Isa Ashoor

Pediatric Nephrologist @BostonChildrens Amateur Photographer and Lover of National Parks. From 🇧🇭 Tweets are my own

[Isa Ashoor @IsaAshoor1]

1/ 📢Hey #Nephtwitter @ASPNeph
The Pediatric Nephrology #PedNeph workforce is in the midst of a crisis.

Join me in this 🧵to understand the scope of the problem and how we can start to fix it.

Our full editorial can be found 👉https://t.co/4zl39rhueK

[Pediatric Nephrology @Ped_Neph]

The workforce crisis facing pediatric nephrology is echoed throughout many pediatric sub-specialties. Read these Conference Proceedings recommendations to improve recruitment, retention, & reimbursement to improve patient care. #OpenAccess
https://t.co/ewmuptGCDy

[NAPRTCS @NAPRTCS1]

Want to learn more about the @NAPRTCS1 #Cystinosis Registry? Join us for a webinar on June 7th at 2pm EDT.
Topics include new PRO measures and a transition needs assessment.

Attendance is open to the entire academic medical community. Register here: https://t.co/jGh4iF5Vmz

[Isa Ashoor @IsaAshoor1]

@NAPRTCS1 is cutting edge too! #Ai #chatgpt #naprtcs2024

[NAPRTCS @NAPRTCS1]

Nathan Paziuk of @Modern_Craft provides an update from the @NAPRTCS1 IT Committee. They continue to work on ways to reduce the burden of data entry. Recent work focuses on using AI for data extraction.
#NAPRTCS2024

[Isa Ashoor @IsaAshoor1]

More than 1000 test results! Can’t wait for the final results @NAPRTCS1 #naprtcs2024

[Isa Ashoor @IsaAshoor1]

When we engage our patients our outcomes will be better! Exciting initiatives being discussed at the @NAPRTCS1 meeting today.

[NAPRTCS @NAPRTCS1]

Taylor House of @WiscPediatrics presents information about her upcoming project investigating communication around kidney transplant preparation directed at adolescent and young adult patients.
#NAPRTCS2024

[NAPRTCS @NAPRTCS1]

Up next, @jodismith0820 provides an update on the @NAPRTCS1 #Cystinosis Registry. The registry now includes data on 106 participants with up to 5 years of follow up so far. We’ll be making an announcement about a new endeavor so make sure to tune in!
#NAPRTCS2024

[NAPRTCS @NAPRTCS1]

Next up, Ari Pollack of @seattlechildren shares information about Kids CoLab! This multicenter study looks at cooperative decision making in the adolescent #CKD and #ESKD population. The project will engage patients, caregivers, and clinicians.
#NAPRTCS2024

[NAPRTCS @NAPRTCS1]

Eric Benz of @ChildrensColo and Ankana Daga of @BostonChildrens present two upcoming studies of #SDOH in the #Transplant and #Dialysis registries that will be completed in partnership with @hospitals4kids

[Isa Ashoor @IsaAshoor1]

Looking forward to seeing everyone tomorrow! @NAPRTCS1 @Vikas_R_D @jodismith0820 @DrDarcyW

[NAPRTCS @NAPRTCS1]

The @NAPRTCS1 Spring Virtual Meeting is just one month away! Join us to learn more about our current and future projects.

Register here: https://t.co/35Cj5gryV3

Attendance is free and open to the entire academic #PedsNeph community. Trainee attendance is encouraged.

[NAPRTCS @NAPRTCS1]

The @NAPRTCS1 Spring Virtual Meeting is just one month away! Join us to learn more about our current and future projects.

Register here: https://t.co/35Cj5gryV3

Attendance is free and open to the entire academic #PedsNeph community. Trainee attendance is encouraged.

[NAPRTCS @NAPRTCS1]

Save the Date for the 2024 @NAPRTCS1 Meetings!

Our Spring Virtual Meeting will be held on March 22nd from 1p-4p ET / 10a-1p PT. Invitations will go out in early February.

The Fall Meeting is planned for September 19th & 20th. More info to follow.

[Pediatric Nephrology @Ped_Neph]

COVID-19 has disproportionately affected adults w/kidney disease. Data re children w/kidney disease are limited. Read this Original Article on the impact of COVID-19 on children enrolled in the 3 arms of the NAPRTCS Registry: CKD, dialysis, & transplant.
https://t.co/hqUW22GKSm

[NAPRTCS @NAPRTCS1]

Check out the latest @NAPRTCS1 publication in @Ped_Neph by Sarah Twichell at @UVMLarnerMed! This paper looks at the impact of #COVID19 on pediatric CKD & ESKD patients.

@jodismith0820 @Vikas_R_D @IsaAshoor1 @DaniellaLErez @KizilbashSarah @Sara_NAPRTCS

[NAPRTCS @NAPRTCS1]

Since 1994, @NAPRTCS1 has worked closely with industry to implement pediatric #CKD and #ESKD clinical trials.

Want to learn more about the process and discuss best practices related to trial recruitment and retention? Join us for a webinar on 12/8 at 2pm ET. DM for info

[NAPRTCS @NAPRTCS1]

Attending @ASNKidney #KidneyWk? Check out the 4 @NAPRTCS1 posters on Thursday, Friday, and Saturday!

@slgold777 @DagaAnkana and Reeti Kumar of @Duke_Childrens will present and topics include #dialysis #cystinosis & #aHUS.

[NAPRTCS @NAPRTCS1]

Nathan Paziuk of @Modern_Craft provides an update from the @NAPRTCS1 IT Committee. They continue to work on ways to reduce the burden of data entry. Latest update - NAPRTCS data reports are now available in EPIC!
#NAPRTCS2023

[NAPRTCS @NAPRTCS1]

Taylor House of @WiscPediatrics presents information about her upcoming project examining communication around kidney transplant preparation directed at adolescent and young adult patients. Stay tuned for additional information that will go out by email next week.
#NAPRTCS2023

[NAPRTCS @NAPRTCS1]

The @NAPRTCS1 Communication Committee is hard at work keeping you informed through newsletters, webinars, reports, and social media. Have suggestions for improved communication? Let us know!

Center Status Reports have been very successful!

#NAPRTCS2023

[NAPRTCS @NAPRTCS1]

Next up, Ari Pollack of @seattlechildren shares information about Kids CoLab! This multicenter study looks at cooperative decision making in the adolescent #CKD and #ESKD population. The project will engage patients, caregivers, and clinicians.

#NAPRTCS2023

[NAPRTCS @NAPRTCS1]

The @NAPRTCS1 Patient and Family Advisory Council is looking for additional members. Pediatric patients ≥ 18 years impacted by #CKD & #ESKD and their families are eligible to join. Please share with your patients so they can help guide our efforts.

#NAPRTCS2023