TLLC - Jaclyn

All things #lichensclerosus | I create and share evidence-based LS information and provide support | patient representative/patient partner

[TLLC - Jaclyn @JaclynTllc]

This is such an important initiative. Please consider donating if you have the means to do so.

[Amanda Selk @DrAmandaSelk]

On #GivingTuesday2023 please support Vulvar Education and Research--I try so hard to promote learning and research and we could do so much more if people support the work! https://t.co/LPhXoIlv1T

[TLLC - Jaclyn @JaclynTllc]

Help me raise funds for Lichen Sclerosus Support Network so they can continue to provide free #lichensclerosus education and support. https://t.co/pNOVoYfOsC

[ISSVD @ISSVD]

An observational retrospected study from 1990 to 2011 looked at whether pediatric vulvar lichen sclerosus persists beyond puberty and menarche. The average follow-up was 14 years, and patients were re-evaluated by muldisiciplinary clinicians.

[IrishSkin.ie @ISFcharity]

To mark #WorldPsoriasisDay today, we've launched a new set of information videos for people living with or caring for someone with #psorias or #psoriaticarthritis. Check out the talk and panel discussion videos here: https://t.co/SNEsdsIKiH

[Vulval Cancer UK Awareness @VulvalCancerUK]

Gynaecological Cancer Awareness Month
4 women would have been told today they have #vulvalcancer and it would have been a double shock as it would of been the first time they had heard of this cancer.
Don’t let it be it’s rare so don’t care.
Help us raise awareness

[Vulval Cancer UK Awareness @VulvalCancerUK]

September is Gynaecological Cancer Awareness Month 💜
Did you also know that there are actually 8 gynaecological cancers?
Click the like to read about them all.

https://t.co/LPG9g64w79

[TLLC - Jaclyn @JaclynTllc]

Join LSSN's Mini-Summit 2023 on vulvovaginal conditions. Expert speakers will be touching on #hidradenitissuppurativa #gsm #centralsensitization #lichensclerosus #lichensimplexchronicus and more. 100% virtual event, Sep 29-Oct 1 - Tickets at https://t.co/7xIlBMlHse

[Vulval Cancer UK Awareness @VulvalCancerUK]

We only have until Saturday 2nd September so please sign and RT
Fund menopause awareness training for Practice Nurses https://t.co/CYECLonZ32

[TLLC - Jaclyn @JaclynTllc]

New LS survey from the CORALS team looking to get the patient's voices on what symptoms impact them the most.

Please put the list in priority order with #1 representing the most important and #10 the least important to you.

https://t.co/nX5LIkZKE8

[TLLC - Jaclyn @JaclynTllc]

Huge congrats to Tina, @caitsith675 Clare and Emma @VulvalCancerUK for getting this petition in the UK to 10, 000 signatures. Thanks for being amazing advocates and thanks to everyone who reposted and shared to their networks along the way.

#lichensclerosus

[Vulval Cancer UK Awareness @VulvalCancerUK]

We did it! 🎉🎊🎉🎊🎉
Well done Tina @caitsith675

[Vulval Cancer UK Awareness @VulvalCancerUK]

Lichen Sclerosus is
Under-reported and under-recognised.
Many get misdiagnosed as thrush and even when diagnosed they given the wrong information or no information.

This petition will help change that
🔗https://t.co/Jh05Lvl4F5

[Vulval Cancer UK Awareness @VulvalCancerUK]

1045 signatures to get the government to respond to our petition.
Please sign ✍🏻 and Retweet

[ISSVD @ISSVD]

This brochure will show you how to perform a vulvar self-exam for abnormalities. However, this is not a substitute for an examination by a health care professional, so if you are concerned, consult your health care provider.

brochure available at: https://t.co/dCTzB3myM4

[TLLC - Jaclyn @JaclynTllc]

@VulvalCancerUK @HealthySkin4All @BSFcharity Thank you, Clare. I thought of you when I saw this this morning!

[TLLC - Jaclyn @JaclynTllc]

This is such an important survey for folks with dermatological conditions, including LS. If you haven't yet, be sure to fill it out. It's available in 17 different languages. #Griddstudy #lichensclerosus

[Vulval Cancer UK Awareness @VulvalCancerUK]

Global Research on the Impact of Dermatological Diseases (GRIDD) Study
#lichensclerosus
https://t.co/tSxnJFCRZ3

[TLLC - Jaclyn @JaclynTllc]

The literature on #lichensclerosus and pregnancy is rather scare, so I'm thrilled to see more research into this important topic. Can't wait to read the article.

[Rachel Pope @drrachelpope]

What providers and pts should know abou #lichensclerosus and #pregnancy. ⁦@jillkrapfmd⁩ ⁦@CaseUrology ⁩ https://t.co/THNYasefrf

[TLLC - Jaclyn @JaclynTllc]

Did you know that pain or difficulty inserting tampons is often a symptom of vulvodynia and/or vaginismus?⁠ The Tampon Campaign, spearheaded by the BC Centre for Vulvar Health, is trying to get this information on tampon packaging. @ubykotex @Tampax

[ISSVD @ISSVD]

ISSVD launches the Vulvar Ulcer Algorithm, a comprehensive and interactive document with valuable information designed with the user in mind.
We encourage you to take advantage of this document and share this tool with other healthcare professionals.
Visit:https://t.co/GLIo827psy

[TLLC - Jaclyn @JaclynTllc]

@VulvalCancerUK Good luck 💜