JAFA

JAFA is Juvenile Arthritis Foundation Australia. Juvenile arthritis is a painful auto-immune condition affecting over 6.000 kids & young people in Australia.

[Prof Jane Munro @DrJaneMunro]

Health Report features 8 yo Nylah talking about her Juvenile Arthritis journey along with her dad.
Prof Stephen Colagiuri from @JAFAforkids talking with @normanswan about Juvenile Arthritis & gaps in services in Australia.

Health Report https://t.co/ey2sG83pD3 via @ABCaustralia

[JAFA @JAFAforkids]

Important support from peak bodies & health groups backing our campaign to reduce delays in diagnosing children with juvenile arthritis. Thanks to all who’ve signed our consensus statement including @PharmGuildAus @RACGP @MedicinesAus @PSA_National https://t.co/YhzG1tYufT

[JAFA @JAFAforkids]

Children living with painful juvenile arthritis will benefit from a NSW gov’t budget investment of a record $6.9m in more specialist paediatric services. Thanks to @RyanPark_Keira for addressing this need and 2GB’s Chris O'Keefe for great support https://t.co/kXqX06Oahf

[Adam Peacock @adampeacock3]

Incredible news, finally kids in NSW have access to services to help them through the pain of Juvenile Arthritis.
Been a long road to get to this point.
Great work @JAFAforkids @RyanPark_Keira and @cokeefe9 🙌🏼🙌🏼

[JAFA @JAFAforkids]

Why Laura burst into tears every time her own mum hugged her https://t.co/ZL8Cqn8YPx

[JAFA @JAFAforkids]

Sincere thanks @Mark_Butler_MP & Dr Mike Freelander MP for announcing the first major federal gov’t investment in a national program to shorten delays in diagnosing juvenile arthritis. It’s vital to intervene early to prevent children from developing disabilities.

[JAFA @JAFAforkids]

Warmest congratulations on your engagement @AlboMP and Jodie Haydon from everyone in the JAFA Community. We enjoyed spending time with you at The Lodge in 2022 and wish you happiness in the years ahead.

[JAFA @JAFAforkids]

@adampeacock3 @RyanPark_Keira Thank you for doing a wonderful job Nylah!

[Adam Peacock @adampeacock3]

@JAFAforkids Huge day for the @JAFAforkids cause with findings of an Impact Study released at NSW Parliament House.
It contextualises the huge burden for families, and the kids themselves, and thanks to MP’s inc. @RyanPark_Keira for their time.
Nylah handed a thank you to the minister 1/2

[JAFA @JAFAforkids]

Our national IMPACT report has identified major inequality for children with juvenile arthritis who suffer pain & wait a year for diagnosis. Thanks to @RyanPark_Keira & @DrJoeMcGirrMP for launching the report & working for a better future for @JAFA kids https://t.co/U5Dznyc17V

[JAFA @JAFAforkids]

Delays in juvenile arthritis diagnoses causing kids to live in pain https://t.co/XlKdHFvdt2

[JAFA @JAFAforkids]

New AIHW report reveals up to 30k children & young adults in Australia live with juvenile arthritis, with a rise in hospitalisations and workforce shortages. More info: https://t.co/TdtxPhJJbq #JuvenileArthritis #JAFA @aihw @ArthritisAust @flipperm

[JAFA @JAFAforkids]

Met with NSW Health Minister Ryan Park discussing the shortage of paediatric rheumatology professionals. He's looking into the consumer-focused issues & seeking solutions. Encouraged by the positive dialogue More updates soon. Thanks Minister Park! @ryanpark_keira @adampeacock3

[JAFA @JAFAforkids]

#JAFA grateful for $800K federal funds for 2023-24. Focused on boosting awareness and early diagnosis of childhood arthritis & rheumatic diseases. Aiming to lessen pain & disability. https://t.co/U3BeVcMIjM @gedkearney Dr Mike Freelander @adampeacock3 @DrJaneMunro

[JAFA @JAFAforkids]

📣 In #Tasmania: No paediatric rheumatologist = costly trips to Melbourne. JAFA founders Ruth and Stephen Colagiuri with @polley_helen &
@janiefinlay (📷 Apr 28) advocate for better care for kids with arthritis & rheumatic diseases 📷#ArthritisAwareness #JAFA

[JAFA @JAFAforkids]

Kate woke to the sound of her daughter screaming in agony https://t.co/omav6Nm7hf

[JAFA @JAFAforkids]

Great work raising awareness about your daughters' juvenile arthritis @adampeacock3 and @MichaelChammas. And thanks for spreading the word about what JAFA is trying to do for these kids.

[Michael Chammas @MichaelChammas]

The suffering and pain these kids go through is unimaginable. Thanks @WestsTigers this is something that means so much to both Adam and I with what our daughters have gone through 💛💛

[JAFA @JAFAforkids]

Wow!! Big news for kids and families living with juvenile arthritis. Thanks to everyone at @WestsTigers
#juvenilearthritis. #jafa #juvenilearthritisweek
https://t.co/1HPr5pwCQM

[JAFA @JAFAforkids]

@polley_helen @Louise_Pratt @gedkearney @Painaustralia @ArthritisAust Thanks so much for your support Senator Polley.

[Adam Peacock @adampeacock3]

Nylah (middle) couldn’t make it this morning to Canberra but caught up with some friends and their siblings on the weekend.
@JAFAforkids helps connect families affected by JA, sharing experiences is vital.