Last chance to donate. Help us raise funds for Cure SMA Canada and research. Please consider pledging for Justin’s MARVEL-ous Team by clicking on the link below.
Dernière occasion de faire un don. Cliquez sur le lien ici-bas. Merci.
https://t.co/yBzI0Hpwmj
Thanks everyone for donating and supporting Justin and our Marvel ous team. We completed our 5k challenge this evening. See highlights. Please continue to donate, you have until this Saturday July 25th by clicking on the link below:
https://t.co/yBzI0Hpwmj
Help us reach our fundraising goal! We thank everyone who has donated to date! Please donate at https://t.co/yBzI0Hpwmj
We are often asked how did we know Justin had SMA?
At age 4, Justin could barely alternate legs going up the stairs.Look at him now!!
Help us reach our fundraising goal! We thank everyone who has donated to date! Please donate at https://t.co/yBzI0Hpwmj
We are often asked how… https://t.co/hTQ3oyZ2zE
provinces follow New Brunswick’s lead in providing comprehensive access to Spinraza and collectively prioritizing the roll out of routine newborn SMA screening across all Maritime provinces.
Summertime is frequently a time in Canada where we all take a little break and ease up on some of our work priorities. Today we learned that the Government of New Brunswick was hard at work finalizing an plan to support comprehensive treatment access to Spinraza for residents
and started on treatment shortly after birth (NURTURE Study). While we applaud the Government of New Brunswick for their hard and thoughtful work this summer, we recognize that these early treated newborn results will only be a reality in New Brunswick if the other Maritime