VIA

VIA is a support group set up for patients of all the Vasculitis diseases, their carers and interested Healthcare Professionals in Ireland.

[PARADISE @PARADISE__AI]

Mark Little, our coordinator, presented a very catchy vision of @PARADISE__AI project during the #EPPerMed Conference on Personalised Medicine Research.

[IPPOSI @IPPOSI]

Today we hosted the 2024 IPPOSI industry member round table, focused on secondary use of health information & public-private-partnerships. Thanks to all who contributed 4 concrete actions for IPPOSI to take forward as part of our new strategy. @roinnslainte @hrbireland

[ERDERA @ERDERA_org]

🚀 Join us for the ERDERA launch event!

🗓️ 28 Oct 2024
⏰ 14:00-16:15 CET
💻 Online

Don't miss insights from top experts & learn how @ERDERA_org is set to change the landscape of rare diseases research!

👉 RSVP here:https://t.co/Xb3trTuebd

#RareDiseases @EU_HaDEA

[VIA @IrishVasculitis]

What a team @_ERNRITA #vasculitis and biobank

[Trinity Kidneys @THKC1]

Proud mentor! - 3 in a row at the @_ERNRITA #vasculitis registry and biobank
@ICATProgramme

[VIA @IrishVasculitis]

Great first meeting of the @_ERNRITA Ireland team, looking forward to our work.

[Trinity Kidneys @THKC1]

Inaugural meeting of the full @_ERNRITA - Ireland team with @RareDiseasesIE!

[Derick Mitchell @DerickOMisteal]

I feel very privileged to have attended the 10th Anniversary event of the Wellcome HRB CRF at @stjamesdublin today. Wonderful patient experiences of the positive impact of clinical research on their own and their families lives. Congrats to Martina Hennessey and all the CRF team!

[Trinity Kidneys @THKC1]

Delivered by the amazing @KarenTazi, member of the #PPI grow of @PARADISE__AI

[The ADAPT Centre @AdaptCentre]

Let's Predict AI's Future Together! 🌟✨

Let your imagination run wild as you think about the future of #ArtificialIntelligence and how it might be used! Our #AI Activity Sheet is designed for #primary school #students to encourage a dive into the exciting world of AI with fun and interactive learning!! 🔮🤖
Join @AdaptCentre researchers today at the #ExploreAI interactive showcase at @START_ERN to explore more!

[AKERKE AUANASSOVA @AAuanassova]

Systemic vasculitis in Kazakhstan: A complex research approach 🔥🔥🔥
#vasculitis #Kazakhstan #research #methods #complexapproach
https://t.co/0F1xBx9OJm
@ArmenYuri @OlenaZimba @BurhanFatihKoy1 @Birzhan7101423

[VIA @IrishVasculitis]

Join us on Wednesday when we talk about rare disease patient's rights

[_ERNRITA @_ERNRITA]

Register now!😊Our next webinar will talk about the rights of a person living with a rare disease. We will also hear a practical perspective in advocacy of a rare immunological disease by a representative of the Maltese association of patients with RMDs.
👉https://t.co/BNj7sdRELa

[_ERNRITA @_ERNRITA]

🔴 Save the Date and Register!
Our next webinar will tackle the topic of Vasculitis Pregnancy and Vasculitis patient powered research activities, with key insights from a patient advocate and clinician experts.
Register now! 😊 ⬇
https://t.co/pZ9QUQAmwq

[VIA @IrishVasculitis]

Important for NI patients to complete this survey too, thank you @ZoiAn2 for reminder, #Vasculitis #Lupus #Sjogren's, only few days left

[RAIRDA @RAIRDA_org]

Take a few moments to complete our survey and make a difference:https://t.co/iCWah1eZWz @LUPUSUK @vascuk @WeAreSRUK #BSSA #PatientCare #RAIRDaware

[ZoiAn @ZoiAn2]

Save the date and time, 11.00am for the UK participants!
This is a very interesting topic!
@vascuk @Jane_L_Edwards @bethangoulden @Vasculitis_NL @vasculitisES @VasculitisIA
@IrishVasculitis @ukivas @RAIRDA_org

[ZoiAn @ZoiAn2]

Diagnostic odyssey is a barrier to better outcomes.
#vasculitis #raredisease #patientstories #VisualiseVasculitis @_ERNRITA @ukivas @IrishVasculitis @VasculitisIA @vasculitides @

[ZoiAn @ZoiAn2]

Thank you @louise_oni for a fabulous presentation! Your passion about your young patients always touches my heart!
#vasculitis SIG
#BSR24 @ukivas @_ERNRITA @vascuk @IrishVasculitis @LauraWhitty5

[ZoiAn @ZoiAn2]

If you have not read @shanaliperera2 book, I highly recommend you do. She expresses the patients' thoughts and feelings not only with words, but through #art as well!
@_ERNRITA @ukivas

[VIA @IrishVasculitis]

Go @ZoiAn2 , thank you for all you do #vasculitis

[Vasculitis - In memory of John Mills MBE 💙💚 @vascuk]

Excellent presentation @ZoiAn2 #BSR24 How can we support you? How can you support us? #vasculitis #patients #research @vascuk

[ZoiAn @ZoiAn2]

Brilliant presentation at the Prof Justin Mason's memorial symposium about LVV treatment at #BSR24 .
Thank you @TYoungstein !
#vasculitis @vascuk @_ERNRITA @ukivas @stephenmcadoo @ICL_Vasculitis @IrishVasculitis @charisperi

[_ERNRITA @_ERNRITA]

📢 Save the Date!
The next seminar of the CAML Rheumatology Series will be held next 23 April at 9:00 CET by RITA Member @SophieGeorgin.
The title of the talk is “Systemic Autoinflammatory Diseases in Adults: when to suspect, how to diagnose?”
https://t.co/Os06121Aww

[Vasculitis Workshop Barcelona #VasculitisBCN2024 @VasculitisBCN24]

Best team! 😍🔥

#VasculitisBCN2024