Thank you to @RepAuchincloss for co-sponsoring the PASTEUR Act! We had a great meeting with Legislative Aide Hailey Reed, talking about the urgency of bacterial resistant antibiotics. #cfadvocacy@CFF_MassRI@CF_Foundation
@HAYSchoolNorton@NortonSchools We miss you, Nurse Jenny!! Thank you for all of the love and dedication you showed Ellie during her time there! You were the best “mom at school” I could have hoped for!! ❤️
Until It’s Done — that means we celebrate this amazing news today, and we’re back to work tomorrow. Until everyone with #cysticfibrosis has a highly effective modulator. Until “CF” stands for “Cure Found.” #UntilItsDone#CFadvocacy
Friends, for nearly 15 years you have been loving on our girl in so many ways ... you have joined us as walkers, cyclers, hikers, runners, prayers, concert-goers, and check writers. And… https://t.co/7z6cwprwrg
"We’ve always encouraged Ellie to dream big--college, career, family, travel, and more. With all the exciting advances that have resulted from so much research, we’re more confident than ever that Ellie will make her dreams a reality." -Jonathan Leo, parent to a child with CF
Thank you so much to Nikki Hurt at the office of @SenMarkey for taking the time to talk with us about the specialized care and concerns patients with cystic fibrosis require and face every day! #CFadvocacy@CF_Foundation @CFF_MassRI
Thank you Drea Shropshire from the office @RepMcGovern for taking the time to talk with us about the specialized care and concerns patients with cystic fibrosis require and face every day. #CFadvocacy @CF_Foundation @CFF_MassRI
Wonderful meeting with @RepJoeKennedy talking about the specialized care and concerns patients with cystic fibrosis require and face every day. #CFadvocacy @CF_Foundation @CFF_MassRI