Invincible Vision

A patient-led nonprofit and global community for Bietti’s Crystalline Dystrophy patients.

[Invincible Vision @Invisionbcd]

What might the crystals look like in a person’s eyes if they have #Biettis Crystalline Dystrophy (BCD)?

BCD is often misdiagnosed as #Retinitis Pigmentosa, #Choroideremia, #Stargardt Disease, dominant forms of RPE65, Late-Onset Retinal Degeneration, etc.
https://t.co/ALP5lj3mDW

[Invincible Vision @Invisionbcd]

Rare disease patient now turned researcher, Richard Yang, analyzes various forms of #NontransparentScience & its profound implications, not just for #BCD, but potentially across #OrphanDrugDevelopment for other #RareDiseases. Learn more 👉
https://t.co/xKsSPe7q1x

[Invincible Vision @Invisionbcd]

#blindness #blind #biettis #biettiscrystallinedystrophy #eyecrystals #optometry #optometrist #retinitispigmentosa #retinitis

[Invincible Vision @Invisionbcd]

One of our missions is, and always will be, to build and maintain supportive community that helps each other thrive in life; whatever the definition of thriving may be for you!🧡

👉 https://t.co/ALP5lj3mDW

[Invincible Vision @Invisionbcd]

#poetry #theblindpoet #biettis #biettiscrystallinedystrophy #retinitispigmentosa #retinitis

[Invincible Vision @Invisionbcd]

It’s been a while since Dave spoke with us but his words are still fresh in our minds! Please enjoy one of his poems📝

Please also check out Dave’s new children’s book "Austin’s Amazing Adventures”
🖇https://t.co/O4PKiS3dYg

Thank you Dave🧡

[Invincible Vision @Invisionbcd]

It’s still not too late!!! Sign up for our call where we invite @TheBlindPoetRP

Sign up now👇
https://t.co/aGtGB4V60I

This event is free and open to all🧡
#blindness #biettiscrystallinedystrophy #RetinitisPigmentosa

[Invincible Vision @Invisionbcd]

We are beyond excited about our next call with @TheBlindPoetRP🧡

This event is FREE and open to everyone!!!

Sign up for this call👇
https://t.co/aGtGB4V60I

#blindness #biettiscrystallinedystrophy #RetinitisPigmentosa

[Invincible Vision @Invisionbcd]

Today we are celebrating the rare disease community and shining a spotlight on BCD! #RareDiseaseDay #RareDiseaseDay2022

To our own community of BCD patients, thank you for your continued support🧡 Together we are many, together we are strong! #invinciblevision

[Rare Disease Day @rarediseaseday]

Do you want to get involved in #RareDiseaseDay 2022 but you don't know where to start?

From sharing your story to lighting up a monument in your city, here is a helpful list of the different ways that you can get involved in Rare Disease Day 2022: https://t.co/27qYEM4QJ0

[Invincible Vision @Invisionbcd]

BCD is a rare eye disease that often goes misdiagnosed. Help us spread awareness of BCD by watching and sharing this video.

👉 https://t.co/EMjgvn5X1x

Awareness is the first step towards finding a treatment. #RareDiseaseDay #rarediseaseday2022

[Invincible Vision @Invisionbcd]

Join us in celebrating Rare Disease Day!

How to help:
-Spread awareness
-Share your rare disease story
-Use the hashtags #RareDiseaseDay2022 #RareDiseaseDay
-Donate to a rare disease organization (we hope you choose Invincible Vision)

[Invincible Vision @Invisionbcd]

New year but some things never get old, like our monthly calls😉 Join our monthly call this Sunday at 9am PST and get the chance to connect with our BCD community! Sign up on our website: https://t.co/aGtGB4V60I

FYl: Our monthly calls are private and will not be recorded!

[Invincible Vision @Invisionbcd]

As 2021 comes to an end we want to express our sincerest gratitude to those of you who have supported Invincible Vision! A special thanks to @ReflectionBio, our volunteers, and all the wonderful speakers we’ve had this year🧡 Happy New Year everyone!

🔗https://t.co/73X7Mo77f5

[Invincible Vision @Invisionbcd]

Don't miss out! https://t.co/gD1fccfvk4

This Sunday Morten Bonde is giving his talk. Morten will share how he decided to see possibilities rather than limitations. He shares how he decided to grow bigger than his greatest life-challenge, #blindness!

[Invincible Vision @Invisionbcd]

Get inspired and motivated this Sunday at 9am PST by attending our FREE event where @morten_bonde will give his talk. Event details and sign up link can be found here: https://t.co/gD1fccfvk4

#blindness #blind #raredisease #motivation #biettis #retinitis #InvincibleVision

[Invincible Vision @Invisionbcd]

@morten_bonde

[Invincible Vision @Invisionbcd]

On December 12th at 9am PST, we'll have a chance to (virtually) meet Morten Bonde, the amazing author & speaker. This event is free & open to all. We hope you'll be inspired & motivated to grow bigger than the obstacles presented in life.
Learn more https://t.co/4b4JNULICe...

[Invincible Vision @Invisionbcd]

Most #retinal specialists categorize #BCD as a type of RP. However, a failure to distinguish BCD from other types of RP contributes to the obstacles faced in the ongoing gene therapy research. To confirm a diagnosis, test for mutations in the CYP4V2 gene. https://t.co/ALP5lj3mDW

[Invincible Vision @Invisionbcd]

Join our monthly call this Sunday at 9am PST and get the chance to listen to a BCD patient’s helpful advice that turned him around from feeling hopeless to capable and thriving! Sign up: https://t.co/aGtGB4V60I

FYI: Our monthly calls are private and will not be recorded!

[Invincible Vision @Invisionbcd]

Slowly losing one’s vision is painful & difficult,& it can even feel lonely or hopeless. This post is your reminder that you're NOT alone & there's HOPE thanks to people like @ReflectionBio who are dedicating their lives to finding a treatment for Bietti’s Crystalline Dystrophy.