Jana Benesh, PhD

Neuroscientist & Clinical Stategist. @HollinsU and #UAB alum. Clinical trials/innovations/advocacy for rare neuro diseases & #Duchenne. Tweets are my own.

[Jana Benesh, PhD @JanaBenesh]

@UABStudents @UABSON @Samford_Nursing MDA and MDA Campers at Camp Twin Lakes in Georgia have an urgent need for male and female volunteers at Camp Twin Lakes from July 2-7.

Learn More and Apply Today: https://t.co/aBJFCBeZsc

[Jana Benesh, PhD @JanaBenesh]

Today’s the last day! Please add your voice to the conversation and let us know what support you need during a clinical trial. #RareDiseaseDay #RareDiseaseDay2021 #RareDiseaseWeek

[Jana Benesh, PhD @JanaBenesh]

#RareDisease #Advocates-
@PRAHSciences and @ScoutClinical have teamed up learn more about what SUPPORT you need to participate in #clinicaltrials. Please take this #survey (you may win a prize, too!) and share your thoughts/opinions: https://t.co/DRQq6E1sxL
#rare #cure #duchenne

[Kendall Davis, MPH @KendallJD28]

#RAREADVOCATES!
@PRAHSciences and @ScoutClinical
have teamed up learn more about what SUPPORT you need to participate in #clinicaltrials! Let us know what you want and need! https://t.co/bTmIFl00pQ

Completing this survey will enter you to win one of four prizes!

[WVTM 13 @WVTM13]

FLOOD YOUR FEED 🚨

The Vestavia Hills Police Department is asking for your help in locating a #missing juvenile. Ms. Jordan Lawley, 17 years old, has been missing since December 29, 2020 around 3:00 P.M. from the Summit.

INFO 📲 @VHPD1032 at 205-978-0139

[UAB Medicine @uabmedicine]

Consistent facemask use could significantly reduce transmission of #COVID19. The effect is greatest when 100% of the public wears facemasks. When should you be wearing a mask to protect yourself and those around you from the spread of COVID-19? Follow our helpful guide below.

[UAB @UABNews]

UAB is launching a collaboration with the biopharmaceutical company Altimmune, Inc. for preclinical testing of a potential vaccine to prevent #COVID19.

Learn more: https://t.co/gTSSgVEi28

[Kristin M. Collier, MD @HSRdirector]

#covid4MDs #GetMePPE

[Jana Benesh, PhD @JanaBenesh]

Informative thread highlighting the need for serological testing of COVID19

[Nicholas A. Christakis @NAChristakis]

Let’s talk about what happens if you get COVID19 and recover. Are you immune to the disease? How long does the immunity last? And what does that mean for your life and for the public health and economy of our society? 1/

[Scott Gottlieb, MD 🇺🇸 @ScottGottliebMD]

THREAD: In response to common but incorrect orthodoxy that FDA is approving new products “too fast,” echoed in today’s @nytimes, some reflections on what’s changed in science and medicine and why certain aspects of drug/device development have changed alongside the advances.

[Jana Benesh, PhD @JanaBenesh]

"Patients pick up on things no one else sees.”

[Global Genes @GlobalGenes]

The role of #raredisease patients has shifted from being a voice to being a driver of change. Dr. Fajgenbaum of @CureCastleman is helping others be drivers too. #2019GGSUMMIT via @CNN

https://t.co/aQ8L6Wg7D5

[Jana Benesh, PhD @JanaBenesh]

Exciting news today for the SMA community!

[Cure SMA @CureSMA]

AveXis Receives FDA Approval of Gene Therapy for Spinal Muscular Atrophy for Patients Under Two Years of Age https://t.co/lKEuVy6H0h

[Kendall Davis, MPH @KendallJD28]

#RareAdvocates in Charlotte NC!! Check out this incredible opportunity! One of my favorite Rare Disease Organizations @UpliftingAth is hosting a really awesome event!
If you are in the area, consider attending!!!
https://t.co/tZuD50FgJw

[Global Genes @GlobalGenes]

The RARE Compassion Project aims to foster understanding & compassion for #raredisease patients among healthcare professionals by matching eligible medical students with a patient or family. Learn more & apply as a patient or medical student https://t.co/4nuXqrPw6Q #CareAboutRare

[Kendall Davis, MPH @KendallJD28]

Today this group of #RareAdvocates will be hitting the hill to talk to representatives about the importance of #RareDisease! Thank you @RareAdvocates for always making this a possibility! #RareDc2019 #CareAboutRare

[Iva Zovkic @ivazovkic.bsky.social @IvaZovkic]

The Zovkic lab is hiring a postdoc! Contact me if you are interested in studying epigenetic mechanisms of Alzheimer's disease in mouse models and human tissue. Please RT.

[Terri Ellsworth @TerriEllsworth]

Loved the #2018GGSummit keynote speaker, Rachel Callander. Check out her Superpower Baby Project #DecadeOfHope

[The Duchenne Registry @DuchenneReg]

Ever wonder why The Duchenne Registry asks you to submit your genetic test report? Here is a perfect example of why your data is so important!... https://t.co/oa5S22z5Wf