Idiopathic pulmonary fibrosis

Helping you better understand, manage and talk about idiopathic pulmonary fibrosis (IPF). Join us at

[Idiopathic pulmonary fibrosis @IpfRm]

Which 5 words would you use to describe IPF? Share your answer on the Raremark website here: https://t.co/JqjlEXeORu

#MakeTheRareReal #IPF #IdiopathicPulmonaryFibrosis

[Idiopathic pulmonary fibrosis @IpfRm]

Almost 9 out of 10 carers (91%) have taken time off from work for caregiving duties. What’s the financial cost of being a rare caregiver? We take a look: https://t.co/4m7C5BlPsg

#MakeTheRareReal

[Idiopathic pulmonary fibrosis @IpfRm]

When a family member gets a life-altering diagnosis life may suddenly feel broken. Here are a few ways to heal from @DeniseMBrown3, founder of @CareYrsAcademy: https://t.co/s5tlIbvheL

[Idiopathic pulmonary fibrosis @IpfRm]

Taleena Koch, the founder of Breathe Support Network, explains why you need a pulmonologist who specializes in pulmonary fibrosis to get the best IPF care.

[Idiopathic pulmonary fibrosis @IpfRm]

What do IPF patients and caregivers think about their medication? Find out here: https://t.co/BKxmjcQZl5

[Idiopathic pulmonary fibrosis @IpfRm]

Living with IPF has its challenges, but there are ways you can stay in control. Here are some tips: https://t.co/O8iSPA8uIj

#IPF #PulmonaryFibrosis

[Idiopathic pulmonary fibrosis @IpfRm]

See how others are living with IPF and share your experiences at Raremark. Head to our website to become a member: https://t.co/3WjaT1qWnM

[Idiopathic pulmonary fibrosis @IpfRm]

"If you are not a priority in your life, you will not be fully equipped to care for another." Taleena Koch, the founder of the Breathe Support Network, shares some lessons she learned as a caregiver: https://t.co/GHf6LdbYqT

[Idiopathic pulmonary fibrosis @IpfRm]

What is genetic testing and what happens when someone has a test? We spoke to specialists to find out: https://t.co/XoFxRdSjgo

[Idiopathic pulmonary fibrosis @IpfRm]

Do you have trouble remembering what to talk to your doctor about, or what they tell you? Here are some tips to help you keep track.

#IPF #PulmonaryFibrosis

[Idiopathic pulmonary fibrosis @IpfRm]

Noah Greenspan, DPT goes over five aspects of your health that are important to consider while living with IPF:

#IPF #PulmonaryFibrosis https://t.co/92jVkHqezV

[Idiopathic pulmonary fibrosis @IpfRm]

Open communication is important between you and your caregiver. This downloadable patient tool can help guide you through some important discussions. Get it here: https://t.co/SrOSChe20a

#IPF #IdiopathicPulmonaryFibrosis

[Idiopathic pulmonary fibrosis @IpfRm]

What advice would you give to someone who just got diagnosed with IPF? Sign up or log in to Raremark and share your answer: https://t.co/7DXRXNSl6K

#IPF #IdiopathicPulmonaryFibrosis

[Idiopathic pulmonary fibrosis @IpfRm]

Together we can help each other understand, manage, and talk about IPF. Join Raremark: https://t.co/VhSTlxlrSZ

[Idiopathic pulmonary fibrosis @IpfRm]

Fatigue is one of the most common symptoms of idiopathic pulmonary fibrosis (IPF). Here's some advice on how to manage fatigue, read the article in full here: https://t.co/ycqwphzo3X

#IPF #PulmonaryFibrosis

[Idiopathic pulmonary fibrosis @IpfRm]

“I cherish quality time spent with family and friends now, and I’m not sure I would have appreciated this simple pleasure so early in my life if it weren’t for my IPF diagnosis.” Read about Charlene's and other people's experiences here: https://t.co/5oeTkUfEPF

[Idiopathic pulmonary fibrosis @IpfRm]

Have a look at this article for some tips and suggestions to help manage life with pulmonary fibrosis: https://t.co/7yPqMzO64d

#IPF #PulmonaryFibrosis

[Idiopathic pulmonary fibrosis @IpfRm]

Let's chat! What would you love to achieve this year?

[Idiopathic pulmonary fibrosis @IpfRm]

Happy new year! We hope 2022 brings you plenty of opportunities for joy, self-care, and memories to cherish ✨

[Louise Doran @FoxyLady0811]

Looking for a nice painting or artwork? Take a look at the auction below 448-455 👀 Filter category by paintings 🤞💜 Please help us fundraise for @ActionPFcharity Pulmonary Fibrosis lung disease needs a cure #art #painting #photomontage
#ArtistOnTwitter
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