Haemochromatosis International

Haemochromatosis International - organisations supporting & representing people around the world with the genetic predisposition to store too much iron.

[Haemochromatosis International @IronMattersInt]

Good work advancing knowledge of #hemochromatosis genotypes & disease Mitch Lucas! @HaemAus @IrishHaemAssoc @IronOutCanada @ironoverloadUS

[Haemochromatosis International @IronMattersInt]

Thanks for your ongoing research in #hemochromatosis @JaniceLAtkins @lcpilling @d_melzer @ExeterMed. Looking forward to reading the paper. @HaemAus @IrishHaemAssoc @IronOutCanada @ironoverloadUS

[Luke Pilling @lcpilling]

Post menopausal women with the #haemochromatosis C282Y homozygous genotype have increased risks of liver and osteoarthritis (compared to those without HFE mutations)

@JaniceLAtkins @ExeterMed @eshgsociety @IronMattersInt #eshg2023 #ironoverload

[Haemochromatosis International @IronMattersInt]

@digigi60 @IronOverloadUK @IronResearchLab @IronOutCanada @EHA_Hematology Looking forward to reading the presentations @digigi60 HI member organisations appreciate the combination of #scientificrigor & #patientengagement that inform #bioiron research.

[Haemochromatosis International @IronMattersInt]

Short video where Dr Paul Adams advisor to @IronOutCanada talks about #hemochromatosis #haemochromatosis

[Haemochromatosis International @IronMattersInt]

Thank you @tdgarden home to @celtics & @NHLBruins for lighting up red during #WHW2023! @RedCross can use blood from people with #hemochromatosis who meet the eligibility requirements of other donors. Find out more @ https://t.co/q4NSjifghC.

[Haemochromatosis International @IronMattersInt]

Shining red lights on #hemochromatosis in the USA this week. Tonight @TowerLightsCLE & June 6 @tdgarden home of the Boston @celtics. #WHW2023 #lightentheoverload #toomuchiron

[Haemochromatosis International @IronMattersInt]

Thanks @GalwayCityCo & Sligo for taking part in the international Light Up Red campaign in #WHW2023. Please keep the spotlights on the IHA’s call for a National Strategy on #haemochromatosis for Ireland which has the highest rate of haemochromatosis in the world.

[Irish Haemochromatosis Association @IrishHaemAssoc]

Galway & Sligo City Halls light up red for World Haemochromatosis Awareness Week 2023! #WHAW2023 Hundreds of public & iconic buildings, bridges and monuments all over the world shining a spotlight this week and next on the symptoms of haemochromatosis #sligo @GalwayCityCo

[Haemochromatosis International @IronMattersInt]

Many thanks @AytoLeganes
For joining the international ‘Light Up Red’ campaign to raise awareness of #hemochromatosis in #WHW2023. Your sites look fabulous in red!

[Ayuntamiento de Leganés @AytoLeganes]

🔴#Leganes se sumará, en este 3 de junio, a la Semana Mundial de la Hemocromatosis, iluminando de rojo las fuentes ornamentales y la Plaza Mayor.

👉Se trata de una enfermedad rara que sufre uno de cada mil españoles.

[Haemochromatosis International @IronMattersInt]

@AytoLeganes @salvadorpayan Muchas gracias @AytoLeganes
por sumarse a la campaña internacional ‘Light Up Red’ para concienciar sobre la hemocromatosis. #WHW2023

[Haemochromatosis International @IronMattersInt]

Thank you @MADRID for lighting up red to raise awareness of haemochromatosis during #WHW2023. La Fuente de Cibeles is a real beauty in red.

[Ayuntamiento Madrid @MADRID]

📢Este sábado 3 de junio iluminamos de color rojo 🔴 la Fuente de Cibeles con motivo de la Semana Mundial de la #Hemocromatosis.

[Haemochromatosis International @IronMattersInt]

@MADRID Gracias Madrid por sumarse a la campaña internacional ‘Light Up Red’ para concienciar sobre la hemoctomatosis. La Fuente de Cibeles es une verdadera belleza. #WHW2023

[Haemochromatosis International @IronMattersInt]

Congrats Team Exeter @JaniceLAtkins @d_meltzer @lcpilling & Mitch Lucas for creating this excellent resource for people with #haemochromatosis #hemochromatosis & those who care for them. Haemochromatosis International member organisations appreciate your work. #WHW2023

[The Royal College of Pathologists of Australasia @PathologyRCPA]

Haemochromatosis, or iron overload, is Australia’s most common genetic disorder. It’s easy to test, simple to treat, but tragic to ignore.

To find out more, visit https://t.co/YHpgPo9FHr

#WHW2023 #lightentheoverload #RCPA #pathology #medicineispathology @HaemAus

[Haemochromatosis Aus @HaemAus]

Many thanks @healthgovau for raising awareness of #haemochromatosis and #ironoverload this World Haemochromatosis Week 🩸

[Haemochromatosis International @IronMattersInt]

And so much more to learn! Thanks @lcpilling for starting up conversations with casual acquaintances about #hemochromatosis. Let’s all have more conversations about #haemochromatosis during #WHW2023 June 1-7.

[Luke Pilling @lcpilling]

My blood made the 2hr drive up the M5 to Gloucester Royal Hospital 🩸

@GiveBloodNHS - the easiest way to save a life!

Added bonus for me is a wonderful conversation with the nurses about #haemochromatosis every time. Always learn something new!

@IronOverloadUK @IronMattersInt

[Haemochromatosis International @IronMattersInt]

Don't delay! Last day to send in your entry is April 30. Images will be on show in the virtual gallery during #WorldHaemochromatosisWeek #WHW2023 June 1-7 Voting for the People's Choice Award will be open then.
For more info go to https://t.co/I6Rt5QW32y

[Haemochromatosis International @IronMattersInt]

Register now for the long anticipated Ninth BIOIRON Congress, the leading international conference for clinicians & researchers in #ironmetabolism #irondisorders #ironmatters #bioiron2023 #chiesi #cslvifor #ionispharma #regeneron #discmedicine #resonancehealth

[Haemochromatosis International @IronMattersInt]

Get clicking this holiday weekend & submit your pic by April 30. For more info go to https://t.co/I6Rt5QW32y

[Haemochromatosis International @IronMattersInt]

Could unrecognised hemochromatosis have contributed to the early death of this genius? @BeggTristan making Beethoven’s genome publicly available for iron researchers will help many others at risk of serious health problems from hemochromatosis. Thank you!

https://t.co/5g3WzYUlMf