Involved in Research

Anna & Linda share experiences about involvement in #healthcare #research with #researchers, #patientadvocates & the #public #patientinvolvement #CancerResearch

[Involved in Research @InvolvePatients]

Hello everyone, we are Anna and Linda, taking over this account to tweet about great resources and our thoughts about #public #patientinvolvement in #healthcare #research #CancerResearch #bloodcancer #bloodtransfusion #DataScience
This is us👇

[Jonathan Boote 🏳️‍🌈🇪🇺 #FBPE @jonathanboote]

'Frameworks to evaluate the quality of public involvement in health & social care research: a scoping review'. New paper in Health Expectations
https://t.co/dKUvwhvrsQ open access!!

[Sickle Cell Society @SickleCellUK]

Men aged 35+ attending KCH Hospital are invited to the final Ageing Well with Sickle Cell focus group. 28 May | ⏰ 6–8pm 🎟 £50 Love2shop voucher for attendees. Can’t attend? Share your thoughts here: https://t.co/EvQp31jmnN
🔗 Book now: https://t.co/TmAm6VGJXl
#SickleCell

[Anna M (Butterfly🦋in Remission)🎗 @AnnaResearchRep]

We need your help
📌 @LindAlliance survey on transfusion #research priorities closes 31st May 🚨 A great response so far however to ensure fair representation we’re particularly needing to hear from surgeons 🚨
#surgeons please share
https://t.co/4yZxyCBlHG

[Anna M (Butterfly🦋in Remission)🎗 @AnnaResearchRep]

As someone in remission from AML this downloadable journal is packed with really helpful prompts to help you write things down to relieve your brain 🧠 of the ‘noise’ we all know well… take a look at what I’ve written… (in replies)
#AMLWorldAwarenessDay #leukaemia #KnowAML

[Know AML 🔴⚫️ @KNOW_AML]

🎥 Make a difference this AML World Awareness Day and share this video clip of Erik Aerts and Charles Craddock explaining the signs and symptoms of AML.

Want to watch the whole video? Visit: https://t.co/QVPvJ2d28k

#KnowAML #AMLWorldAwarenessDay #Cancer #Leukemia #Leucemia #Leukaemia

[Know AML 🔴⚫️ @KNOW_AML]

📝 Using our downloadable journal can be an incredible way to reflect on your personal journey with AML.

If you feel comfortable, please share them with us using the hashtags #KnowAML and #AMLWorldAwarenessDay

https://t.co/H9tTpzCjf9

#Cancer #Leukemia #Leucemia

[Sickle Cell Society @SickleCellUK]

📣 Join our Sickle Cell Engagement Event

📅 16 May 2026 | 🕛 12–3pm
📍 St Thomas’ Hospital or online

Share your experiences and help shape better care.

Register:
In person: https://t.co/7cgyIxOeix

Virtual: https://t.co/BuuXLaLy2S

#SickleCell #PatientVoice #LondonEvents

[National Institute for Health and Care Research @NIHRresearch]

📢 We've increased the payment rate for public involvement within the NIHR by 10%. The rate will also be reviewed every 3 years from 2025.

We gain so much from the insights provided by the public. The new rate better recognises the importance of how the public shapes our research.

Find out more: https://t.co/RLwBxRUPtY

[NIHR ARC North East and North Cumbria @NIHR_ARC_NENC]

📢A new book exploring meaningful Public Involvement & Community Engagement (PICE) in research, launches today.

🎯Aimed at researchers who want to ensure that their work is inclusive, equitable, and impactful.

📑Find out more & read via open access⬇️

https://t.co/CohjdurAeD

[National Institute for Health and Care Research @NIHRresearch]

📣 Calling early career nurses & midwives! Join our webinar on 3 Dec at 2pm to explore the latest NIHR RfPB funding - up to £500k for research led by under-represented health & care professionals. Expert tips from @NIHR_RSS included! https://t.co/cK52WWIrPk

[NIHR BTRU in Donor Health and Behaviour @DonorHealthBTRU]

🩸Ever wondered what really goes on behind the scenes of the blood service?

Our latest seminar is now on YouTube

Amanpreet Dhesi & Debbie Rahman (NHSBT) share how blood supply works, the challenges, and how R&D is transforming the service

▶️ Watch here https://t.co/bvrSRyZwBs

[NIHR Involvement @NIHRinvolvement]

Are you a patient, member of the public or carer looking for an opportunity to get involved? Or a researcher with an opportunity for people to get involved in your work?

Head over to People in Research to browse and post opportunities: https://t.co/ZQYI7uo7Ia

[LBC News Wales @LBCNewsWales]

Researchers at Cardiff Uni have been awarded £750,000 pounds to trial a new treatment for a rare form of the disease.

The money - from Blood Cancer UK - will be used to test a new at-home solution for acute promyelocytic leukaemia.

[Know AML 🔴⚫️ @KNOW_AML]

During the recent @Know_AML webinar for patients and HCPs, @charliecraddock, physician at Queen Elizabeth Hospital Birmingham and Know AML Ambassador, discussed mutations in AML and their role in diagnosis and personalized treatment decisions.
👉 https://t.co/F8MQTO8rUK
#KnowAML

[CTRCardiffUni @CTRCardiffUni]

💬 “We’re seeking to improve quality of life…so patients can return to normal sooner.”

— Prof Steve Knapper

Read how this study could shift the standard for APL care nationwide

🔗 https://t.co/cVr09B1IOp

@ResearchWales @UKCTUNetwork @bloodcancer_uk
#ICTD25 #CancerResearch 🧬

[NHS Blood Donation 🩸🩹 @GiveBloodNHS]

Almost 100 people donated blood at a session supported by Elsie Dot Stancombe's family, one of the young victims of the tragic Southport attack last summer. ❤️ More than a quarter were first-time donors! 🩸

[CTRCardiffUni @CTRCardiffUni]

🧪Backed by £750k from @BloodCancer_UK, this new trial is testing a more convenient oral APL treatment.

Same impact.
Less hospital time.
More quality of life.

🔗 https://t.co/cVr09B1IOp

@ResearchWales @UKCTUNetwork @cardiffuni
#ClinicalTrials #ICTD2025 💡🏠

[Blood Cancer UK @bloodcancer_uk]

We’re proud to celebrate Clinical Trials Day, as we commit to investing in even more world-class trials over the next few years.

Dr Rubina Ahmed, our Director of Research, Policy and Services, shares why 👇 #CTD2025
1/7

[Cure Leukaemia @CureLeukaemia]

On #InternationalClinicalTrialsDay we're celebrating the life-saving difference clinical trials make through our funding of the Trials Acceleration Programme.

https://t.co/kEQYnQla8F

[Cure Leukaemia @CureLeukaemia]

4 days to World AML Day 🧡 When Lee's wife was diagnosed with Acute Myeloid Leukaemia, he became a full-time caregiver overnight.

“Nothing prepares you… You feel helpless, anxious, and alone while trying to stay strong.”

Read his Q&A on our website: https://t.co/ZclTbVdcpS