co/n5LrAuT3Nl

[GCSScience @GlobalCannaSci]

Today, we’re proud to spotlight @IntractableUK , our GreenShield Award recipient, and to honour the parents whose courage changed the course of UK medical cannabis history.

Nearly seven years after the law changed, too many families are still forced to privately fund life-saving cannabis medicines — often at enormous personal cost. #Intractable exists because those families refused to accept that injustice in silence.

Led by parents, powered by compassion, and sustained by tireless advocacy, Intractable continues to stand beside families navigating a system that still doesn’t meet their children’s needs.

This work saves lives.
And it’s far from finished.
We’re honoured to recognise Intractable — and to stand with every family they support.

#endourpain @End_Our_Pain
https://t.co/kbniumAf42

[Intractable Epilepsy @IntractableUK]

🏃‍♂️💚 Four local legends are taking strides for a cause that matters! Join us as Paul, Chris, Dan, and James hit the pavement for the Great North Run, raising funds and awareness for Intractable Epilepsy. #RunForACause #IntractableEpilepsy #GreatNorthRun

https://t.co/HcIluwZHIy

[Intractable Epilepsy @IntractableUK]

🚨 It's Great North Run day! 🚨 Cheer on our Intractable Charity runners raising funds for epilepsy! Track them in real-time:
Paul - 55651
Chris - 62713
Dan - 55653
James - 55652

❤ Donate: https://t.co/x6jQLNv7gU luck, everyone! 🏃‍♂️🏃‍♀️ #GreatNorthRun #TeamIntractable #EndOurPain

[Intractable Epilepsy @IntractableUK]

🎉 Last year, we had so much fun at the Great North Run while raising money for children with intractable epilepsy! This year, our runners are all set and ready to go. Please support them. 💜

https://t.co/HcIluwZ9T0

[Intractable Epilepsy @IntractableUK]

This National Epilepsy Week, we must highlight the ongoing struggle for children's access to medicinal cannabis in the U.K. Despite 2018's legal changes, many remain denied NHS access. We need clearer guidelines, better education for doctors, and a commitment to patient care!

[Intractable Epilepsy @IntractableUK]

We are saddened by the passing of Hannah Deacon, a pioneer for medicinal cannabis access in the UK. Her legacy will inspire many parents and benefit countless children in the years to come.

https://t.co/AMGux8qXkk

[Intractable Epilepsy @IntractableUK]

@ClinicsIntegro @epilepsysociety @MedcanFamily @epilepsyaction @youngepilepsy @EpilepsyInst Thank you for your support on International Epilepsy Day. #PurpleDay2025

[Intractable Epilepsy @IntractableUK]

💜 Today, we celebrate Purple Day for Epilepsy! Ben's seizures dropped 98% thanks to medical cannabis. He’s thriving, but access in the UK is limited. We fight for change with other End Our Pain parents! #PurpleDay #EpilepsyAwareness
https://t.co/NOpfAQMoOv

[Intractable Epilepsy @IntractableUK]

Whether you're a seasoned runner or a beginner, this is your chance to get active, challenge yourself, and make a difference. Sign up to raise funds for charity while improving fitness and spreading awareness about epilepsy. Every step can change a life!
https://t.co/r9NfBqad1s

[Intractable Epilepsy @IntractableUK]

Alf, diagnosed with epilepsy 8 years ago, faces severe seizures and hasn't been to school since March 2023. We're fighting for access to medicinal cannabis, which could transform his life. Read the full story below.

#PurpleDay2025 #EpilepsyAwareness

https://t.co/cjmrXFB7Tv

[All On The Board @allontheboard]

Today is International Epilepsy Day. Sending love and support to everybody in the world with this condition.

#InternationalEpilepsyDay #Epilepsy #EpilepsyDay #allontheboard

[Intractable Epilepsy @IntractableUK]

The aftermath of having a seizure is sometimes described as experiencing post-workout pains and can cause sufferers to feel muscle aches. So, to replicate that feeling, we are challenging you to participate in our “100 miles to stop 100 seizures” campaign

https://t.co/WbqwaqonVK

[Intractable Epilepsy @IntractableUK]

Purple Day for Epilepsy Awareness! 💜 Meet Murray, a brave boy with Doose Syndrome, now seizure-free and thriving in school after fighting for vital cannabis oil treatment. Let’s advocate for access to care for all! #PurpleDay #Epilepsy #HopeForChange
https://t.co/mZqvbKyKFk

[Intractable Epilepsy @IntractableUK]

#PurpleDay2025

https://t.co/vKtdn5pNeV

[Intractable Epilepsy @IntractableUK]

🌍💜 Today is Rare Disease Day! Did you know that approximately 1 in 1,000 people in the UK are affected by rare epilepsies? Together, we can raise awareness and advocate for better access to care! #RareDiseaseDay

[Intractable Epilepsy @IntractableUK]

This International Epilepsy Day, we invite families affected by intractable epilepsy to share your experiences with medicinal cannabis. Your stories can help others facing similar challenges. Join us in raising awareness! #InternationalEpilepsyDay

https://t.co/qQKv6tt2yU

[Intractable Epilepsy @IntractableUK]

Sadly, many children and families are unable to access private prescriptions, as the overwhelming demand has forced private clinics to stop accepting new patients. This situation highlights the urgent needs of children with severe, intractable forms of epilepsy in the U.K.

[End Our Pain @End_Our_Pain]

End our pain specifically raised Minnie’s case before Christmas! Minnie’s case highlights the urgent need for access to observational trials as was the case in 2013 for a child in a similar position. @wesstreeting, children need your immediate help!

https://t.co/Qee9PQfP5U

[Intractable Epilepsy @IntractableUK]

Today in Westminster Hall at 1:30pm, politician’s debate the lack of NHS access to medicinal cannabis.

If you would like to watch here is a link: https://t.co/GqP51YX73D

[End Our Pain @End_Our_Pain]

Karen’s daughter faced a heartbreaking situation when she was denied access to any cannabis-based medication. In a desperate bid for relief, she had no choice but to undergo brain surgery yesterday before even having the opportunity to try a potentially life-changing treatment.

@wesstreeting This tragic outcome highlights the urgent need for reform in accessing medicinal cannabis. Patients should not have to endure such extreme measures when alternative treatments are available. We must advocate for better access to cannabis-based therapies to prevent more families from facing similar crises.

What is your MP doing to help people in urgent need of NHS access?

#endourpain